{"id":60329,"date":"2022-12-06T20:26:27","date_gmt":"2022-12-07T01:26:27","guid":{"rendered":"https:\/\/wfh.org\/%d1%81%d0%b1%d0%be%d1%80-%d0%b4%d0%b0%d0%bd%d0%bd%d1%8b%d1%85\/%d1%80%d0%b5%d0%b3%d0%b8%d1%81%d1%82%d1%80-%d0%b3%d0%b5%d0%bd%d0%bd%d0%be%d0%b9-%d1%82%d0%b5%d1%80%d0%b0%d0%bf%d0%b8%d0%b8\/"},"modified":"2025-02-20T10:21:58","modified_gmt":"2025-02-20T15:21:58","slug":"%d1%80%d0%b5%d0%b3%d0%b8%d1%81%d1%82%d1%80-%d0%b3%d0%b5%d0%bd%d0%bd%d0%be%d0%b9-%d1%82%d0%b5%d1%80%d0%b0%d0%bf%d0%b8%d0%b8","status":"publish","type":"page","link":"https:\/\/wfh.org\/ru\/%d0%b8%d1%81%d1%81%d0%bb%d0%b5%d0%b4%d0%be%d0%b2%d0%b0%d0%bd%d0%b8%d1%8f-%d0%b8-%d1%81%d0%b1%d0%be%d1%80-%d0%b4%d0%b0%d0%bd%d0%bd%d1%8b%d1%85\/%d1%80%d0%b5%d0%b3%d0%b8%d1%81%d1%82%d1%80-%d0%b3%d0%b5%d0%bd%d0%bd%d0%be%d0%b9-%d1%82%d0%b5%d1%80%d0%b0%d0%bf%d0%b8%d0%b8\/","title":{"rendered":"\u0420\u0435\u0433\u0438\u0441\u0442\u0440 \u0413\u0435\u043d\u043d\u043e\u0439 \u0422\u0435\u0440\u0430\u043f\u0438\u0438"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"60329\" class=\"elementor elementor-60329 elementor-51966\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-ae28895 elementor-section-full_width elementor-reverse-mobile elementor-section-height-default elementor-section-height-default\" data-id=\"ae28895\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-d6ad73d elementor-hidden-mobile\" data-id=\"d6ad73d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-c2a6ff7 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"c2a6ff7\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;sticky&quot;:&quot;top&quot;,&quot;sticky_offset&quot;:15,&quot;sticky_on&quot;:[&quot;desktop&quot;,&quot;tablet&quot;,&quot;mobile&quot;],&quot;sticky_effects_offset&quot;:0,&quot;sticky_anchor_link_offset&quot;:0}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-ed0c27f\" data-id=\"ed0c27f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-9f6d896 elementor-widget elementor-widget-heading\" data-id=\"9f6d896\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\">\u0420\u0415\u0413\u0418\u0421\u0422\u0420 \u0413\u0415\u041d\u041d\u041e\u0419 \u0422\u0415\u0420\u0410\u041f\u0418\u0418<\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-065b20e elementor-widget elementor-widget-heading\" data-id=\"065b20e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\"><a href=\"#participate\">\u0423\u0447\u0430\u0441\u0442\u0432\u043e\u0432\u0430\u0442\u044c \u0432 \u0420\u0413\u0422<\/a><\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-772740c elementor-widget elementor-widget-heading\" data-id=\"772740c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\"><a href=\"#governance\">GTR Governance<\/a><\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cf49b4a elementor-widget elementor-widget-heading\" data-id=\"cf49b4a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\"><a href=\"#data\">\u0414\u0430\u043d\u043d\u044b\u0435 \u0420\u0413\u0422<\/a><\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-51749f3 elementor-widget elementor-widget-heading\" data-id=\"51749f3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\"><a href=\"#programs\">\u041f\u0440\u043e\u0433\u0440\u0430\u043c\u043c\u044b \u0420\u0413\u0422<\/a><\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-07d5021 elementor-widget elementor-widget-heading\" data-id=\"07d5021\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\"><a href=\"#myGTR\">myGTR<\/a><\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a8f3156 elementor-widget elementor-widget-heading\" data-id=\"a8f3156\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\"><a href=\"#support\">\u041f\u043e\u0434\u0434\u0435\u0440\u0436\u043a\u0430 \u0441\u043e\u043e\u0431\u0449\u0435\u0441\u0442\u0432\u0430 \u0420\u0413\u0422<\/a><\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f787844 elementor-widget elementor-widget-heading\" data-id=\"f787844\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\"><a href=\"#publications\">\u041f\u0443\u0431\u043b\u0438\u043a\u0430\u0446\u0438\u0438<\/a><\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d2ce851 elementor-widget elementor-widget-heading\" data-id=\"d2ce851\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\"><a href=\"#contact-us\">\u0421\u0432\u044f\u0436\u0438\u0442\u0435\u0441\u044c \u0441 \u043a\u043e\u043c\u0430\u043d\u0434\u043e\u0439 \u0420\u0413\u0422<\/a><\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d7b9e5e elementor-widget elementor-widget-heading\" data-id=\"d7b9e5e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\"><a href=\"#acknowledgement\">\u0412\u044b\u0440\u0430\u0436\u0435\u043d\u0438\u0435 \u0431\u043b\u0430\u0433\u043e\u0434\u0430\u0440\u043d\u043e\u0441\u0442\u0438<\/a><\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-c57b2cb\" data-id=\"c57b2cb\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6c03d7f elementor-widget elementor-widget-template\" data-id=\"6c03d7f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"template.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-template\">\n\t\t\t\t\t<div data-elementor-type=\"section\" data-elementor-id=\"25306\" class=\"elementor elementor-25306\" data-elementor-post-type=\"elementor_library\">\n\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-4897f92e elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"4897f92e\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-75983c78\" data-id=\"75983c78\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-21504386 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"21504386\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-7ba5d59b\" data-id=\"7ba5d59b\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-4f85140c elementor-widget elementor-widget-spacer\" data-id=\"4f85140c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2eb40b0 elementor-widget elementor-widget-heading\" data-id=\"2eb40b0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">\u0420\u0435\u0433\u0438\u0441\u0442\u0440 \u0413\u0435\u043d\u043d\u043e\u0439 \u0422\u0435\u0440\u0430\u043f\u0438\u0438<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-88af5d9 elementor-widget elementor-widget-text-editor\" data-id=\"88af5d9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"\">\u0420\u0435\u0433\u0438\u0441\u0442\u0440 \u0433\u0435\u043d\u043d\u043e\u0439 \u0442\u0435\u0440\u0430\u043f\u0438\u0438 (\u0420\u0413\u0422,\u00a0<em>\u0430\u043d\u0433\u043b<\/em>. GTR) \u2014 \u044d\u0442\u043e \u043f\u0440\u043e\u0441\u043f\u0435\u043a\u0442\u0438\u0432\u043d\u044b\u0439, \u043e\u0431\u0441\u0435\u0440\u0432\u0430\u0446\u0438\u043e\u043d\u043d\u044b\u0439, \u043b\u043e\u043d\u0433\u0438\u0442\u044e\u0434\u043d\u044b\u0439 \u0440\u0435\u0433\u0438\u0441\u0442\u0440, \u0440\u0430\u0437\u0440\u0430\u0431\u043e\u0442\u0430\u043d\u043d\u044b\u0439 \u0441 \u0446\u0435\u043b\u044c\u044e \u0434\u043e\u043b\u0433\u043e\u0441\u0440\u043e\u0447\u043d\u043e\u0433\u043e \u0441\u0431\u043e\u0440\u0430 \u0434\u0430\u043d\u043d\u044b\u0445 \u043e \u043b\u0438\u0446\u0430\u0445 \u0441 \u0433\u0435\u043c\u043e\u0444\u0438\u043b\u0438\u0435\u0439\u00a0 (\u041b\u0441\u0413), \u043f\u043e\u043b\u0443\u0447\u0430\u044e\u0449\u0438\u0445 \u0433\u0435\u043d\u043d\u0443\u044e \u0442\u0435\u0440\u0430\u043f\u0438\u044e.