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WFH 2023 Comprehensive Care Summit: New Developments in Bleeding Disorders and MSK

The WFH 2023 Comprehensive Care Summit: New Developments in Bleeding Disorders and MSK will take place from May 10 to 12, 2023 in Buenos Aires, Argentina. The global summit will encompass the biennial International WFH Musculoskeletal (MSK) Congress, and will include MSK, medical and multi-disciplinary tracks—all centering around people with bleeding disorders. The Comprehensive Care Summit will bring together MSK and medical professionals as well as bleeding disorder patients and community advocates to discuss new medical research and discoveries, and assess problems and issues present in the management of bleeding disorders in all parts of the world. This summit is open internationally to all participants.

Also available in: English Français Español

Join us online at #MSKCongress

WFH 2023 Comprehensive Care Summit [email protected]

PROGRAM AT A GLANCE

The WFH 2023 Comprehensive Care Summit will include more than 30 hours of continuing educational sessions across three tracks—musculoskeletal, medical, and multidisciplinaryall focusing on topics related to the latest developments in bleeding disorders and MSK treatment and care. The global summit will feature world-class plenary and session speakers, interactive sessions, panel discussions and innovative industry symposia.

AGENDA

Calendar





7:30 a.m. – 8:30 a.m.
MSK WORKSHOP: POCUS for Assessment - Interactive workshop
8:45 a.m. – 9:15 a.m.
OPENING PLENARY: Welcome Remarks
9:15 a.m. – 9:45 a.m.
MULTIDISCIPLINARY PLENARY: Ageing
10:00 a.m. – 11:00 a.m.
COMPREHENSIVE CARE PLENARY OVERVIEW: Comprehensive Care of Ageing
  • Physician and hemophilia A
  • patient perspective Patient perspective
  • Nurse perspective
  • Psychosocial perspective
  • Physiotherapist perspective
11:30 a.m. – 12.30 p.m.
MSK SESSION: Musculoskeletal surgical procedures for patients with bleeding disorders
  • Major surgical intervention in Hemophilia
  • Use of emicizumab for minor surgery
  • MSK surgeries for patients with inhibitors
11:30 a.m. – 12.30 p.m.
MEDICAL SESSION: Prophylaxis
  • Global overview of prophylaxis with factor replacement
  • Global overview of prophylaxis with factor VIII-mimetic
14:00 – 15:00
MULTIDISCIPLINARY SESSION: Education for patients and families
  • What’s normal/not normal
  • Education available; Standardization of resources
  • Managing expectations for clinicians & patients with novel therapies
14:00 – 15:00
MEDICAL SESSION: How to manage hemostasis during major surgery
  • Emicizumab – clinical trials
  • Fitusiran – clinical trials
  • Emicizumab
15:30 – 16:30
MSK SESSION: The musculoskeletal manifestations of bleeding disorders
  • Muscle bleeds from a surgeon perspective (Surgery and pseudotumor)
  • Preventing muscle bleeds, is it possible?
  • Heterotopic Ossification
15:30 – 16:30
MULTIDISCIPLINARY SESSION: Comprehensive care models for women & girls with bleeding disorders
  • Delivering combined care
  • Optimal care for WGBD, reclassification of carriers
  • Challenges in diagnosis of WGBD
9:15 a.m. – 9:45 a.m.
MSK PLENARY: Advances in arthropathies/ bone health at different age group
10:00 a.m. – 11:00 a.m.
