The work done in Nicaragua was part of the WFH Path to Access to Care and Treatment (PACT) Program—an initiative designed to improve outreach and diagnosis and increase access to sustainable care for people with inherited bleeding disorders. Mentorship is being provided by Dunia Castillo, MD (Cuba).
PACT has brought many benefits to Nicaragua: knowledge-sharing on care delivery and patient registries has increased; a plan has been developed to create a network of centres that can provide primary care to patients living far from the capital city of Managua, where hemophilia treatment centres (HTCs) are based; there is active support for the NMO by the head of the Nicaraguan blood bank, Glenda Meléndez, MD; and treatment guidelines will be adapted to the national healthcare system.
Today, the Asociación Nicaragüense de Hemofilia (ANH), the Ministry of Health (MINSA) and the WFH are working very closely to develop the first National Hemophilia Treatment Guidelines that will make it possible to standardize the treatment of hemophilia at the national level
— Delvin Romero, ANH President, and a person with hemophilia A
The PACT Program is supported by funding from Roche, our visionary partner; CSL Behring, Pfizer, and Sanofi Genzyme, our leadership partners, and Biotest, Grifols, and Sobi, our collaborating partners.