<\/p>\n<p class=\"\">\u041e\u0441\u043d\u043e\u0432\u043d\u0430\u044f \u0446\u0435\u043b\u044c \u0420\u0413\u0422 \u0441\u043e\u0441\u0442\u043e\u0438\u0442 \u0432 \u043e\u043f\u0440\u0435\u0434\u0435\u043b\u0435\u043d\u0438\u0438 \u0434\u043e\u043b\u0433\u043e\u0441\u0440\u043e\u0447\u043d\u043e\u0439 \u0431\u0435\u0437\u043e\u043f\u0430\u0441\u043d\u043e\u0441\u0442\u0438 \u0433\u0435\u043d\u043d\u043e\u0439 \u0442\u0435\u0440\u0430\u043f\u0438\u0438 \u0444\u0430\u043a\u0442\u043e\u0440\u0430 VIII \u0438 \u0444\u0430\u043a\u0442\u043e\u0440\u0430 IX \u0434\u043b\u044f \u043b\u0438\u0446 \u0441 \u0433\u0435\u043c\u043e\u0444\u0438\u043b\u0438\u0435\u0439.\u00a0 \u0412\u0442\u043e\u0440\u043e\u0441\u0442\u0435\u043f\u0435\u043d\u043d\u0430\u044f \u0446\u0435\u043b\u044c \u2014 \u0432\u044b\u044f\u0441\u043d\u0438\u0442\u044c \u0434\u043e\u043b\u0433\u043e\u0441\u0440\u043e\u0447\u043d\u0443\u044e \u044d\u0444\u0444\u0435\u043a\u0442\u0438\u0432\u043d\u043e\u0441\u0442\u044c \u0438 \u0434\u043e\u043b\u0433\u043e\u0432\u0435\u0447\u043d\u043e\u0441\u0442\u044c \u0433\u0435\u043d\u043d\u043e\u0439 \u0442\u0435\u0440\u0430\u043f\u0438\u0438 \u0444\u0430\u043a\u0442\u043e\u0440\u0430 VIII \u0438 \u0444\u0430\u043a\u0442\u043e\u0440\u0430 IX \u0443 \u043b\u0438\u0446 \u0441 \u0433\u0435\u043c\u043e\u0444\u0438\u043b\u0438\u0435\u0439, \u0430 \u0442\u0430\u043a\u0436\u0435 \u043e\u0446\u0435\u043d\u0438\u0442\u044c \u0434\u043e\u043b\u0433\u043e\u0441\u0440\u043e\u0447\u043d\u043e\u0435 \u043a\u0430\u0447\u0435\u0441\u0442\u0432\u043e \u0436\u0438\u0437\u043d\u0438 \u0438 \u0431\u0440\u0435\u043c\u044f \u0431\u043e\u043b\u0435\u0437\u043d\u0438 \u043f\u043e\u0441\u043b\u0435 \u043f\u0440\u043e\u0432\u0435\u0434\u0435\u043d\u043d\u043e\u0439 \u0433\u0435\u043d\u043d\u043e\u0439 \u0442\u0435\u0440\u0430\u043f\u0438\u0438.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-faffcc4 elementor-icon-list--layout-inline elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"faffcc4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"elementor-icon-list-items elementor-inline-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item elementor-inline-item\">\n\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/10\/GTR-fact-sheet-RU.pdf\" target=\"_blank\">\n\n\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"40.918\" height=\"53.2\" viewBox=\"0 0 40.918 53.2\"><g id=\"Group_6750\" data-name=\"Group 6750\" transform=\"translate(1.5 6.5)\"><g id=\"Group_6757\" data-name=\"Group 6757\"><path id=\"Path_1011\" data-name=\"Path 1011\" d=\"M36.95,56.517a2.978,2.978,0,0,1-2.3-1.108,3.04,3.04,0,0,1-.085-4.176c.852-1.108,2.557-2.046,4.943-2.9a25.466,25.466,0,0,1,2.727-.767,34.887,34.887,0,0,0,1.7-3.58,34.071,34.071,0,0,0,1.278-3.409c-1.364-2.3-2.642-5.029-2.557-7.159a3.138,3.138,0,0,1,2.9-3.324h0a2.937,2.937,0,0,1,3.324,2.131c.682,2.045,0,5.2-.767,7.926A26.892,26.892,0,0,0,50.5,43.477c.767.938,1.449,1.79,2.216,2.642,2.983,0,5.8.256,7.5,1.193a3.021,3.021,0,0,1,1.7,3.665,3.061,3.061,0,0,1-3.58,2.3c-2.216-.256-4.773-2.386-6.733-4.432a43.074,43.074,0,0,0-4.432.426c-1.108.17-2.216.341-3.239.6a16.438,16.438,0,0,1-1.108,1.79,14.527,14.527,0,0,1-4.091,4.347A3.58,3.58,0,0,1,36.95,56.517Zm3.324-5.625a9.247,9.247,0,0,0-3.75,2.046c-.256.256-.256.426.085.852.17.17.256.341.938,0A11.343,11.343,0,0,0,40.274,50.892Zm15.171-1.96a6.868,6.868,0,0,0,3.239,1.875c.341.085.511.085.767-.511.085-.17.085-.256-.426-.6A10.735,10.735,0,0,0,55.444,48.932Zm-8.352-5.54c-.256.682-.511,1.278-.682,1.7-.256.682-.6,1.278-.852,1.875a6.579,6.579,0,0,1,1.278-.17c.852-.085,1.7-.256,2.557-.256-.426-.511-.767-.938-.938-1.193C48.115,44.841,47.6,44.159,47.092,43.392ZM45.9,32.738c-.341.085-.6.085-.6.767A8.949,8.949,0,0,0,46.325,37a8.659,8.659,0,0,0,.17-3.835c-.17-.426-.256-.426-.6-.426Z\" transform=\"translate(-28.311 -21.752)\" fill=\"#ed174c\"><\/path><path id=\"Path_1012\" data-name=\"Path 1012\" d=\"M1404.235,4242.746v50.2h37.918v-38.123l-12.877-12.077Z\" transform=\"translate(-1404.234 -4247.746)\" fill=\"none\" stroke=\"#ed174c\" stroke-width=\"3\"><\/path><path id=\"Path_1013\" data-name=\"Path 1013\" d=\"M1417.091,4242.746v12.292h13.44\" transform=\"translate(-1392.057 -4248.397)\" fill=\"none\" stroke=\"#ed174c\" stroke-width=\"3\"><\/path><\/g><\/g><\/svg>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">\u00abGTR\u00bb: \u0438\u043d\u0444\u043e\u0440\u043c\u0430\u0446\u0438\u043e\u043d\u043d\u044b\u0439 \u0431\u044e\u043b\u043b\u0435\u0442\u0435\u043d\u044c<\/span>\n\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-aaac82d elementor-widget elementor-widget-spacer\" data-id=\"aaac82d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-a2ec4c4 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"a2ec4c4\" data-element_type=\"section\" data-e-type=\"section\" id=\"participate\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-c18de8c\" data-id=\"c18de8c\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-24b2fe8\" data-id=\"24b2fe8\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-55b2756 clamp_h2 elementor-widget elementor-widget-heading\" data-id=\"55b2756\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">\u0423\u0427\u0410\u0421\u0422\u0412\u041e\u0412\u0410\u0422\u042c \u0412 \u0420\u0413\u0422<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1b6ac19 clamp_p elementor-widget elementor-widget-text-editor\" data-id=\"1b6ac19\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"\">Data will be captured in the registry one of two ways:<\/p>\n<ol style=\"padding-inline-start: 20px; font-size: 1.1rem; margin-bottom: .5rem;\">\n<li><strong>Directly via participating hemophilia treatment centres (HTCs)<\/strong><\/li>\n<\/ol>\n<ul style=\"list-style-type: disc; margin-bottom: 1rem;\">\n<li>All HTCs that will be administering gene therapy for PWH will be invited to participate. HTCs that will be providing follow up visits for PWH who receive gene therapy will either be invited to participate, or the patient data collected at the follow up site will be sent to the HTC administering gene therapy for inclusion in the registry.