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WBDR investigators gather at Congress to strengthen global collaboration

WBDR investigators gather at Congress to strengthen global collaboration

Healthcare professionals from hemophilia treatment centres (HTCs) around the world came together during the WFH 2026 World Congress in Kuala Lumpur for the World Bleeding Disorders Registry (WBDR) Investigators Meeting, held on April 20, 2026. Organized as an informal lunch discussion by the WBDR team, the meeting provided a valuable opportunity for participants to exchange experiences and discuss the challenges and successes associated with registry participation.

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The gathering brought together investigators from HTCs currently contributing data to the WBDR, creating a collaborative space for open discussion about the management of people with bleeding disorders (PWBDs), data collection, and research strategies. Participants shared practical experiences related to maintaining high-quality data, engaging PWBDs in long-term follow-up, and integrating rare bleeding disorders into ongoing registry and research efforts. The use of WBDR as an advocacy tool was also discussed, with actionable suggestions shared between participants.

During the meeting, the WBDR team recognized the exceptional efforts of participating centres by presenting three awards to HTCs demonstrating outstanding commitment to data entry and data quality.

The WBDR team encourages additional HTCs from around the world to join the registry and contribute to the growing global dataset. Expanding participation in the WBDR remains essential to improving understanding of bleeding disorders and advancing equitable care worldwide.

To find out more about the WFH World Bleeding Disorders Registry (WBDR), click here.

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