Search Results
The World Federation of Hemophilia (WFH) and its national member organizations (NMO) are supported every day by dedicated volunteers who believe that by working together, a better future can be provided to people living with an inherited bleeding disorder around the world. The outstanding leadership provided by these committed individuals is helping the WFH get further to its vision of Treatment for All.
National member organizations (NMOs) are the heartbeat of the World Federation of Hemophilia (WFH). The WFH works in close collaboration with NMOs to provide them with support tailored to their realities to help them increase the level of care for the people with bleeding disorders (PWBDs) in their countries. Every few weeks we will be profiling an NMO on the WFH News page, showcasing the work that they are doing, the challenges they are facing, and the difference they are making in their communities. Today, we look at the NMO in Kenya, the Kenya Haemophilia Association (KHA).
Today is April 17, 2024—World Hemophilia Day! The theme of the event this year is “Equitable access for all: recognizing all bleeding disorders”. The World Federation of Hemophilia (WFH) vision of Treatment for All is for a world where all people with inherited bleeding disorders have access to care, regardless of their type of bleeding disorder, gender, age, or where they live. Today, let’s celebrate our community and continue working towards a world where everyone—with hemophilia A or B, von Willebrand disease (VWD) or any other bleeding disorder—has access to diagnosis, treatment, and comprehensive care.
The World Federation of Hemophilia (WFH) Development Grant Program (DGP) provides grant funding to WFH national member organizations (NMOs) that have new and innovative ideas and projects that address an unmet need or problem in the bleeding disorders community in their country. Since the launch of the program in 2018, the DGP has supported over 40 projects by 37 NMOs. One of these projects was implemented by the Brazilian NMO, the Federação Brasileira de Hemofilia (FBH), to develop a mobile application to improve clinical management and treatment adherence by facilitating communication between hemophilia treatment centres (HTCs) and people with bleeding disorders (PWBD).
National member organizations (NMOs) are the heartbeat of the World Federation of Hemophilia (WFH). The WFH works in close collaboration with NMOs to provide them with support tailored to their realities to help them increase the level of care for the people with bleeding disorders (PWBDs) in their countries. Over the next few months, we will be profiling several NMOs on the WFH News page, showcasing the work that they are doing, the challenges they are facing, and the difference they are making in their home countries. Today, we look at the NMO in Japan: the National Hemophilia Network of Japan.
April 17, 2023 was World Hemophilia Day, and all around the world, thousands of people came together around the theme of “Access for All: Prevention of bleeds as the global standard of care”. Events were held in dozens of countries—many of them in-person for the first time since the before the COVID-19 pandemic. Buildings and monuments were lit up in red, people celebrated in groups small and large, and the internet was buzzing with excitement as this important day for the global bleeding disorders community was celebrated once again.
Today is April 17, 2023—World Hemophilia Day! The theme of the event this year is “Access for All: Prevention of bleeds as the global standard of care”. Building on last year’s theme, the call to action for the community in 2023 is to come together and advocate with local policy makers and governments for improved access to treatment and care with an emphasis on better control and prevention of bleeds for all people with bleeding disorders (PWBDs). This means the implementation of home-based treatment as well as prophylactic treatment to help those individuals have a better quality of life.
National member organizations (NMOs) are the heartbeat of the World Federation of Hemophilia (WFH). We work in close collaboration with NMOs to provide them with support tailored to their realities to help them increase the level of care for the people with bleeding disorders (PWBDs) in their countries. Over the next few months, we will be profiling several NMOs on the WFH News page, showcasing the work that they are doing, the challenges they are facing, and the difference they are making in their home countries. Today, we look at the NMO in Costa Rica: the Asociación Costarricense de Hemofilia.