<\/li>\n<\/ul>\n<p style=\"margin: 0;\">If your HTC is interested in participating in the GTR, please email us at <a href=\"mailto:gtr@wfh.org\" target=\"_blank\" rel=\"noopener\">gtr@wfh.org<\/a>. The WFH will guide you through the process of obtaining ethics approval from your local institution.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d6d0681 elementor-widget__width-inherit elementor-tablet-align-start elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"d6d0681\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"elementor-icon-list-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www.dropbox.com\/scl\/fo\/zcfkbkh41m4921p2pbgft\/h?rlkey=1j1sn5livayqamqg4tpmk9ex9&#038;st=9j3zmoit&#038;dl=0\" target=\"_blank\">\n\n\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-download\"><\/i>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Download ethics submission documents<\/span>\n\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-da8dc00 clamp_p elementor-widget elementor-widget-text-editor\" data-id=\"da8dc00\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ol style=\"font-size: 1.1rem; margin-bottom: .5rem; padding-inline-start: 20px;\" start=\"2\">\r\n \t<li><strong>Through data transfer\/linking from existing national hemophilia registries who meet specific criteria and can ensure the following:<\/strong><\/li>\r\n<\/ol>\r\n<ul style=\"list-style-type: disc; margin-bottom: 1rem;\">\r\n \t<li>Collection of the same\/similar data fields as the WFH GTR core data set<\/li>\r\n \t<li>Harmonization and standardization of terminology, particularly for adverse events<\/li>\r\n \t<li>Patient consent for secondary uses of their data outside of the existing registry<\/li>\r\n \t<li>Strict data quality management practices and high-quality data<\/li>\r\n \t<li>Avoidance of duplication of PWH<\/li>\r\n<\/ul>\r\n<p class=\"\">If you are a patient with hemophilia who has received gene therapy and is interested in participating in the GTR, please contact your HTC.<\/p>\r\n<p class=\"\">Further information can be found in the user guide on the <a href=\"https:\/\/www1.wfh.org\/publications\/files\/pdf-2212.pdf\" target=\"_blank\" rel=\"noopener\">basics of hemophilia, gene therapy, and long-term data collection<\/a>, and the <a href=\"https:\/\/www1.wfh.org\/publications\/files\/pdf-2214.pdf\" target=\"_blank\" rel=\"noopener\">user guide for people with hemophilia<\/a>.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-51dc1ab elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"51dc1ab\" data-element_type=\"section\" data-e-type=\"section\" id=\"governance\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-4cc1478\" data-id=\"4cc1478\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-07d2583\" data-id=\"07d2583\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ac00ffc clamp_h2 elementor-widget elementor-widget-heading\" data-id=\"ac00ffc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">GTR GOVERNANCE<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-47686dd clamp_p elementor-widget elementor-widget-text-editor\" data-id=\"47686dd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"\">A comprehensive governance structure\u2014involving several key committees\u2014was established to ensure the success of the GTR. The governance structure includes input from the Scientific Advisory Board (SAB), the National Registries &amp; Hemophilia Treatment Centres Consortium, the steering committee, the industry consortium, and the patient advisory group. Representatives from various patient and healthcare professional organizations\u2014including the International Society of Thrombosis and Hemostasis (ISTH), the European Association for Haemophilia and Allied Disorders (EAHAD), the European Haemophilia Consortium (EHC), and the US National Bleeding Disorders Foundation (NBDF)\u2014are represented on the different committees.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1c95e3f elementor-icon-list--layout-inline elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"1c95e3f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"elementor-icon-list-items elementor-inline-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item elementor-inline-item\">\n\t\t\t\t\t\t\t\t\t\t\t<a href=\"\/wp-content\/uploads\/2024\/09\/WFH-GTR-Governance.pdf\" target=\"_blank\">\n\n\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"40.918\" height=\"53.2\" viewBox=\"0 0 40.918 53.2\"><g id=\"Group_6750\" data-name=\"Group 6750\" transform=\"translate(1.5 6.5)\"><g id=\"Group_6757\" data-name=\"Group 6757\"><path id=\"Path_1011\" data-name=\"Path 1011\" d=\"M36.95,56.517a2.978,2.978,0,0,1-2.3-1.108,3.04,3.04,0,0,1-.085-4.176c.852-1.108,2.557-2.046,4.943-2.9a25.466,25.466,0,0,1,2.727-.767,34.887,34.887,0,0,0,1.7-3.58,34.071,34.071,0,0,0,1.278-3.409c-1.364-2.3-2.642-5.029-2.557-7.159a3.138,3.138,0,0,1,2.9-3.324h0a2.937,2.937,0,0,1,3.324,2.131c.682,2.045,0,5.2-.767,7.926A26.892,26.892,0,0,0,50.5,43.477c.767.938,1.449,1.79,2.216,2.642,2.983,0,5.8.256,7.5,1.193a3.021,3.021,0,0,1,1.7,3.665,3.061,3.061,0,0,1-3.58,2.3c-2.216-.256-4.773-2.386-6.733-4.432a43.074,43.074,0,0,0-4.432.426c-1.108.17-2.216.341-3.239.6a16.438,16.438,0,0,1-1.108,1.79,14.527,14.527,0,0,1-4.091,4.347A3.58,3.58,0,0,1,36.95,56.517Zm3.324-5.625a9.247,9.247,0,0,0-3.75,2.046c-.256.256-.256.426.085.852.17.17.256.341.938,0A11.343,11.343,0,0,0,40.274,50.892Zm15.171-1.96a6.868,6.868,0,0,0,3.239,1.875c.341.085.511.085.767-.511.085-.17.085-.256-.426-.6A10.735,10.735,0,0,0,55.444,48.932Zm-8.352-5.54c-.256.682-.511,1.278-.682,1.7-.256.682-.6,1.278-.852,1.875a6.579,6.579,0,0,1,1.278-.17c.852-.085,1.7-.256,2.557-.256-.426-.511-.767-.938-.938-1.193C48.115,44.841,47.6,44.159,47.092,43.392ZM45.9,32.738c-.341.085-.6.085-.6.767A8.949,8.949,0,0,0,46.325,37a8.659,8.659,0,0,0,.17-3.835c-.17-.426-.256-.426-.6-.426Z\" transform=\"translate(-28.311 -21.752)\" fill=\"#6f256f\"><\/path><path id=\"Path_1012\" data-name=\"Path 1012\" d=\"M1404.235,4242.746v50.2h37.918v-38.123l-12.877-12.077Z\" transform=\"translate(-1404.234 -4247.746)\" fill=\"none\" stroke=\"#6f256f\" stroke-width=\"3\"><\/path><path id=\"Path_1013\" data-name=\"Path 1013\" d=\"M1417.091,4242.746v12.292h13.44\" transform=\"translate(-1392.057 -4248.397)\" fill=\"none\" stroke=\"#6f256f\" stroke-width=\"3\"><\/path><\/g><\/g><\/svg>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">For more information on the GTR