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Just published: Annual Global Survey 2025

The World Federation of Hemophilia (WFH) is pleased to announce the publication of the Report on the Annual Global Survey (AGS) 2025, providing an updated global picture of patient identification and access to care for people with bleeding disorders (PWBDs) worldwide.

Also available in: Español

This year’s survey includes data from 126 countries, representing an 83% participation rate among WFH national member organizations (NMOs). The AGS collects demographic and treatment-related data on people with hemophilia, von Willebrand disease (VWD), rare factor deficiencies, and inherited platelet disorders, offering valuable insights into global trends, progress, and ongoing challenges in diagnosis and care.

Key findings from AGS 2025

The report highlights several important findings:

Turning data into action

For more than 25 years, the AGS has provided NMOs, healthcare professionals, researchers, and policymakers with essential information to better understand the global bleeding disorders landscape.

Beyond documenting progress, the report serves as an important resource for identifying gaps in diagnosis and treatment, supporting evidence-based advocacy, and informing healthcare policies and program planning.

These findings reinforce the importance of continued collaboration and reliable data collection to advance equitable access to care for PWBDs worldwide.

The WFH extends its sincere appreciation to all participating NMOs for their ongoing commitment to collecting and sharing data. Their contributions are essential to strengthening our understanding of the global bleeding disorders community and supporting efforts to improve care.

Supplementary charts, graphs, and interactive data are also available online here.

For more information about the Annual Global Survey, contact the WFH at [email protected].

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.