On Thursday, September 22, 2022, from 8 a.m. to 9:30 a.m. ET, the WFH will host “Barriers to Accessing Care for Women and Girls with Bleeding Disorders”, a webinar that will cover the challenges women and girls with bleeding disorders (WGBD) are facing and will explore different solution avenues. This event will provide an opportunity for participants to learn and exchange ideas on a range of topics, including the following:
WGBD with moderate and severe hemophilia, von Willebrand disease (VWD), and other rare bleeding disorders (RBD) experience a significant delay—16 years, on average—in diagnosis compared to men.
Women and girls with hemophilia A are five times more at risk of post-surgical bleeding and three times more at risk of postpartum bleeding than non-affected women.
Data will not only help address research questions around clinical management of WGBD, but they can also help emphasize the scope of issues and inform advocacy initiatives and policy decisions to improve access to care.
Women and girls are expected to make up approximately 30% of people diagnosed with hemophilia, yet the reported figure was only 4.5% in the latest WFH Annual Global Survey (2020).
A panel with healthcare professionals of different specialities will highlight the importance of the comprehensive care approach in the delivery of care for WGBDs. Speakers will include Dawn Rotellini (U.S.A), WFH Board Member and chair of the WFH WGBD Committee; Roshni Kulkarni, MD (U.S.A), WFH WGBD Committee member; Michelle Lavin, MD (Ireland), chair of the VWD & RBD Committee; gynecologist-obstetrician Elizabeth Pumpure, MD (Latvia), and nurse Anne-Louise Cruickshank (South Africa), among others. Live interpretation will be offered in French, Spanish, Russian and Arabic.
To find out more, and to register, click here.
This event is made possible through the generous support of Hemophilia of Georgia (HoG) and the National Hemophilia Foundation (NHF).