governance<\/span>\n\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-2d0dd92 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"2d0dd92\" data-element_type=\"section\" data-e-type=\"section\" id=\"data\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-1f5714d\" data-id=\"1f5714d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-669e96a\" data-id=\"669e96a\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7a37d00 clamp_h2 elementor-widget elementor-widget-heading\" data-id=\"7a37d00\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">\u0414\u0410\u041d\u041d\u042b\u0415 \u0420\u0413\u0422<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fd3f6c8 clamp_p elementor-widget elementor-widget-text-editor\" data-id=\"fd3f6c8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"\">\u0420\u0413\u0422 \u0412\u0424\u0413 \u0440\u0430\u0437\u0440\u0430\u0431\u0430\u0442\u044b\u0432\u0430\u0435\u0442\u0441\u044f \u0432 \u0441\u043e\u0442\u0440\u0443\u0434\u043d\u0438\u0447\u0435\u0441\u0442\u0432\u0435 \u0441 \u041c\u0435\u0436\u0434\u0443\u043d\u0430\u0440\u043e\u0434\u043d\u044b\u043c \u043e\u0431\u0449\u0435\u0441\u0442\u0432\u043e\u043c \u0442\u0440\u043e\u043c\u0431\u043e\u0437\u0430 \u0438 \u0433\u0435\u043c\u043e\u0441\u0442\u0430\u0437\u0430 (ISTH), \u0415\u0432\u0440\u043e\u043f\u0435\u0439\u0441\u043a\u0438\u043c \u043a\u043e\u043d\u0441\u043e\u0440\u0446\u0438\u0443\u043c\u043e\u043c \u0433\u0435\u043c\u043e\u0444\u0438\u043b\u0438\u0438 (EHC), \u041d\u0430\u0446\u0438\u043e\u043d\u0430\u043b\u044c\u043d\u044b\u043c \u0444\u043e\u043d\u0434\u043e\u043c \u0433\u0435\u043c\u043e\u0444\u0438\u043b\u0438\u0438 \u0421\u0428\u0410 (NHF), \u0410\u043c\u0435\u0440\u0438\u043a\u0430\u043d\u0441\u043a\u043e\u0439 \u0441\u0435\u0442\u044c\u044e \u0442\u0440\u043e\u043c\u0431\u043e\u0437\u0430 \u0438 \u0433\u0435\u043c\u043e\u0441\u0442\u0430\u0437\u0430 (ATHN), \u0438\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u0442\u0435\u043b\u044c\u0441\u043a\u043e\u0439 \u0433\u0440\u0443\u043f\u043f\u043e\u0439 \u00abPROBE\u00bb (\u00ab\u041e\u0442\u0447\u0435\u0442\u044b \u043f\u0430\u0446\u0438\u0435\u043d\u0442\u043e\u0432 \u043e \u0440\u0435\u0437\u0443\u043b\u044c\u0442\u0430\u0442\u0430\u0445: \u0431\u0440\u0435\u043c\u044f \u0438 \u043e\u043f\u044b\u0442\u00bb \u0430\u043d\u0433\u043b. <em>Patient-Reported Outcomes Burdens and Experiences<\/em>) \u0438 \u044d\u043a\u0441\u043f\u0435\u0440\u0442\u0430\u043c\u0438 \u0432 \u043e\u0431\u043b\u0430\u0441\u0442\u0438 \u0433\u0435\u043d\u043d\u043e\u0439 \u0442\u0435\u0440\u0430\u043f\u0438\u0438. \u0420\u0413\u0422 \u0412\u0424\u0413 \u0443\u043f\u0440\u0430\u0432\u043b\u044f\u0435\u0442\u0441\u044f \u0420\u0443\u043a\u043e\u0432\u043e\u0434\u044f\u0449\u0438\u043c \u043a\u043e\u043c\u0438\u0442\u0435\u0442\u043e\u043c \u0420\u0413\u0422, \u0430 \u0434\u0430\u043d\u043d\u044b\u0435 \u0440\u0435\u0433\u0443\u043b\u0438\u0440\u0443\u044e\u0442\u0441\u044f \u041d\u0430\u0443\u0447\u043d\u043e-\u043a\u043e\u043d\u0441\u0443\u043b\u044c\u0442\u0430\u0442\u0438\u0432\u043d\u044b\u043c \u0441\u043e\u0432\u0435\u0442\u043e\u043c \u0420\u0413\u0422 \u0412\u0424\u0413, \u0441\u043e\u0441\u0442\u043e\u044f\u0449\u0438\u043c \u0438\u0437 \u0441\u043f\u0435\u0446\u0438\u0430\u043b\u0438\u0441\u0442\u043e\u0432 \u0437\u0434\u0440\u0430\u0432\u043e\u043e\u0445\u0440\u0430\u043d\u0435\u043d\u0438\u044f \u0438 \u043b\u044e\u0434\u0435\u0439 \u0441 \u0433\u0435\u043c\u043e\u0444\u0438\u043b\u0438\u0435\u0439.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5af8456 clamp_p elementor-widget elementor-widget-accordion\" data-id=\"5af8456\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"accordion.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-accordion\">\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-9531\" class=\"elementor-tab-title\" data-tab=\"1\" role=\"button\" aria-controls=\"elementor-tab-content-9531\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-right\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><i class=\"fas fa-chevron-down\"><\/i><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><i class=\"fas fa-chevron-up\"><\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">\u0420\u0413\u0422: \u041f\u0440\u043e\u0442\u043e\u043a\u043e\u043b \u0438 \u043e\u0441\u043d\u043e\u0432\u043d\u043e\u0439 \u043d\u0430\u0431\u043e\u0440 \u0434\u0430\u043d\u043d\u044b\u0445<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-9531\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"1\" role=\"region\" aria-labelledby=\"elementor-tab-title-9531\"><p class=\"\" style=\"margin-bottom: 0;\">\u0421 \u043a\u0440\u0430\u0442\u043a\u0438\u043c \u0438\u0437\u043b\u043e\u0436\u0435\u043d\u0438\u0435\u043c \u043f\u0440\u043e\u0442\u043e\u043a\u043e\u043b\u0430 \u0420\u0413\u0422 \u043c\u043e\u0436\u043d\u043e \u043e\u0437\u043d\u0430\u043a\u043e\u043c\u0438\u0442\u044c\u0441\u044f\u00a0<a href=\"https:\/\/wfh.org\/wp-content\/uploads\/2024\/03\/WFH-GTR-protocol-synopsis.pdf\" target=\"_blank\" rel=\"noopener\">\u0437\u0434\u0435\u0441\u044c<\/a>.<br class=\"\" \/>\u041d\u0430\u0431\u043e\u0440 \u043e\u0441\u043d\u043e\u0432\u043d\u044b\u0445 \u0434\u0430\u043d\u043d\u044b\u0445 \u0420\u0413\u0422 \u0431\u044b\u043b \u043e\u043f\u0443\u0431\u043b\u0438\u043a\u043e\u0432\u0430\u043d \u0432 \u0436\u0443\u0440\u043d\u0430\u043b\u0435 \u00ab<em>Journal of Thrombosis and Haemostasis<\/em>\u00bb \u0438 \u0434\u043e\u0441\u0442\u0443\u043f\u0435\u043d <a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/epdf\/10.1111\/jth.15023\" target=\"_blank\" rel=\"noreferrer noopener\">\u0437\u0434\u0435\u0441\u044c<\/a>.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-9532\" class=\"elementor-tab-title\" data-tab=\"2\" role=\"button\" aria-controls=\"elementor-tab-content-9532\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-right\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><i class=\"fas fa-chevron-down\"><\/i><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><i class=\"fas fa-chevron-up\"><\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">\u041a\u043e\u043d\u0444\u0438\u0434\u0435\u043d\u0446\u0438\u0430\u043b\u044c\u043d\u043e\u0441\u0442\u044c \u0438 \u0437\u0430\u0449\u0438\u0442\u0430 \u0434\u0430\u043d\u043d\u044b\u0445<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-9532\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"2\" role=\"region\" aria-labelledby=\"elementor-tab-title-9532\"><p class=\"\">Our database is housed in a secure data centre with appropriate physical, administrative and technical safeguards in place. These procedures are designed to protect information from misuse, unauthorized access, interference, alteration, loss and\/or disclosure, which meets or exceeds privacy and security regulation requirements in Canada, the U.S.A, and Europe. Data policy guidelines adhere to U.S.A, Canadian and European data privacy regulations. The WFH has appointed <a href=\"https:\/\/www.gdprep.org\/\" target=\"_blank\" rel=\"noopener\">GDPR Rep<\/a> as our representative in the E.U. and the U.K. to act as a point of contact for E.U. and U.K. authorities and any patient enrolled in the GTR in those regions.