WFH Humanitarian Aid Program 10-year anniversary header

A decade of impact: the WFH Humanitarian Aid Program

In 2012, the President of the World Federation of Hemophilia (WFH) issued a call to action, urging organizations to support the global community of individuals with inherited bleeding disorders through donations of treatment products and financial aid. In 2014, Biogen and Sobi responded with an unprecedented pledge of one billion international units (iUs) of factor concentrates to the WFH Humanitarian Aid Program. This bold commitment paved the way for other donors and partners to join the initiative. Now, ten years later, the profound impact of this donation on the effectiveness of the program and, consequently, on the quality of life for thousands of people with bleeding disorders worldwide can be clearly seen.

Also available in: Français Español

Access to treatment is essential for people with a bleeding disorder (PWBD). While managing emergency acute bleeds with treatment products is an important first step, a predictable supply of donations is necessary to truly enhance the quality of life for PWBDs. Thanks to these donations, the WFH Humanitarian Aid Program has been able to provide a consistent and reliable supply of treatment products to those who need it most around the world. Where once a lack of factor led to an almost certain death, now prophylaxis is a reality for thousands of people—most of them children.

The impact of donations can’t be overstated. Countless lives have been saved and significantly improved. PWBDs have gone from having what amounts to a death sentences, to a chance at a normal life.

—Assad E. Haffar, MD, WFH Medical & Humanitarian Aid Director

As donations became more dependable and consistent, the program expanded to include training for healthcare professionals (HCPs) on the efficient and effective use of treatment products. Education initiatives were also launched to ensure that individuals with bleeding disorders receive the best possible quality of life.

It is remarkable to witness the extraordinary impact the enhanced WFH Humanitarian Aid Program has had on the lives of people living with hemophilia around the world. Through expanded access, lives are being transformed. The ability to introduce prophylaxis, provide corrective orthopedic surgeries and teach home-based care tangible examples of what the WFH is doing on the path to its vision of Treatment for All.

—Mark W. Skinner, board member, WFH USA

By providing support to communities, the WFH Humanitarian Aid Program has also bolstered national member organizations (NMOs). These organizations can now use data from their communities to demonstrate to governments the significant impact of consistent access to treatment—allowing them to enhance their advocacy efforts. This progress is a direct result of the generosity of WFH Humanitarian Aid Program sponsors like Sanofi and Sobi.

About the WFH Humanitarian Aid Program

The WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much-needed support for people with inherited bleeding disorders in developing countries. By providing patients with a more predictable and sustainable flow of humanitarian aid donations, the WFH Humanitarian Aid Program makes it possible for patients to receive consistent and reliable access to treatment and care. None of this would be possible without the generous support of Sanofi and Sobi, our Founding Visionary Contributors; Bayer, CSL Behring and Roche, our Visionary Contributors; Grifols, our Leadership Contributor; and Takeda and Japan Blood Products Organization, our Contributors. To learn more about the WFH Humanitarian Aid Program, visit www.treatmentforall.org.

We’ve accomplished a lot this year, we need your help to continue strong.

Would you like to read more about similar articles?

Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.