MSK PLENARY OVERVIEW: The art of treating synovitis
  • Chemical vs radioactive
  • PRP
  • Hyaluronic acid
  • Surgical intervention for synovitis
11:30 a.m. – 12.30 p.m.
MEDICAL SESSION: VWD
  • Prophylaxis
  • Application of VWD guidelines – lower income setting
  • Aging, angiodysplasia
11:30 a.m. – 12.30 p.m.
MULTIDISCIPLINARY SESSION: Lessons learnt from isolation
  • Mental health/psychosocial
  • Experience from local HTC – telehealth & physio program
  • Pros to isolation
  • Cons to isolation
14:00 – 15:00
MSK SESSION: Regional focus - South America
  • Brazil: Experience in one centre
  • Colombia: Experience in one centre
  • Chile: Physiotherapy perspective, Telerehabilitation
  • Argentina: Experience in Ultrasound into clinical practical
14:00 – 15:00
MEDICAL SESSION: Management of women and girls with bleeding disorders
  • Management of gynecological bleeding
  • Management of pregnancy
  • Iron deficiency
15:30 – 16:30
MSK SESSION: Global interactive session from theory into practice
  • Therapies at different backgrounds
  • Assessment tools
  • Pain
  • Communication between different specialities
15:30 – 16:30
MULTIDISCIPLINARY SESSION: Relationships and Intimacy
  • Dental health and its impact on intimacy for women & men
  • Physiotherapist perspective
  • Psychologist perspective
16:45 – 17:45
MSK SESSION: Multiple joint arthropathies
  • Severe multiple joint arthropathies
  • Pain coping behaviour from an orthopedist perspective
  • The role of manual therapies
09:15 a.m. – 9:45 a.m
MEDICAL PLENARY: Transition to mild hemophilia
10:00 a.m. – 11:00 a.m.
MEDICAL PLENARY OVERVIEW: Novel Therapeutics
  • Overview
  • Patient w/severe hemophilia on emicizumab perspective
  • Patient w/GT perspective
  • Changing role of the haemophilia team in the era of novel therapeutics
  • PT – Joint issues/ activity choice
11.30 a.m. – 12.30 p.m.
MSK SESSION: The role of rehabilitation in the management of hemophilia
  • Self Rehabilitation
  • Gait Evaluation and Rehabilitation
  • Post surgical rehabilitation
11:30 a.m. – 12:30 p.m.
MULTIDISCIPLINARY SESSION: Informed patient consent
  • Overview of consent
  • Panel discussion
  • Patient perspective
  • Geneticist perspective
14:00 – 15:00
MEDICAL SESSION: Gene therapy
  • Compare hemophilia A/B
  • Next generation transgene for hemophilia A
  • Next generation vectors Hem A/B
14:00 – 15:00
MSK SESSION: Football for patients with hemophilia
  • Factor coverage for increased activities
  • Balancing physical benefits of this sport versus the social impact of not participating
  • Sports – When to start/stop
15:30 – 16:30
MULTIDISCIPLINARY SESSION: New treatments: Additional considerations for patients
  • Increased inclusion of women in clinical trials
  • Inclusivity in clinical trials (underserved communities)
  • New therapies: when to advocate, how to choose when to advocate, cost
  • Mindset of entering into new treatments
15:30 – 16:30
MEDICAL SESSION: Preventing joint bleeds sequelae
  • Blood induced joint damage
  • Current management (hemostasis)
  • Therapy of blood induced joint damage lessons from other diseases
Pre-registration required
Simultaneous interpretation available in Spanish and Portuguese for the multidisciplinary track.
Program is subject to change

