{"id":92766,"date":"2023-11-09T13:42:12","date_gmt":"2023-11-09T18:42:12","guid":{"rendered":"https:\/\/wfh.org\/article\/les-resultats-du-sondage-mondial-annuel-2022-ont-ete-publies\/"},"modified":"2024-04-18T08:59:16","modified_gmt":"2024-04-18T12:59:16","slug":"les-resultats-du-sondage-mondial-annuel-2022-ont-ete-publies","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/les-resultats-du-sondage-mondial-annuel-2022-ont-ete-publies\/","title":{"rendered":"Les r\u00e9sultats du Sondage Mondial annuel 2022 ont \u00e9t\u00e9 publi\u00e9s !"},"content":{"rendered":"\t\t
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Le Sondage mondial annuel est une enqu\u00eate transversale men\u00e9e chaque ann\u00e9e aupr\u00e8s des organisations nationales membres (ONM) de la FMH. Elle comprend des donn\u00e9es d\u00e9mographiques et des donn\u00e9es relatives au traitement des personnes atteintes d\u2019h\u00e9mophilie, de la maladie de Willebrand (MW), de d\u00e9ficits rares en facteurs et de troubles h\u00e9r\u00e9ditaires des plaquettes. En 2022, le Sondage mondial annuel<\/a> a re\u00e7u des r\u00e9ponses provenant de 125 pays, dont trois nouveaux \u2013 Fidji, la Gambie et la Libye \u2013 qui ont soumis leurs donn\u00e9es pour la premi\u00e8re fois. Cette ann\u00e9e, les donn\u00e9es montrent une augmentation de 6\u00a0% de l\u2019identification mondiale des personnes atteintes d\u2019h\u00e9mophilie et de la MW, et une autre de 5\u00a0% chez celles atteintes d\u2019autres troubles de la coagulation. Ces avanc\u00e9es encourageantes montrent que des progr\u00e8s sont en cours dans l\u2019identification et le diagnostic des personnes atteintes d\u2019un trouble de la coagulation.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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En 2022, nous avons \u00e9largi nos efforts de collecte de donn\u00e9es pour y inclure des informations suppl\u00e9mentaires au sujet des femmes et filles atteintes d\u2019un trouble de la coagulation. Le Rapport 2022 pr\u00e9sente une nouvelle section d\u00e9di\u00e9e \u00e0 l\u2019identification et au diagnostic des troubles de la coagulation chez les patientes, qui met en lumi\u00e8re l\u2019utilisation de produits th\u00e9rapeutiques pour la MW dans cette cat\u00e9gorie de population. Cet \u00e9largissement de la prise en compte des femmes et filles atteintes d\u2019un trouble de la coagulation est une \u00e9tape fondamentale pour am\u00e9liorer les soins qu\u2019elles re\u00e7oivent.<\/p>\n

La FMH tient \u00e0 exprimer sa reconnaissance \u00e0 toutes les ONM pour leur soutien et leur participation \u00e0 nos initiatives de collecte de donn\u00e9es.<\/p>\n

Pour lire le Rapport sur le Sondage mondial annuel 2022, cliquez ici. Des tableaux et graphiques suppl\u00e9mentaires sont disponibles en ligne ici<\/a>. Pour en savoir plus sur le Sondage mondial annuel, cliquez ici<\/a> ou bien contactez-nous \u00e0 l\u2019adresse globalsurvey@wfh.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

La collecte de donn\u00e9es gr\u00e2ce au Sondage mondial annuel (SMA) est un \u00e9l\u00e9ment essentiel dans la r\u00e9alisation de nos objectifs strat\u00e9giques. Aujourd\u2019hui, nous avons le plaisir d\u2019annoncer la publication de la derni\u00e8re \u00e9dition du Rapport sur le Sondage mondial annuel pour l\u2019ann\u00e9e 2022, qui met en lumi\u00e8re les grands progr\u00e8s dans les soins aux personnes atteintes d\u2019un trouble de la coagulation. Les donn\u00e9es du SMA peuvent \u00eatre utilis\u00e9es par les organisations nationales membres (ONM) et d\u2019autres parties prenantes pour mener des actions efficaces de plaidoyer aupr\u00e8s des gouvernements pour am\u00e9liorer les soins aux communaut\u00e9s des troubles de la coagulation.<\/p>\n","protected":false},"author":13,"featured_media":92618,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[338,205,363],"tags":[],"search-category":[85],"class_list":["post-92766","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-3-fr","category-recherche-et-collecte-de-donnees","category-sondage-mondial-annuel-sma","search-category-article"],"yoast_head":"\nLes r\u00e9sultats du Sondage Mondial annuel 2022 ont \u00e9t\u00e9 publi\u00e9s ! | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/les-resultats-du-sondage-mondial-annuel-2022-ont-ete-publies\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Les r\u00e9sultats du Sondage Mondial annuel 2022 ont \u00e9t\u00e9 publi\u00e9s !\" \/>\n<meta property=\"og:description\" content=\"La collecte de donn\u00e9es gr\u00e2ce au Sondage mondial annuel (SMA) est un \u00e9l\u00e9ment essentiel dans la r\u00e9alisation de nos objectifs strat\u00e9giques. 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