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WFH offers gene therapy and clinical trial resources

Gene therapy is an exciting new treatment option, with two approved products and several others in clinical trials. The World Federation of Hemophilia (WFH) plays an important role in educating our community on all treatments, including gene therapy and the clinical trial process. To help enhance the understanding of gene therapy as well as the clinical trial process for all members of our community, the WFH has developed new resources: the gene therapy education page, the clinical trials education page, and the WFH Gene Therapy for Hemophilia Clinical Trials Pipeline Tool.

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These resources can help people with hemophilia (PWH) and health care professionals like you answer important questions they may have about gene therapy and the clinical trial process.

Learn more about gene therapy and clinical trials

The WFH gene therapy education page will help you learn all about the basics of gene therapy: from what it is, to what it does. The WFH clinical trials education page includes valuable information you can drill down on, such as the phases and processes of clinical trials, questions for potential participants to ask before taking part, and the roles played by the participant and the healthcare provider.

Learning about the clinical trials going on right now

Once you have a good understanding of what’s involved in gene therapy and clinical trials, you can start following the progress of all of the clinical trials currently underway. The WFH Gene Therapy for Hemophilia Clinical Trials Pipeline Tool allows users to search for clinical trials based on therapeutic approach, clinical trial phase, and more. Once you’ve found a clinical trial that you want to explore further, it’s easy to learn more about the trial’s phase, status, and outcomes.

To visit the gene therapy education page, please click here.  To visit the clinical trials education page, please click here. To visit the WFH Gene Therapy for Hemophilia Clinical Trials Pipeline Tool, please click here.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.