CME CREDITS

The WFH has applied with the European Accreditation Council for Continuing Medical Education (EACCME®) for 15 European CME credits (ECMEC®s) for the WFH 2023 Comprehensive Care Summit.

 

CALL FOR ABSTRACTS

The WFH 2023 Comprehensive Care Summit Program Committee invites abstract submissions for free paper and poster presentations. Abstracts discussing solutions and interventions related to addressing the summit tracks are highly encouraged. We encourage submissions from allied health professionals in academic and community settings and from community organizations, health care providers/organizations and from students who are doing new and innovative work.

Call for abstracts will open on October 15, 2022, and close on February 6, 2023.

To submit an abstract please click here.

COMMITTEE & SPEAKERS

No speakers found

REGISTRATION INFORMATION

Registration and housing for the 2023 WFH Comprehensive Care Summit are now open to all.  Take advantage of our early-bird discount and register before December 16, 2022, to save!

The safest way to register is using our easy, efficient, and secure online system. Simply follow the steps to register online and you will receive an email confirmation within 24 hours.

 

REGISTRATION FEES

Registration fees are in USD. Rates are applicable if both registration and payment are received before the deadlines.

 EARLYREGULARON-SITE
Before December 16, 2022Before May 5, 2023
Delegate$780$920$1,075
Industry$780$920$1,075
PAMs (professions allied to medicine)$415$515$615
Community advocate, NMO staff, student$200$300$400
PWBD$100$150$200

The registration fee includes:

  • Access to all medical and multidisciplinary sessions
  • Entrance to the exhibition area
  • Entrance to the poster area
  • Electronic access to final program, State of the Art book, new WFH publications
  • Daily coffee breaks
  • Daily lunch
  • Certificate of attendance (by request)
  • CME credits (if applicable)

PASSPORT TO THE WORLD

Passport to the World fees only apply to citizens who reside in a qualifying country. See the full list of eligible countries here.

 

PASSPORT TO THE WORLD – REDUCED FEES*

Registration rates are quoted in USD and expire at midnight Eastern Standard Time (EST).

 EARLYREGULARON-SITE
Before December 16, 2022Before May 5, 2023
Delegate (pysician)$390$460$460
PAMs (Professions allied to medicine)$390$460$460
Community Advocate, NMO staff$75$75$105
PWBD$75$75$105

Important information*

  • The above fees cannot be combined with any other discount
  • Passport to the World fees only apply to citizens who reside in a qualifying country. See the full list of eligible countries here.
  • Registrants will need to provide proof of citizenship during the registration process (passport or national ID is accepted)
  • The discount can only be applied at the time of registration. Discounts will not be issued retroactively once a registration is completed.
  • The Passport to the World fee only applies to doctors, HCPs, NMO staff, volunteers, people with a bleeding disorder, and family members. The fee does not apply to students or industry staff.
  • Please contact [email protected] for more information

Registration changes and cancellations

Any change or cancellation of your registration must be sent in writing to [email protected]. A confirmation of the change or cancellation will be forwarded to you. All requests are subject to the following conditions:

  • No name changes are permitted.
  • Until Friday, March 10, 2023, a refund equivalent to 75% of the paid registration fee will be granted . After Friday, March 10, 2023, no refunds will be granted.
  • Requests for refunds with regards to incorrect registration payments or incorrect category selection will not be considered
  • Non-attendance will be considered to be a cancellation on the day of the event and will incur a 100% cancellation fee

ACCOMMODATION

The WFH 2023 Comprehensive Care Summit is taking place at the Hilton Buenos Aires hotel in the lovely Puerto Madero district.

Deluxe rooms: US$241.50/night

Executive Rooms: US$271.50/night

 

Attendees will be able to register for hotel accommodations during the online Summit registration process. We ask that all attendees use the centralized online housing system during online registration to make reservations. This will ensure that you receive the best negotiated room rates while at the Summit. Please note that only payments by credit cards (Visa or MasterCard) are accepted online. All rates include breakfast and basic internet access.

City tax: Due to government regulations, starting on March 1st, 2020, non-Argentinean residents will be charged a USD 1.50 per person per night city tax fee.

VAT: VAT, currently 21%, will be added to hotel reservations to those who identify as residents of the Argentine Republic.

The hotel booking page will be available until April 5, 2023. After April 5, 2023, hotel rooms are subject to availability and rates cannot be guaranteed. Please send an email to [email protected] to check availability after April 5, 2023. 

The WFH will charge your credit card with a non-refundable deposit equal to one nights’ accommodation. The balance will be charged sixty (60) days prior to the event on March 10, 2023. For cancellations received after March 10, 2023, no refunds will be granted.

If you are unable to provide a credit card guarantee you will be invoiced for a deposit equal to 100% of your total accommodation cost. For cancellations before March 10, 2023, a refund will be issued one month after the Congress, less an administrative fee equal to one night’s accommodation. For cancellations received after March 10, 2023, no refunds will be granted.

Any change or cancellation of your registration must be sent in writing to [email protected]. A confirmation of the reservation change or cancellation will be forwarded to you. All requests are subject to the following conditions:

  • No name changes are permitted. All name changes will be subject to the cancellation policy. Please do not contact the hotel directly.
  • For cancellations received after March 10, 2023, no refunds will be granted
  • Should you need to check out earlier than planned, no refunds will be granted

A group reservation consists of ten (10) or more rooms. One contact person should be designated to act as the group coordinator and be responsible for all correspondence with the WFH Housing Manager.  If you wish to book a group reservation, please send an email to [email protected], specifying the number of rooms required per day.  Please note that hotel blocks are assigned on a first-come, first-served basis.