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-9533\" class=\"elementor-tab-title\" data-tab=\"3\" role=\"button\" aria-controls=\"elementor-tab-content-9533\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-right\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><i class=\"fas fa-chevron-down\"><\/i><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><i class=\"fas fa-chevron-up\"><\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">Data Governance<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-9533\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"3\" role=\"region\" aria-labelledby=\"elementor-tab-title-9533\"><p class=\"\">Data governance is vital to ensure the accuracy, consistency, and security of the data collected and managed in the GTR. It enables efficient data use and minimizes risks, while also ensuring the GTR provides valuable insights for research, policy-making, and clinical decision-making.<\/p>\n<p class=\"\">A comprehensive set of standard operating procedures (SOP) have been developed by the GTR Scientific Advisory Board to govern data use in the GTR, covering topics such as:<\/p>\n<ul style=\"margin-bottom: 1rem;\">\n<li>Data access, rights, and requests<\/li>\n<li>Communications, reports and publications<\/li>\n<li>Collection and processing of safety information<\/li>\n<li>Interpretation, evaluation and communication of safety data<\/li>\n<li>Data quality<\/li>\n<\/ul>\n<p class=\"\">These SOPs ensure the ethical, secure, and efficient management of data, supporting the GTR\u2019&#8217;s mission to assess the long-term safety, efficacy, and durability of gene therapy for hemophilia.<\/p>\n<p class=\"\">For more information on the SOPs, please contact <a href=\"mailto:gtr@wfh.org\">gtr@wfh.org<\/a>.<\/p>\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-b951722 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"b951722\" data-element_type=\"section\" data-e-type=\"section\" id=\"programs\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-20ee21f\" data-id=\"20ee21f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-d341629\" data-id=\"d341629\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-839b46e clamp_h2 elementor-widget elementor-widget-heading\" data-id=\"839b46e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">\u041f\u0420\u041e\u0413\u0420\u0410\u041c\u041c\u042b \u0420\u0413\u0422<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-4a0c635 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"4a0c635\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-2cdbd40\" data-id=\"2cdbd40\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3c5c40b elementor-widget elementor-widget-image\" data-id=\"3c5c40b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1200\" height=\"700\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/DAta-collection-WBDR-Updates-widget-HTC-funding-program-card.png\" class=\"attachment-full size-full wp-image-19002\" alt=\"A man wearing a stethoscope around his neck talks across a desk to a patient\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/DAta-collection-WBDR-Updates-widget-HTC-funding-program-card.png 1200w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/DAta-collection-WBDR-Updates-widget-HTC-funding-program-card-300x175.png 300w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/DAta-collection-WBDR-Updates-widget-HTC-funding-program-card-768x448.png 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-39abc83\" data-id=\"39abc83\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-062a62b elementor-widget elementor-widget-heading\" data-id=\"062a62b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">\u041f\u0440\u043e\u0433\u0440\u0430\u043c\u043c\u0430 \u043f\u043e \u043a\u0430\u0447\u0435\u0441\u0442\u0432\u0443 \u0434\u0430\u043d\u043d\u044b\u0445<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d4772b0 clamp_p elementor-widget elementor-widget-text-editor\" data-id=\"d4772b0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"\">The GTR includes a comprehensive data quality assurance (DQA) program, which is applied to all data entered in the registry. The DQA Program is informed by best practices in the field including the <a href=\"https:\/\/www.ema.europa.eu\/system\/files\/documents\/regulatory-procedural-guideline\/data-quality-framework-eu-medicines-regulation_en_1.pdf\" target=\"_blank\" rel=\"noopener\">European Medicines Agency\u2019s Data Quality Framework<\/a>. All data is evaluated on the following quality dimensions:<\/p>\r\n\r\n<ul style=\"margin-bottom: 1em;\">\r\n \t<li>Reliability<\/li>\r\n \t<li>Extensiveness<\/li>\r\n \t<li>Coherence<\/li>\r\n \t<li>Timeliness<\/li>\r\n \t<li>Relevance<\/li>\r\n<\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-5645ed6 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"5645ed6\" data-element_type=\"section\" data-e-type=\"section\" id=\"myGTR\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-6501ccb\" data-id=\"6501ccb\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-3fa3fa1\" data-id=\"3fa3fa1\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b1e347d clamp_h2 elementor-widget elementor-widget-heading\" data-id=\"b1e347d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">myGTR<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d3cabcb elementor-widget elementor-widget-text-editor\" data-id=\"d3cabcb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"clamp_p\">myGTR is a patient engagement tool of the WFH Gene Therapy Registry (GTR). myGTR is designed to collect patient-reported outcome data through an automated digital assistant. Patients will receive alerts via their preferred contact method, either by email or text message to access myGTR. myGTR is a web-based application and is not available in any app store.