The WFH is very pleased to announce that David Silva has been co-opted to its Board of Directors as a lay member from March 17, 2023, to the next Annual Meeting of the General Assembly in 2024.
For many families in Cambodia, hemophilia once meant a lifetime of suffering and fear. Heng Kim recalls the heartbreaking early years of her son’s life: “When he first began walking, his legs would often get swollen. The swelling would last quite a long time… he would often cry out, ‘Mom, …
Registration is now open for the 4th WFH Global Summit on Women and Girls with Bleeding Disorders (WGBD)! Taking place virtually on September 25 to 26, 2025, this two-day event will bring together people with bleeding disorders, families, healthcare providers, national member organization (NMO) advocates, and other stakeholders for a …
Gene therapy is an important milestone in the development of treatment options for people with hemophilia, offering the potential to improve their clinical outcomes—including quality of life—with a one-time infusion. Unfortunately, the development of this treatment option has faced numerous challenges, and unwarranted criticism has been placed on the community, …
The World Federation of Hemophilia (WFH) participated in the 78th World Health Assembly (WHA78) from May 19 to 27 2025, in Geneva, Switzerland. Below is a recap of the WFH’s advocacy efforts done through side events, and statements made at the WHA78, where we represented the voice of the global …
For families living with hemophilia, treatment options can make the difference between fear and freedom. Ackson, father of 10-year-old Manasseh, a boy with hemophilia, recalls the early days of his son’s diagnosis—when a minor mouth injury led to days of uncontrolled bleeding and a rushed trip to a hospital unequipped …
The Susan Skinner Memorial Fund scholarship program fosters leadership and encourages the active participation of women of all ages in the global bleeding disorders community through education, training, and networking at major international WFH events. Applications are now open! Read on to find out more about this exciting opportunity.
It is with great sadness that the World Federation of Hemophilia (WFH) learned of the recent passing of Carol Kasper, MD, a lifelong champion for the global bleeding disorders community. Carol Kasper was a giant in our community—one whose legacy will endure for generations.
The WFH PACT Program 2024 Impact Report has been published and is now available online. The WFH Path to Access to Care and Treatment (PACT) Program is a 5-year initiative designed to improve outreach and diagnosis and increase access to sustainable care for people with inherited bleeding disorders. Over a …
It is with great sadness that the World Federation of Hemophilia (WFH) learned of the recent passing of Professor Emeritus Parttraporn Isarangkura, MD, DSc. Known as “Doctor Pat,” and the “mother of hemophilia”, she was the most prominent figure in hemophilia care in Thailand.
Rida Hadle, a young man with hemophilia A from Damascus, Syria, is taking steps—he once thought impossible—thanks to a remarkable international effort led by the World Federation of Hemophilia (WFH), and made possible thanks to donations provided by the WFH Humanitarian Aid Program.
The WFH is thrilled to share that Kathy Mulder—past Chair of the World Federation of Hemophilia (WFH) Musculoskeletal Committee—has been appointed to the Order of Canada, one of the country’s highest civilian honours, in recognition of her decades-long dedication to improving care for people with bleeding disorders.
National member organizations (NMOs) are the heartbeat of the World Federation of Hemophilia (WFH). The WFH works in close collaboration with NMOs to provide them with support tailored to their realities to help them increase the level of care for the people with bleeding disorders (PWBDs) in their countries. Every …
