RECENT NEWS

Visit the WFH News page to find out more about the events and developments that are making a difference today.

Participate in a survey-based evaluation of the WFH Shared Decision-Making Tool

Participate in a survey-based evaluation of the WFH Shared Decision Making Tool

The WFH Shared Decision Making (SDM) Tool is designed to help people with hemophilia, caregivers, and healthcare professionals have more informed, collaborative treatment discussions. Today, we want to hear from you to learn about how we can make this great tool even better!

Also available in: Français Español

By participating in this survey, you will be contributing to important research that will help us assess the usefulness of the WFH SDM Tool for the global community. Additionally, you may find out more about your own decision-making process—whether as a person with hemophilia, caregiver, or healthcare professional.

Eligibility criteria:

  • Healthcare professionals who manage people living with hemophilia, people living with hemophilia A or B, and caregivers and/or family members of people living with hemophilia are invited to participate
  • Participants must be willing to review the WFH SDM Tool prior to starting the survey

The survey will take about 10 to 20 minutes to complete. It’s available in English, French, Spanish, Japanese, German, and Dutch. Your responses are anonymous, and participation is voluntary. For more information about the survey, read our Participant Information sheet here.

Thank you for taking the time to share your valuable insights with the World Federation of Hemophilia.

If you have questions about the survey or the WFH SDM Tool, please contact us at [email protected]. To find out more about the WFH Shared Decision Making (SDM) Tool, click here.

The WFH thanks our Corporate Partners BioMarin Pharmaceutical Inc., CSL Behring, F. Hoffmann-La Roche, Novo Nordisk, Pfizer, Sanofi and Sobi.

We’ve accomplished a lot this year, we need your help to continue strong.

Would you like to read more about similar articles?

Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.