<\/p>\n<p class=\"clamp_p\">myGTR will allow patients to continue providing data on their health status; and health-related quality of life (HR-QOL) in a simple manner. At regular intervals (4 times during the first-year post-infusion, and 2 times per year thereafter ), the patient will be prompted to answer a few simple questions regarding their bleeds and treatment; and two of three different HR-QOL questionnaires, on a rotational basis (see <em>Diagram: myGTR<\/em>).<\/p>\n<p style=\"margin-bottom: .5em; color: #1f3f78;\"><strong>The HR-QOL questionnaires include:<\/strong><\/p>\n<ol class=\"clamp_p\">\n<li>PROBE (Patient Reported Outcomes Burdens, and Experiences): a questionnaire collecting information about quality of life and other areas important to health.<\/li>\n<li>coreHEM MHO (coreHEM Mental Health Outlook): an instrument to assess mental health outlook of a person with hemophilia who has received gene therapy.<\/li>\n<li>EQ-5D-5L (EuroQol 5 Dimensions 5 Levels): a short tool used to measure quality of life with five questions related to mobility, self-care, usual activities, pain\/discomfort, and anxiety\/depression.<\/li>\n<\/ol>\n<p class=\"clamp_p\" style=\"margin-top: 1em;\">Data from myGTR will complement clinical data collected by physicians through the WFH GTR. All data entered in myGTR will be stored in the WFH GTR database.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-abe8c82 elementor-widget elementor-widget-heading\" data-id=\"abe8c82\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Diagram: myGTR Questionnaire Cadence<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-aed74f0 elementor-widget elementor-widget-image\" data-id=\"aed74f0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t<figure class=\"wp-caption\">\n\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"1524\" height=\"306\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2024\/04\/mygtr-visual-EN.png\" class=\"attachment-full size-full wp-image-104492\" alt=\"A flowchart of the myGTR questionnaire cadence\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2024\/04\/mygtr-visual-EN.png 1524w, https:\/\/wfh.org\/wp-content\/uploads\/2024\/04\/mygtr-visual-EN-192x39.png 192w, https:\/\/wfh.org\/wp-content\/uploads\/2024\/04\/mygtr-visual-EN-768x154.png 768w\" sizes=\"(max-width: 1524px) 100vw, 1524px\" \/>\t\t\t\t\t\t\t\t\t\t\t<figcaption class=\"widget-image-caption wp-caption-text\">Frequency: Year 1 = quarterly pushouts (email or text message); Year 2 onwards = every 6 months<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-47316fa elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"47316fa\" data-element_type=\"section\" data-e-type=\"section\" id=\"support\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-2d0c8eb\" data-id=\"2d0c8eb\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-8a5fffc\" data-id=\"8a5fffc\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-08e59f5 clamp_h2 elementor-widget elementor-widget-heading\" data-id=\"08e59f5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">\u041f\u043e\u0434\u0434\u0435\u0440\u0436\u043a\u0430 \u0441\u043e\u043e\u0431\u0449\u0435\u0441\u0442\u0432\u0430 \u0420\u0413\u0422<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c208953 clamp_p elementor-widget elementor-widget-text-editor\" data-id=\"c208953\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"\">\u0414\u043b\u044f \u043f\u043e\u043b\u0443\u0447\u0435\u043d\u0438\u044f \u0434\u043e\u043f\u043e\u043b\u043d\u0438\u0442\u0435\u043b\u044c\u043d\u043e\u0439 \u0438\u043d\u0444\u043e\u0440\u043c\u0430\u0446\u0438\u0438 \u043e\u0431 \u0443\u0447\u0430\u0441\u0442\u0438\u0438 \u0432 \u0420\u0413\u0422, \u041b\u0441\u0413 \u0438 \u0426\u041b\u0413 \u043f\u0440\u0438\u0433\u043b\u0430\u0448\u0430\u044e\u0442\u0441\u044f \u043e\u0437\u043d\u0430\u043a\u043e\u043c\u0438\u0442\u044c\u0441\u044f \u0441 \u043f\u0440\u0438\u0432\u0435\u0434\u0435\u043d\u043d\u044b\u043c\u0438 \u043d\u0438\u0436\u0435 \u0440\u0443\u043a\u043e\u0432\u043e\u0434\u0441\u0442\u0432\u0430\u043c\u0438 \u043f\u043e\u043b\u044c\u0437\u043e\u0432\u0430\u0442\u0435\u043b\u044f:<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-63c14b3 elementor-widget elementor-widget-heading\" data-id=\"63c14b3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">\u0420\u0443\u043a\u043e\u0432\u043e\u0434\u0441\u0442\u0432\u0430 \u043f\u043e\u043b\u044c\u0437\u043e\u0432\u0430\u0442\u0435\u043b\u044f<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-067c231 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"067c231\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-extended\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-051cc30\" data-id=\"051cc30\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-aa8e675 elementor-widget elementor-widget-image\" data-id=\"aa8e675\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"1200\" height=\"675\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/02\/2212-img.jpg\" class=\"attachment-full size-full wp-image-59314\" alt=\"\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/02\/2212-img.jpg 1200w, https:\/\/wfh.org\/wp-content\/uploads\/2023\/02\/2212-img-192x108.jpg 192w, https:\/\/wfh.org\/wp-content\/uploads\/2023\/02\/2212-img-768x432.jpg 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2359891 elementor-widget elementor-widget-heading\" data-id=\"2359891\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">\u0420\u0443\u043a\u043e\u0432\u043e\u0434\u0441\u0442\u0432\u043e \u043f\u043e\u043b\u044c\u0437\u043e\u0432\u0430\u0442\u0435\u043b\u044f<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-48e14d8 elementor-widget elementor-widget-spacer\" data-id=\"48e14d8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6c69d00 clamp_p elementor-widget elementor-widget-text-editor\" data-id=\"6c69d00\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"\">\u041e\u0441\u043d\u043e\u0432\u044b \u0433\u0435\u043c\u043e\u0444\u0438\u043b\u0438\u0438, \u0433\u0435\u043d\u043d\u043e\u0439 \u0442\u0435\u0440\u0430\u043f\u0438\u0438 \u0438 \u0434\u043e\u043b\u0433\u043e\u0441\u0440\u043e\u0447\u043d\u043e\u0433\u043e \u0441\u0431\u043e\u0440\u0430 \u0434\u0430\u043d\u043d\u044b\u0445<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a7e7c70 elementor-widget elementor-widget-button\" data-id=\"a7e7c70\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/elearning.wfh.org\/resource\/wfh-gene-therapy-registry-basics-of-hemophilia-gene-therapy-and-long-term-data-collection\/\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-chevron-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">\u041f\u0440\u043e\u0441\u043c\u043e\u0442\u0440 \u043e\u043d\u043b\u0430\u0439\u043d<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-f89d1a6\" data-id=\"f89d1a6\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-d6ee491 