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What’s new on the WFH eLearning platform

The WFH eLearning platform features educational content on topics relevant to bleeding disorders and over 800 educational resources, including educational videos, webinar recordings, interactive learning modules, and online tools for healthcare professionals, people with bleeding disorders (PWBDs), and their families. New resources are added regularly, and this year featured a wide range of informative content.

Also available in: Français Español

Missed some of the latest uploads? Have a look at what’s available on the WFH eLearning platform today!

WFH Shared Decision Making (SDM) Workbook for Hemophilia Treatment

Exciting news! A PDF version of the WFH SDM tool is now available! If you don’t have access to reliable internet or prefer working with the tool offline, you can download your copy now. Currently available in English, with French and Spanish translations to come. Click here to access the workbook.

WBDR 2023 Data Report

The World Bleeding Disorders Registry (WBDR) 2023 Data Report provides aggregate data on more than 14,000 people with hemophilia and von Willebrand disease (VWD) around the globe who are enrolled in the WBDR. Click here to read the report.

International Women’s Day Webinar 2024

In celebration of International Women’s Day, the WFH hosted an educational webinar on reproductive tract bleeding, pregnancy, and postpartum bleeding in women with VWD. Attendees had the opportunity to learn from and pose questions to key experts in the field, as well as to gain insights into the experiences of women with VWD. Click here to watch a recording of the webinar.

WFH Shared Decision Making for Hemophilia webinar series

The WFH SDM tool helps clinicians and people with hemophilia work together to make treatment decisions based on clinical evidence that balances risks and expected outcomes with patient preferences and values. Listen to three, 90-minute free-to-access webinars covering the different hemophilia treatments and the applications of this important tool for healthcare practitioners and people with hemophilia. Click here to watch the webinar series!

3rd WFH Global Summit on Women and Girls with Bleeding Disorders (WGBD)

Available in English, Spanish, French, Russian and Arabic, the presentations and discussions from the third edition of the WFH Global Summit on WGBD focusing on equity and access to care for WGBD. The recordings include talks by local and international partner organizations, national government representatives, healthcare professionals, WFH national member organization (NMO) leaders, and bleeding disorders advocates. Click here to watch a recording of the webinar.

Nurses committee webinars: how to write an abstract, prepare a poster, and present using PowerPoint

Welcome to this exciting project, a collaborative effort between the nurses committees of the European Association for Haemophilia and Allied Disorders (EAHAD), the International Society on Thrombosis and Hemostasis (ISTH), and the WFH. This is a three-part series, with presentations on the art of writing an abstract and presenting a poster now available, and a third part on presenting using PowerPoint coming soon! Click here to watch the series.

To find out more about the WFH eLearning platform, please click here. If you have any questions, suggestions, or need additional information, please contact us at [email protected].

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.