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Now live: WFH Shared Decision Making Tool for hemophilia treatment!

The World Federation of Hemophilia (WFH) is excited to announce the launch of the WFH Shared Decision Making Tool for hemophilia treatment! Shared decision-making (SDM) is a process by which clinicians and patients work together to make treatment decisions based on clinical evidence that balances risks and expected outcomes with patient preferences and values. SDM helps patients feel prepared in the decision-making process. The WFH SDM Tool is an interactive decision-support system designed to facilitate discussions regarding treatment options between people with hemophilia (PWH) A or B and caregivers and their healthcare team, leading to informed decision-making.

Also available in: Français Español

The WFH Shared Decision Making Tool for hemophilia treatment provides a framework to guide PWH through the thought process regarding treatment goals and preferences, provides evidence-based and balanced education on expected outcomes by treatment class, and helps PWH navigate the complexities of current treatment options. The tool is available for use in English, with Spanish and French versions coming soon—and even more languages as we move forward. The WFH SDM Tool is a “living” tool, meaning its data and information will be updated on a regular basis.

A three-month public comment period will be open from August 1 to November 1, 2023. We encourage you to participate in this important process by completing a survey on the WFH SDM Tool. Take a few moments and let us know what you think!

For more information on the WFH SDM Tool, contact us at [email protected].

The WFH SDM Tool is supported by an educational grant from BioMarin Pharmaceutical Inc., CSL Behring, Novo Nordisk, Pfizer and Spark Therapeutics.

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.