elementor-widget elementor-widget-image\" data-id=\"d6ee491\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"675\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/02\/2213-img.jpg\" class=\"attachment-full size-full wp-image-59319\" alt=\"\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/02\/2213-img.jpg 1200w, https:\/\/wfh.org\/wp-content\/uploads\/2023\/02\/2213-img-192x108.jpg 192w, https:\/\/wfh.org\/wp-content\/uploads\/2023\/02\/2213-img-768x432.jpg 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1981006 elementor-widget elementor-widget-heading\" data-id=\"1981006\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">\u0420\u0443\u043a\u043e\u0432\u043e\u0434\u0441\u0442\u0432\u043e \u043f\u043e\u043b\u044c\u0437\u043e\u0432\u0430\u0442\u0435\u043b\u044f<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fb69c26 elementor-widget elementor-widget-spacer\" data-id=\"fb69c26\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-966f30e clamp_p elementor-widget elementor-widget-text-editor\" data-id=\"966f30e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"\">\u0426\u0435\u043d\u0442\u0440\u044b \u043b\u0435\u0447\u0435\u043d\u0438\u044f \u0433\u0435\u043c\u043e\u0444\u0438\u043b\u0438\u0438<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0fa2c4c elementor-widget elementor-widget-button\" data-id=\"0fa2c4c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/elearning.wfh.org\/resource\/wfh-gene-therapy-registry-user-guide-for-hemophilia-treatment-centres\/\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-chevron-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">\u041f\u0440\u043e\u0441\u043c\u043e\u0442\u0440 \u043e\u043d\u043b\u0430\u0439\u043d<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-3c31d14\" data-id=\"3c31d14\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b47d8d0 elementor-widget elementor-widget-image\" data-id=\"b47d8d0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"675\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/02\/2214-img.jpg\" class=\"attachment-full size-full wp-image-59324\" alt=\"\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/02\/2214-img.jpg 1200w, https:\/\/wfh.org\/wp-content\/uploads\/2023\/02\/2214-img-192x108.jpg 192w, https:\/\/wfh.org\/wp-content\/uploads\/2023\/02\/2214-img-768x432.jpg 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fb4e52e elementor-widget elementor-widget-heading\" data-id=\"fb4e52e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">\u0420\u0443\u043a\u043e\u0432\u043e\u0434\u0441\u0442\u0432\u043e \u043f\u043e\u043b\u044c\u0437\u043e\u0432\u0430\u0442\u0435\u043b\u044f<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6f86ea4 elementor-widget elementor-widget-spacer\" data-id=\"6f86ea4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-113e810 clamp_p elementor-widget elementor-widget-text-editor\" data-id=\"113e810\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"\">\u041b\u0438\u0446\u0430 \u0441 \u0433\u0435\u043c\u043e\u0444\u0438\u043b\u0438\u0435\u0439<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d559215 elementor-widget elementor-widget-button\" data-id=\"d559215\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/elearning.wfh.org\/resource\/wfh-gene-therapy-registry-user-guide-for-people-with-hemophilia\/\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-chevron-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">\u041f\u0440\u043e\u0441\u043c\u043e\u0442\u0440 \u043e\u043d\u043b\u0430\u0439\u043d<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-ef7b188 elementor-widget elementor-widget-text-editor\" data-id=\"ef7b188\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>\u0414\u043b\u044f \u043f\u043e\u043b\u0443\u0447\u0435\u043d\u0438\u044f \u0434\u043e\u043f\u043e\u043b\u043d\u0438\u0442\u0435\u043b\u044c\u043d\u043e\u0439 \u0438\u043d\u0444\u043e\u0440\u043c\u0430\u0446\u0438\u0438 \u043e \u0433\u0435\u043d\u043d\u043e\u0439 \u0442\u0435\u0440\u0430\u043f\u0438\u0438, \u043f\u043e\u0436\u0430\u043b\u0443\u0439\u0441\u0442\u0430, \u043f\u043e\u0441\u0435\u0442\u0438\u0442\u0435 \u0426\u0435\u043d\u0442\u0440 <a href=\"https:\/\/elearning.wfh.org\/ru\/%d1%86%d0%b5%d0%bd%d1%82%d1%80%d1%8b-%d1%8d%d0%bb%d0%b5%d0%ba%d1%82%d1%80%d0%be%d0%bd%d0%bd%d0%be%d0%b3%d0%be-%d0%be%d0%b1%d1%83%d1%87%d0%b5%d0%bd%d0%b8%d1%8f\/%d0%b3%d0%b5%d0%bd%d0%bd%d0%b0%d1%8f-%d1%82%d0%b5%d1%80%d0%b0%d0%bf%d0%b8%d1%8f\/\" target=\"_blank\" rel=\"noopener\">\u044d\u043b\u0435\u043a\u0442\u0440\u043e\u043d\u043d\u043e\u0433\u043e \u043e\u0431\u0443\u0447\u0435\u043d\u0438\u044f \u0412\u0424\u0413 \u043f\u043e \u0433\u0435\u043d\u043d\u043e\u0439 \u0442\u0435\u0440\u0430\u043f\u0438\u0438<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-5eb2b1e elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"5eb2b1e\" data-element_type=\"section\" data-e-type=\"section\" id=\"publications\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-0f51782\" data-id=\"0f51782\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-be3ba1d\" data-id=\"be3ba1d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-91988c4 clamp_h2 elementor-widget elementor-widget-heading\" data-id=\"91988c4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">\u041f\u0423\u0411\u041b\u0418\u041a\u0410\u0426\u0418\u0418<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4d817cc clamp_p elementor-widget elementor-widget-text-editor\" data-id=\"4d817cc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"\">\u0421 \u043f\u0443\u0431\u043b\u0438\u043a\u0430\u0446\u0438\u044f\u043c\u0438, \u043f\u043e\u0434\u0433\u043e\u0442\u043e\u0432\u043b\u0435\u043d\u043d\u044b\u043c\u0438 \u043e\u0440\u0433\u043a\u043e\u043c\u0438\u0442\u0435\u0442\u043e\u043c \u0420\u0413\u0422, \u043c\u043e\u0436\u043d\u043e \u043e\u0437\u043d\u0430\u043a\u043e\u043c\u0438\u0442\u044c\u0441\u044f \u0437\u0434\u0435\u0441\u044c:<\/p>\r\n\r\n<ul>\r\n \t<li>Konkle, B. A., Coffin, D., Pierce, G. F., Clark, C., George, L., Iorio, A., Mahlangu, J., Naccache, M., O\u2019Mahony, B., Peyvandi, F., Pipe, S., Quartel, A., Sawyer, E. K., Skinner, M. W., Tortella, B., Watson, C., Winburn, I., &amp; Members of the WFH Gene Therapy Registry Steering Committee. (2020). World Federation of Hemophilia Gene Therapy Registry.\u00a0<em>Haemophilia, 26<\/em>(4), 555-741, e151-e222.