The required deposit may be made by credit card (Visa or Mastercard) or wire transfer. From April 5, 2023, only payments by credit card will be accepted. Any inquiries or requests for additional information, modifications or cancellations to room reservations should be addressed to the WFH Housing Bureau in writing. Please do not contact the hotel directly.

ABOUT BUENOS AIRES

Buenos Aires is cosmopolitan city full of passion and culture. Its combination of rich architectural and cultural heritage, modern creative energy, electric nightlife, unique traditions, vibrant arts scene, large parks, and warm, friendly people make it one of the world’s most exciting capitals.

There are many reasons to visit, which is why the city has been repeatedly voted the best in Latin America by users of TripAdvisor.

With average temperatures of around 18ºC (64°F), Buenos Aires is blessed with a temperate and sunny climate, making it a great destination at any time of the year.

Spring and autumn are the rainiest seasons, and the Summit is taking place during Argentina’s autumn season. Rains tend to be light, although an umbrella may be advisable.

TRAVEL

Buenos Aires is well-connected and easy to reach, with three airports, two bus stations, and a port and cruise terminal.

SkyTeam is our Official Alliance Network for air travel. Seamless air travel—and attractive airfares—are available via SkyTeam Global Meetings for the Summit. By booking and buying your airline ticket via the dedicated link below, you will benefit from exclusive discounts of up to 15% for both Business and Economy Class.

To book your air travel now, click here or visit www.skyteam.com/en/business-solutions/global-meetings and enter event ID 4555S.

Buenos Aires is served by three airports:

  • Ministro Pistarini International Airport, Ezeiza (EZE)

The biggest airport in Argentina is in Ezeiza, 32 km (20 miles) from the centre of Buenos Aires city. Most long-haul international flights arrive and depart from here, along with some domestic and regional flights. The journey from the airport to the centre of the city takes about 50 minutes.

  • Jorge Newbery Airport (also known as Aeroparque (AEP))

Located in the city itself, in the Palermo neighbourhood, this airport is within 25 minutes of the main hotels in Buenos Aires. It serves mainly domestic flights and flights to neighbouring countries.

  • El Palomar (EPA)

Located 18km (11 miles) from the city, El Palomar Airport began serving a range of low-cost domestic flights to destinations throughout Argentina in 2018.

Taxis are readily available at all three airports.

Private transfers can be booked in advance or on arrival. Tienda León runs buses from Ezeiza airport to its base in Puerto Madero, in the center of Buenos Aires city.

All three airports are served by public bus lines, and there is also a train station at el Palomar. Note that services can be crowded at peak times and there is little space for luggage. You’ll need a SUBE travel card to use the bus or train. These are available from authorized stockists. You can use the “BA Cómo Llego” app to see how you can arrive at your destination via public transport.

The Terminal de Omnibus de Retiro, or Retiro bus station provides hundreds of bus services to destinations in Argentina and other Latin American countries. Long-distance bus travel is common in Argentina and most bus companies offer very comfortable “cama-ejecutivo” (executive bed) class seats, and often provide food on long-distance services. Dozens of companies operate from the coach station. Tickets can be bought at the booths on the upper floor, at authorised vendors in the city, or online. Assistance can be obtained at the Tourist Assistance Centre at unit 83.

There are regular ferry services between Buenos Aires and Montevideo and Colonia de Sacramento in Uruguay. The ferry terminals in Buenos Aires are in Puerto Madero and La Boca. The following companies run services:

Buquebus

Colonia Express

Information taken from the Buenos Aires Tourism site

Entry and departure requirements can change at any time, consult the following for the most up to date travel requirements: Migraciones | Argentina.gob.ar

FAQ

Q     Who can attend the Summit?
A     This in person global Summit is open to all participants.
Q     What does my registration fee include?

A     All in-person registration categories, include the following: 

a.    Access to all sessions 

b.    Entrance to the poster area 

c.    Daily coffee breaks 

d.    Daily lunch 

e.    Certificate of attendance (by request) 

f.    CME credits (if applicable) 

Q     How do I register a group?

ACompanies and organizations intending to register a group of 10 people may follow a special group registration procedure. Please contact [email protected] for the group registration template or register your group directly via our online registration system.

