This year’s survey includes data from 126 countries, representing an 83% participation rate among WFH national member organizations (NMOs). The AGS collects demographic and treatment-related data on people with hemophilia, von Willebrand disease (VWD), rare factor deficiencies, and inherited platelet disorders, offering valuable insights into global trends, progress, and ongoing challenges in diagnosis and care.
Key findings from AGS 2025
The report highlights several important findings:
- 513,523 PWBDs are represented in the historical global dataset, which includes the latest available data from 156 countries
- 426,911 PWBDs were reported by the 126 countries participating in the 2025 survey
- Significant gaps in patient identification remain, with only 9% of the expected number of people with hemophilia identified in Africa, compared to 82% in Europe
- 116,257 women and girls with bleeding disorders were identified in the 2025 reporting data
- Disparities in treatment availability persist, particularly between high- and low-income countries, highlighting the need for continued efforts to improve access to care
Turning data into action
For more than 25 years, the AGS has provided NMOs, healthcare professionals, researchers, and policymakers with essential information to better understand the global bleeding disorders landscape.
Beyond documenting progress, the report serves as an important resource for identifying gaps in diagnosis and treatment, supporting evidence-based advocacy, and informing healthcare policies and program planning.
These findings reinforce the importance of continued collaboration and reliable data collection to advance equitable access to care for PWBDs worldwide.
The WFH extends its sincere appreciation to all participating NMOs for their ongoing commitment to collecting and sharing data. Their contributions are essential to strengthening our understanding of the global bleeding disorders community and supporting efforts to improve care.
Supplementary charts, graphs, and interactive data are also available online here.
For more information about the Annual Global Survey, contact the WFH at [email protected].