\u00a0<a href=\"https:\/\/doi.org\/10.1111\/hae.14015\" target=\"_blank\" rel=\"noopener\">https:\/\/doi.org\/10.1111\/hae.14015<\/a><\/li>\r\n \t<li>Konkle, B., Pierce, G., Coffin, D., Naccache, M., Clark, R. C., George, L., Iorio, A., O&#8217;Mahony, B., Pipe, S., Skinner, M., Watson, C., Peyvandi, F., Mahlangu, J., for the ISTH Subcommittee on Factor VIII, Factor IX, Rare Bleeding Disorders. (2020). Core data set on safety, efficacy, and durability of hemophilia gene therapy for a global registry: Communication from the SSC of the ISTH.\u00a0<em>Journal of Thrombosis and Haemostasis, 18<\/em>(11), 2-3128. <a href=\"https:\/\/doi.org\/10.1111\/jth.15023\" target=\"_blank\" rel=\"noopener\">https:\/\/doi.org\/10.1111\/jth.15023<\/a><\/li>\r\n \t<li>Konkle, B. A., Peyvandi, F., Coffin, D., Naccache, M., Youttananukorn, T., Pierce, G. F., &amp; the WFH Gene Therapy Registry Scientific Advisory Board. (2024). Landmark endorsement of a global registry: The European Medicines Agency (EMA) Committee for Medicinal Products for Human Use (CHMP), publicly endorses World Federation of Hemophilia Gene Therapy Registry as global standard.\u00a0<em>Haemophilia, 30<\/em>(1), 1-252. <a href=\"https:\/\/doi.org\/10.1111\/hae.14912\" target=\"_blank\" rel=\"noopener\">https:\/\/doi.org\/10.1111\/hae.14912<\/a><\/li>\r\n \t<li>Miesbach, W., Konkle, B., Chowdary, P., Kaczmarek, R., Leebeek, F., Mahlangu, J., Makris, M., Pipe, S. W., Srivastava, A., Voorberg, J., Pierce, G. F., &amp; Peyvandi, F. (2024).<br class=\"\" \/>Recommendations for a minimum data set for monitoring gene therapy in hemophilia: Communication from the ISTH SSC Working Group on Gene Therapy. <em>Journal of Thrombosis and Haemostasis, 22<\/em>(5), 1510-1515. <a href=\"https:\/\/doi.org\/10.1016\/j.jtha.2023.12.039\" target=\"_blank\" rel=\"noopener\">https:\/\/doi.org\/10.1016\/j.jtha.2023.12.039<\/a><\/li>\r\n<\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-9de093f elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"9de093f\" data-element_type=\"section\" data-e-type=\"section\" id=\"contact-us\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-8f5914d\" data-id=\"8f5914d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-7782f0c\" data-id=\"7782f0c\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-9ad61cc clamp_h2 elementor-widget elementor-widget-heading\" data-id=\"9ad61cc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">\u041d\u0410\u0428\u0418 \u041a\u041e\u041d\u0422\u0410\u041a\u0422\u042b<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2957838 clamp_p elementor-widget elementor-widget-text-editor\" data-id=\"2957838\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"\">\u041f\u043e\u0436\u0430\u043b\u0443\u0439\u0441\u0442\u0430, \u0441\u0432\u044f\u0436\u0438\u0442\u0435\u0441\u044c \u0441 \u043a\u043e\u043c\u0430\u043d\u0434\u043e\u0439 \u0420\u0413\u0422 \u043f\u043e \u0430\u0434\u0440\u0435\u0441\u0443: <a href=\"mailto:gtr@wfh.org\">gtr@wfh.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-e8d487b elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"e8d487b\" data-element_type=\"section\" data-e-type=\"section\" id=\"acknowledgement\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-7fae391\" data-id=\"7fae391\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-aa3fec7\" data-id=\"aa3fec7\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6281bd6 clamp_h2 elementor-widget elementor-widget-heading\" data-id=\"6281bd6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">\u0421\u041f\u0410\u0421\u0418\u0411\u041e!<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2681604 elementor-widget elementor-widget-spacer\" data-id=\"2681604\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-64faef3 elementor-widget elementor-widget-heading\" data-id=\"64faef3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">\u0420\u0410\u0417\u0420\u0410\u0411\u041e\u0422\u041a\u0410 \u0413\u0422\u041f \u041f\u041e\u0414\u0414\u0415\u0420\u0416\u0418\u0412\u0410\u0415\u0422\u0421\u042f \u0424\u0418\u041d\u0410\u041d\u0421\u0418\u0420\u041e\u0412\u0410\u041d\u0418\u0415\u041c \u041e\u0422:<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d278feb elementor-widget elementor-widget-text-editor\" data-id=\"d278feb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>\t\t<div data-elementor-type=\"section\" data-elementor-id=\"32990\" class=\"elementor elementor-32990 elementor-32852 elementor-32852\" data-elementor-post-type=\"elementor_library\">\n\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-3aff1d1f elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"3aff1d1f\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-fa77b88\" data-id=\"fa77b88\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7ddbf341 elementor-widget elementor-widget-heading\" data-id=\"7ddbf341\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h5 class=\"elementor-heading-title elementor-size-default\">\u041f\u0410\u0420\u0422\u041d\u0415\u0420\u042b-\u0421\u0422\u0420\u0410\u0422\u0415\u0413\u0418<\/h5>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-52cd40ab elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"52cd40ab\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e6314a3 gallery-spacing-custom elementor-widget elementor-widget-image-gallery\" data-id=\"e6314a3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-gallery.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-image-gallery\">\n\t\t\t<div id='gallery-1' class='gallery galleryid-60329 gallery-columns-2 gallery-size-full'><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"770\" height=\"350\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/03\/biomarin-transparent.png\" class=\"attachment-full size-full\" alt=\"Biomarin logo\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/03\/biomarin-transparent.png 770w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/03\/biomarin-transparent-192x87.png 192w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/03\/biomarin-transparent-768x349.png 768w\" sizes=\"(max-width: 770px) 100vw, 770px\" \/>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"770\" height=\"350\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2024\/01\/CSL-Behring.png\" 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class=\"elementor-element elementor-element-eceb81d elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"eceb81d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cf25734 elementor-widget elementor-widget-image\" data-id=\"cf25734\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"293\" height=\"74\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2024\/06\/GDPRep-logo.png\" class=\"attachment-large size-large wp-image-113468\" alt=\"GDPR Rep\" 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