SPONSORS

For all inquiries, please contact:

Danielle André,

WFH Senior Congress and Meetings Manager, Exhibitions, World Federation of Hemophilia

Tel +1 (514) 394-2820

E-mail: [email protected]

SILVER SPONSORS

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Disclaimer

The information on the WFH website is provided for general information purposes only. The WFH does not engage in the practice of medicine and under no circumstances recommends particular treatment for specific individuals. For diagnosis or consultation on a specific medical problem, the WFH recommends that you contact your physician or local treatment centre. Before administering any products, the WFH urges patients to check dosages with a physician or hemophilia centre staff, and to consult the pharmaceutical company’s printed instructions.

While every effort has been made to ensure the accuracy of the information on this site, the WFH does not guarantee the information is accurate, and is not responsible in any way whatsoever for damages arising out of the use of this website or any of the information contained herein.

Messages posted to WFH discussion forums, Facebook, Twitter, and other social media platforms do not represent the opinions of the World Federation of Hemophilia, its staff, or Board of Directors. The author of a message is solely responsibility for its content. Information posted on WFH social networks and platforms should never be a substitute for individualized professional medical advice, even when the author has medical qualifications or is considered an authority. Information posted to a discussion group should not be used to diagnose or treat a specific health problem without consulting a qualified healthcare professional. The WFH recommends that you contact your physician or local treatment centre if you have any individual questions or concerns.

References and links to other websites or references to other organizations, products, services, or publications do not constitute endorsement or approval by the WFH. The WFH is not responsible and assumes no liability for the content of any linked websites.

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The WFH does not collect personally identifying information about you when you visit our site, unless you choose to provide such information to us. Providing such information is strictly voluntary. This policy is your guide to how we will handle information we learn about you from your visit to our website.

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Throughout our website, we provide links to other servers which may contain information of interest to our readers. We take no responsibility for, and exercise no control over, the organizations, views, or accuracy of the information contained on other servers. When linking to the WFH, we request that you ensure that there are no associated connections for commercial purposes. Any official use of the name WFH or the use of its logo needs to be approved by the WFH. If you have a link you’d like us to consider adding to our website, please send an email to [email protected] with the subject “Link request.”

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The WFH encourages the dissemination of its information and welcomes proposals on the reprinting, redistribution, and translation of its materials. If you would like to publish information that you find on our website, please send your request to [email protected].

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Questions about our policies

If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you can contact us at [email protected].

Fraud Alert

Unauthorized solicitations – Warning

The WFH has been made aware of various correspondences—circulated via e-mail and telephone—coming from individuals impersonating WFH staff or falsely stating that they are associated with the WFH. These correspondences, which may seek to obtain money using the name of someone affiliated with the WFH, are fraudulent and come from outside of our organization.

If you receive a suspicious solicitation, exercise extreme caution. In the case of an email, look at the email address to see if it looks suspicious (for example, all WFH emails come from @wfh.org).

We are asking you to remain vigilant, and if you have any doubts about the correspondence, please forward the email to the WFH at [email protected] or call +1 514-875-7944.

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Design Files

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Italy - Milan

Year of IHTC designation: 1972

Angelo Bianchi Bonomi Hemophilia and Thrombosis Centre
Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Blood banking
  • Orthopedic care and surgery
  • Physiotherapy
  • Diagnostic assessment of platelet functional defects

Thailand - Bangkok

Year of IHTC designation: 1984

International Hemophilia Training Center – Bangkok
Ramathibodi Hospital
Mahidol University

Areas of Specialty

  • Adult and pediatric hemostasis
  • Molecular genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and social services

Sweden - Malmö

Year of IHTC designation: 1976

Malmö Centre for Thrombosis and Haemostasis
Department for Hematology and Coagulation Disorders, Skåne University Hospital
Skåne University Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and genetics
  • Nursing
  • Dental care and surgery
  • Orthopedic care and surgery
  • Blood banking (on request)

Spain - Madrid

Year of IHTC designation: 2018

Hospital Universitario La Paz

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Spain - Valencia

Year of IHTC designation: 1997

Haemostasis and Thrombosis Unit
Haematology Service, University and Polytechnic Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy
  • Blood banking
  • Psychology and Social services

South Africa - Johannesburg

Year of IHTC designation: 2016

Haemophilia Comprehensive Care Centre
Charlotte Maxeke Johannesburg Academic Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Physiotherapy

