news-Roche-Feb2019

Roche joins the WFH Humanitarian Aid Program

Today, the World Federation of Hemophilia (WFH) and WFH USA are proud to announce that Roche has joined the WFH Humanitarian Aid Program.

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The WFH Humanitarian Aid Program aims to improve the lack of access to care and treatment for people with inherited bleeding disorders in developing countries, and is a critically important endeavour for the bleeding disorders community. Today, the World Federation of Hemophilia (WFH) and WFH USA are proud to announce that Roche has joined the WFH Humanitarian Aid Program.

The commitment of the Roche Group will consist of a donation of emicizumab, a prophylactic treatment for hemophilia A, and funding to deliver the WFH Humanitarian Aid Program’s integrated care development training to ensure that local infrastructure and medical expertise are available to use the donated emicizumab in the most efficient and effective way possible.

The donation will provide prophylactic treatment with emicizumab to as many as 1,000 people with hemophilia A in developing countries over the course of five years. The treatment focus will be on high-need patients, such as people with factor VIII inhibitors and children without factor VIII inhibitors. The Roche donation will bring prophylactic treatment—the standard of care for haemophilia A to prevent bleeds—to the developing world, which will have a significant impact on the local bleeding disorders communities in those countries.

Thanks to Roche’s donation, significantly more people with haemophilia A will be able to receive prophylaxis through the WFH Humanitarian Aid Program. Importantly, the donation will also provide a treatment option for people with hemophilia A with Factor VIII inhibitors who previously had very limited or no treatment. Increasing access to prophylactic treatments can make a profound difference in countries where hemophilia A remains underdiagnosed and untreated.

- Alain Weill, WFH President

This donation will provide those living with hemophilia A in the developing world unprecedented access to treatment. WFH recognizes Roche as a new contributor to the program, joining Bioverativ, a Sanofi company, and Sobi who contributed to the WFH program since 2015, as well as our contributors: Grifols, CSL Behring and GC Pharma.

To read the full press release, please click here.

About the WFH Humanitarian Aid Program

The WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much-needed support for people with inherited bleeding disorders in developing countries. By providing patients with a more predictable and sustainable flow of humanitarian aid donations, the WFH Humanitarian Aid Program makes it possible for patients to receive consistent and reliable access to treatment and care. None of this would be possible without the generous support of Sanofi Genzyme and Sobi, our Founding Visionary Contributors; Bayer and Roche, our Visionary Contributors; Grifols, our Leadership Contributor; and our Contributors, CSL Behring and Takeda. To learn more about the WFH Humanitarian Aid Program, visit www.treatmentforall.org.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.