Declan Noone

President
European Haemophilia Consortium
Brussels, Belgium

Declan Noone is the President of the European Haemophilia Consortium (EHC), he was elected in 2019. Mr Noone has extensive experience as a patient advocate at the national, European and international level. For eight years, he worked with the Irish Haemophilia Society (IHS) as Data and Public Policy Specialist. His main responsibilities included membership of the national tender board for the purchase of products for the treatment of haemophilia and other related conditions. He also worked on the area of hepatitis C and access to treatments. Before being elected President, he worked with the EHC as Project consultant on the PARTNERS Programme, an initiative to raise access to treatment in countries with a low standard of treatment. During his time with EHC he also coordinated projects on data collection and novel therapies. Declan was also a member of the Board of Directors of the World Federation of Hemophilia and a member of its Educational Materials, Data and Demographics and Safety and Supply Committees. He has co-authored several papers on the quality of life in people with haemophilia, access to haemophilia care in Europe and WFH and EHC Monographs. Most recently, he published the results of a survey on the evolution of haemophilia treatment and care in Europe between 2009 and 2019. Declan has degrees in Medical Engineering and Health Economics.

Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.