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What’s new on the WFH eLearning platform

The WFH eLearning platform features educational content on topics relevant to bleeding disorders and over 800 educational resources, including educational videos, webinar recordings, interactive learning modules, and online tools for healthcare professionals, people with bleeding disorders (PWBDs), and their families. New resources are added regularly, and this year featured a wide range of informative content. Miss some of the latest uploads? Have a look at what’s available today!

Also available in: Français Español

Over 50 educational resources were uploaded to the WFH eLearning platform in 2023. Here are some highlights.

WFH Webinar on von Willebrand Disease

Listen to this 90-minute webinar to learn about von Willebrand disease (VWD) in low-resource settings. The recording was originally done on September 21, 2023, in English, with interpretation in French, Spanish, Arabic and Russian. Click here to find out more.

Global Policy and Access Summit 2023

Available in English, Spanish, French, Russian and Arabic, the presentations and discussions from the third edition of the WFH Global Policy and Access Summit (GPAS) centre around increasing access to diagnosis, treatment and care for people living with bleeding disorders. The recordings include talks by local and international partner organizations, national government representatives, healthcare professionals, WFH national member organization (NMO) leaders, and bleeding disorders advocates. Click here to find out more.

“What are Rare Clotting Factor Deficiencies?”

This updated patient handbook—available in English, French and Spanish—contains basic information about the inheritance, diagnosis, symptoms and management of rare coagulation factor deficiencies. Click here to find out more.

“What are Inherited Platelet Function Disorders?”

This updated patient handbook, available in English, French and Spanish, contains basic information about the inheritance, diagnosis, symptoms, and management of inherited platelet function disorders. Click here to find out more.

“Psychosocial Care for People with Hemophilia”

This updated monograph aims to guide parents and healthcare providers in the interventions and support that can be provided at all stages of development, from birth to adulthood. The monograph is available in English and Spanish. Click here to find out more.

Report on the Annual Global Survey 2022

The most recent Report on Annual Global Survey (AGS) includes demographic and treatment data, providing a global snapshot of people with hemophilia, von Willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world. Click here to find out more.

WFH Shared Decision Making Tool for Hemophilia Treatment

The WFH Shared Decision Making (SDM) Tool is an interactive decision-support system designed to facilitate discussions regarding treatment options between people with hemophilia A or B and/or caregivers and their healthcare team, leading to informed decision-making. Click here to access the tool and corresponding videos and fact sheets on the different treatment classes. The SDM Tool is available in English, French and Spanish, with more languages to come.

To find out more about the WFH eLearning platform, please click here. If you have any questions, suggestions, or need additional information, please contact us at [email protected].

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

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Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.