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WFH PACT Program 2023 Impact Report now available

The WFH PACT Program 2023 Impact Report has been published! The WFH Path to Access to Care and Treatment (PACT) Program is a 5-year initiative designed to improve outreach and diagnosis and increase access to sustainable care for people with inherited bleeding disorders. Over a period of five years, the PACT Program aims to identify 20,000 new PWBDs in 20 targeted countries; improve access to care through training and education; and increase government support to establish or expand existing national bleeding disorders programs.

Also available in: Français Español

To date, the WFH PACT Program has contributed to a notable increase in the level of care in the target countries. These successes are highlighted in the WFH PACT Program 2023 Impact Report, which is now available online here. Read on to find out more about the key successes the Program had last year.

OBJECTIVE 1: Identify 20,000 new people with bleeding disorders (PWBDs)

  • Identified 18,832 new people with PWBDs over three years, which is 94% of the set target

OBJECTIVE 2: Improve access to care through training and Education

  • Strengthened the knowledge and skills of healthcare practitioners (HCPs) and national member organization (NMO) members related to developing effective outreach and diagnosis projects
  • Widened the global reach of the WFH PACT Advocacy Academy by offering instruction in French and Spanish in addition to English
  • Received positive feedback from previous PACT Advocacy graduates through a survey conducted on the impact of the course on NMO advocacy work and other programs and initiatives

82% of the respondents stated they implemented their advocacy projects, and 83% reported their NMOs launched new activities and initiatives, among other outcomes.

  • Enhanced the knowledge and skills of HCPs in the clinical management of bleeding disorders, contributing to an increase in level of care offered to PWBDs

OBJECTIVE 3: Increase government support

  • Collaborated with governments by signing Memoranda of Understanding (MoUs), and helping to enact policy changes to improve government support and commitment for increasing equitable access to diagnosis, treatment and care

The level of care in Zambia has increased significantly over the last few years, thanks to the hard work of many committed stakeholders. The signing of this MoU signifies an exciting new chapter in this journey.

—Cesar Garrido, President, WFH

  • Made tangible progress towards having bleeding disorders recognized as a government priority in several PACT countries through the joint efforts of NMOs, HCPs, and the WFH

The Ministry of Health understands the importance of patient associations. This is reflected in the sustained support we receive from the directorate of noncommunicable diseases (NCDs) and the hemophilia treatment centre (HTC) for our important activities. The WFH PACT Program provides us with an opportunity to better collaborate as a partner with the Ministry and increase our visibility and leadership in the country.

—Abdoulaye Loum, President of the Association Sénégalaise des Hémophiles (ASH)

To find out more about the WFH PACT Program’s contribution to improving diagnosis and care for people with bleeding disorders around the world—including some inspirational case studies—please read the report here. To learn more about the WFH Path to Access to Care and Treatment (PACT) Program, please click here.

The PACT Program is supported by funding from Roche and Sanofi, our visionary partners; CSL Behring and Pfizer, our leadership partners; and Bayer, Biotest and Grifols, our collaborating partners.

We’ve accomplished a lot this year, we need your help to continue strong.

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