Singapore - Singapore

Year of IHTC designation: 2002

Singapore General Hospital Haemophilia Treatment Clinic

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis
  • Nursing
  • Dental care
  • Orthopedic care (no surgeries)
  • Physiotherapy
  • Psychology

Senegal - Dakar

Year of IHTC designation: 2016

Centre International de Traitement de l’Hémophilie (CITH) de Dakar
Centre National de Transfusion Sanguin (CNTS)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Blood banking
  • Physiotherapy

Russia - Moscow and St. Petersburg

Year of IHTC designation: 2010

National Medical Research Center of Hematology of the Russian Academy of Medical Sciences

Areas of Specialty

  • Adult hematology
  • Nursing
  • Orthopedic surgery

Netherlands - Utrecht

Year of IHTC designation: 1996

Van Creveldkliniek
University Medical Centre Utrecht

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hematology
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy

Japan - Nara

Year of IHTC designation: 1998

Nara Hemophilia Centre
Nara Medical University

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic care and surgery
  • Laboratory diagnosis and Molecular genetics
  • Physiotherapy

Israel - Tel Hashomer

Year of IHTC designation: 1993

National Hemophilia Center, Tel Hashomer
Sheba Medical Center

Areas of Specialty

  • Adult and pediatric hematology
  • Orthopedic surgery
  • Nursing
  • Physiotherapy
  • Dental care
  • Laboratory diagnosis (not genetics)
  • Psychology

United States - Chapel Hill, North Carolina

Year of IHTC designation: 1972

University of North Carolina Hemophilia & Thrombosis Center

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis
  • Nursing
  • Physiotherapy/ Occupational therapy
  • Psychology/ Social services

United States - Columbus, Ohio

Year of IHTC designation: 2018

Nationwide Children’s Hospital

Areas of Specialty

  • Pediatric hematology services
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

United States - Houston, Texas

Year of IHTC designation: 2000

Gulf States Hemophilia and Thrombophilia Center
University of Texas Health Science Center at Houston

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Blood banking
  • Physiotherapy/ Occupational therapy
  • Psychology/Social services

United States - Los Angeles, California

Year of IHTC designation: 1970

Orthopaedic Hemophilia Treatment Center

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Physical therapy
  • Psychology/Social services

United States - New York, New York

Year of IHTC designation: 1993

Mount Sinai School of Medicine
Mount Sinai Medical Center

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Molecular genetics
  • Social services

United States - Rochester, Minnesota

Year of IHTC designation: 1974

Mayo (Rochester) Comprehensive Hemophilia Center, and International Hemophilia Training Center (WFH)
Mayo Clinic/Foundation and Mayo Medical School

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Blood banking
  • Molecular genetics
  • Psychology/ Social services

United States - San Diego, California

Year of IHTC designation: 2018

Hemophilia & Thrombosis Treatment Center
University of California San Diego

Areas of Specialty

  • Adult hematology
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

India - Mumbai

Year of IHTC designation: 2000

National Institute of Immunohaematology (ICMR) and KEM Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics
  • Dental care
  • Orthopedic care
  • Physiotherapy

India - Vellore

Year of IHTC designation: 2000

Christian Medical College, Vellore

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics with antenatal diagnosis
  • Nursing
  • Musculoskeletal management – physical and occupational therapy with physiatry
  • Orthopedic care and surgery
  • Blood banking
  • Dental care
  • Psychology/Social services
  • Antenatal diagnosis

France - Paris

Year of IHTC designation: 1972

Paris Haemophilia Centre (Necker (N) and Kremlin Bicetre (KB) Hospitals)

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Dental care
  • Orthopedic care and surgery
  • Psychology and Social services

Egypt - Cairo

Year of IHTC designation: 2015

Shabrawishi Hospital, Egyptian Society of Hemophilia, and Cairo University

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Molecular genetics
  • Blood banking
  • Physiotherapy

Canada - Toronto

Year of IHTC designation: 2018

University of Toronto Hemophilia Centres
St. Michael’s Hospital

Areas of Specialty

  • Adult hematology services
  • Pediatric hematology services
  • Physiotherapy/occupational therapy
  • Dental care
  • Orthopaedic care (no surgery)
  • Laboratory diagnosis
  • Nursing
  • Psychology/social services

