Wordl Hemophilia Day 2021
WFH

World Hemophilia Day 2021: a global celebration

April 17th was World Hemophilia Day, and despite the many challenges created by the COVID-19 pandemic, the bleeding disorders community once again demonstrated its resilience by coming together virtually to celebrate the theme of “Adapting to change: sustaining care in a new world”.

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April 17th was World Hemophilia Day, and despite the many challenges created by the COVID-19 pandemic, the bleeding disorders community once again demonstrated its resilience by coming together virtually to celebrate the theme of “Adapting to change: sustaining care in a new world”. Landmarks around the world took part in the Light it up Red campaign. Virtual events were held around the world by different groups. Hundreds of stories were shared and thousands of people read those stories on the World Hemophilia Day website. In short, the global bleeding disorders community truly came together once again in a moving show of solidarity.

“None of this would have been possible without the amazing awareness campaigns, events and messages of our national member organizations (NMOs), fellow hemophilia organizations, and corporate partners,” says Cesar Garrido, WFH President. “On behalf of everyone at the WFH, thank you all for making this World Hemophilia Day a very special one.” To watch Cesar Garrido’s thank you video to the community, please click on the YouTube video image above.

On April 17, there were posts and comments coming in all day on the WFH Facebook pageLinkedIn page and Twitter timeline. Our World Hemophilia Day website also hosted hundreds of stories and comments, and 8,000 people read those stories and connected with the community.

A record 100+ landmarks around the world were lit up in red, and people around the world took pictures of those landmarks. You can see a small selection of those images below, and you can click here to see the full collection. Do you have your own picture of a landmark lit up in red? Feel free to add it to the collection here!

The WFH held its first ever World Hemophilia Day fundraising campaign, which gave our global family the opportunity to take action on this important day and support our efforts to bring our vision of Treatment for All to life. These funds will allow us to continue delivering training and guidance to support advocacy efforts and provide us with the flexibility to quickly respond to the needs of our community as they evolve. It’s not too late to contribute to the World Hemophilia Day campaign: you can still make a gift here.

The World Hemophilia Day microsite—worldhemophiliaday.org—is still up, so if you want to read motivating stories or watch inspiring videos made by the members of our community, just click here.

The WFH would like to thank our 2021 World Hemophilia Day sponsors for their continued support: Bayer

BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche Ltd., GC Pharma, Grifols, Kedrion, LFB S.A, Novo Nordisk, Octapharma, Pfizer, Precision Biologic, Sanofi Genzyme, Sobi, Spark Therapeutics, Takeda, uniQure.

We’ve accomplished a lot this year, we need your help to continue strong.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.