Brazil - Campinas, SP

Year of IHTC designation: 2008

Hemocentro – “Unidade de Hemofilia Cláudio Luiz Pizzigatti Corrêa”
Hemocentro Unicamp, University of Campinas

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and molecular genetics
  • Nursing
  • Dentistry
  • Physiotherapy

Belgium - Brussels

Year of IHTC designation: 2013

Haemostasis and Thrombosis Unit
Division of Haematology
Cliniques universitaires Saint-Luc

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis
  • Orthopedic care and surgery

Belgium - Leuven

Year of IHTC designation: 1972

Hemofiliecentrum Leuven, University of Leuven

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis (not genetics)
  • Nursing
  • Psychology
  • Social services
  • Orthopedic care and surgery

Austria - Vienna

Year of IHTC designation: 1972

Medical University of Vienna
Department of Medicine I
Clinical Division of Hematology and Hemostaseology

Areas of Specialty

  • Adult hematology

Australia - Melbourne

Year of IHTC designation: 2005

Ronald Sawers Haemophilia Centre

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Dental care
  • Blood banking
  • Psychology
  • Social work

Argentina - Buenos Aires

Year of IHTC designation: 1974

Instituto Asistencial “Dr. Alfredo Pavlovsky”
(Fundación de la Hemofilia)

Instituto De Investigaciones Hematológicas “Dr. Mariano R. Castex” (IIHEMA
(Academia Nacional de Medicina)

Areas of Specialty

  • Adult and pediatric hematology
  • Physiotherapy
  • Dental care
  • Orthopaedic care and surgery
  • Laboratory diagnosis and genetic diagnosis
  • Nursing
  • Psychology
  • Social services

Our history

The WFH was established in 1963 by Frank Schnabel, a Canadian businessman born with severe hemophilia A. He believed that patient organizations could be much more effective—and do more to represent the interests of people living with bleeding disorders—if they worked together. The first WFH Congress was held in Copenhagen, Denmark, on June 25, 1963, and was attended by representatives from 12 countries. Now, the WFH and our global network of national member organizations (NMOs) represent the interests of people with hemophilia and other inherited bleeding disorders in 147 nations.

United Kingdom - London

Year of IHTC designation: 1970

Katharine Dormandy Haemophilia Centre and Thrombosis Unit
Royal Free Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Nursing
  • Orthopedic care and surgery
  • Physiotherapy/Occupational therapy
  • Molecular genetics
  • Psychology/Social services

United Kingdom - Manchester

Year of IHTC designation: 2008

Manchester Haemophilia Comprehensive Care Centre (Children’s and Adult’s)
Manchester Royal Infirmary and Manchester Children’s Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Molecular genetics
  • National Hemophilia database

United Kingdom - Oxford

Year of IHTC designation: 1972

Oxford Haemophilia Centre and Thrombosis Centre
Churchill Hospital

Areas of Specialty

  • Adult and pediatric hematology
  • Laboratory diagnosis and hemostasis
  • Orthopedic care and surgery
  • Nursing
  • Molecular genetics
  • Physiotherapy/Occupational therapy

United Kingdom - Sheffield

Year of IHTC designation: 1992

Sheffield Haemophilia and Thrombosis Centre
Royal Hallamshire Hospital

Areas of Specialty

  • Adult hematology
  • Laboratory diagnosis and hemostasis
  • Molecular genetics

WBDR data sets

WBDR Minimal Data Set

The WBDR Minimal Data Set (MDS) is a set of data on demographics, diagnosis, symptoms and treatment which are collected on patients participating in the WBDR.

WBDR Extended Data Set

The WBDR Extended Data Set (EDS) is a larger set of data, with more details than the MDS, which includes questions on patient demographics, diagnosis, symptoms, treatment and burden of disease. The EDS can be used by hemophilia treatment centers to collect data on patients participating in the WBDR. The WBDR Extended Data Set (EDS), was added to the database in March 2019.

Light it Up Red landmarks

Argentina

Buenos Aires, Argentina Planetario
La Torre Monumental
Monumento Plaza Congreso
Palacio Lezama

If you’re aware of a landmark that is lighting up red for World Hemophilia Day 2022 that is not on this list, please forward the official confirmation from the landmark to [email protected] to have it added to the list. 

Advocacy toolkit

Coming soon!