{"id":88401,"date":"2023-09-26T16:36:49","date_gmt":"2023-09-26T20:36:49","guid":{"rendered":"https:\/\/wfh.org\/article\/la-conference-sur-les-troubles-de-la-coagulation-2023-celebre-plusieurs-grands-evenements\/"},"modified":"2024-04-08T08:24:38","modified_gmt":"2024-04-08T12:24:38","slug":"la-conference-sur-les-troubles-de-la-coagulation-2023-celebre-plusieurs-grands-evenements","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/la-conference-sur-les-troubles-de-la-coagulation-2023-celebre-plusieurs-grands-evenements\/","title":{"rendered":"La Conf\u00e9rence sur les troubles de la coagulation 2023 c\u00e9l\u00e8bre plusieurs grands \u00e9v\u00e9nements"},"content":{"rendered":"\t\t
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En tant qu\u2019organisation nationale membre fondatrice de la F\u00e9d\u00e9ration de l\u2019h\u00e9mophilie (FMH) \u2014 et nous aussi, nous f\u00eatons un anniversaire cette ann\u00e9e\u2026 nos 60 ans !<\/a> \u2014, la NBDF d\u00e9fend depuis longtemps un acc\u00e8s \u00e9quitable aux soins. R\u00e9cemment, en 2016, notre organisation a lanc\u00e9 le Chapter Challenge, un d\u00e9fi annuel qui encourage la passion et l\u2019action dans les diff\u00e9rentes sections des \u00c9tats-Unis, par solidarit\u00e9 avec la communaut\u00e9 mondiale des troubles de la coagulation.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Eric Stolte, pr\u00e9sident du conseil d\u2019administration de la FMH \u00c9tats-Unis, en compagnie de plusieurs membres de section ayant relev\u00e9 le d\u00e9fi.<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Cette ann\u00e9e, la BDC a \u00e9t\u00e9 l\u2019occasion de f\u00eater un accomplissement remarquable : le total des fonds collect\u00e9s \u00e0 ce jour gr\u00e2ce au Chapter Challenge a d\u00e9sormais surpass\u00e9 le million de dollars. Eric Stolte, pr\u00e9sident du conseil d\u2019administration de la FMH \u00c9tats-Unis, et Alain Baumann, pr\u00e9sident et directeur de la FMH, \u00e9taient pr\u00e9sents pour f\u00e9liciter personnellement les diff\u00e9rentes sections pour leurs efforts. L\u2019assistance, compos\u00e9e des responsables des sections participantes, a aussi pu \u00e9couter le Dr Assad Haffar, directeur m\u00e9dical et de l\u2019aide humanitaire de la FMH, parler de ce qu\u2019ont permis d\u2019accomplir ces contributions\u00a0: un meilleur acc\u00e8s aux traitements, de meilleurs soins pour les patient\u00b7es et de meilleurs programmes d\u2019\u00e9ducation.<\/p>\n

Hemophilia of Georgia<\/a>, qui f\u00eate ses 50 ans cette ann\u00e9e, a jou\u00e9 un grand r\u00f4le dans le succ\u00e8s du Chapter Challenge gr\u00e2ce \u00e0 son g\u00e9n\u00e9reux soutien au d\u00e9but de l\u2019initiative, qui a permis de motiver les sections de tout le pays \u00e0 s\u2019y investir. La profession de foi de l\u2019association, \u00ab\u00a0Hemophilia of Georgia existe afin que les personnes atteintes d\u2019un trouble de la coagulation puissent vivre de fa\u00e7on aussi normale et productive que possible\u00a0\u00bb, ne rend pas enti\u00e8rement compte de son impact profond ni de son immense pr\u00e9sence internationale.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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De gauche \u00e0 droite : Eric Stolte, pr\u00e9sident du conseil d\u2019administration de la FMH \u00c9tats-Unis ; Edith Rosato, pr\u00e9sidente et directrice de Hemophilia of Georgia et membre du conseil d\u2019administration de la FMH \u00c9tats-Unis ; Alain Baumann, pr\u00e9sident et directeur de la FMH. <\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Hemophilia of Georgia reconna\u00eet le travail essentiel qu\u2019effectue la FMH pour transformer la vie des personnes atteintes d\u2019un trouble de la coagulation dans le monde entier. Nous esp\u00e9rons qu\u2019en participant au Chapter Challenge, toutes les sections pourront soutenir la v\u00e9ritable mission humanitaire qu\u2019est la r\u00e9alisation de l\u2019acc\u00e8s aux soins pour tous. Quel meilleur moyen de montrer notre solidarit\u00e9 en tant que communaut\u00e9 des troubles de la coagulation qu\u2019en aidant des personnes d\u00e9favoris\u00e9es dans des pays en d\u00e9veloppement ? Les mots du grand artiste n\u00e9erlandais Vincent Van Gogh nous rappellent que \u201cles grandes choses sont faites d\u2019une s\u00e9rie de petites choses mises ensembles\u201d. Nos efforts collectifs pour soutenir le Chapter Challenge doit \u00eatre une fondation qui permettra de changer la vie des personnes atteintes d\u2019un trouble de la coagulation sur toute la plan\u00e8te.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014 Edith Rosato, pr\u00e9sidente et directrice de Hemophilia of Georgia<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Au-del\u00e0 de son soutien au Chapter Challenge, Hemophilia of Georgia propose un soutien financier cons\u00e9quent via la FMH Etats-Unis<\/a> pour aider la communaut\u00e9 mondiale des troubles de la coagulation. Elle a soutenu des initiatives qui vont bien au-del\u00e0 de ses fronti\u00e8res et se pr\u00e9occupent des in\u00e9galit\u00e9s mondiales de sant\u00e9\u00a0: soutien au Programme d\u2019aide humanitaire de la FMH<\/a>, lancement r\u00e9cent de l\u2019Initiative pour les femmes et les filles atteintes d\u2019un trouble de la coagulation<\/a>, r\u00f4le cl\u00e9 dans la cr\u00e9ation par la FMH d\u2019une nouvelle g\u00e9n\u00e9ration de militant\u00b7es gr\u00e2ce \u00e0 des programmes tels que la formation mondiale pour les jeunes dirigeant\u00b7es. L\u2019engagement d\u2019Hemophilia of Georgia en faveur de l\u2019\u00e9quit\u00e9 mondiale en mati\u00e8re de sant\u00e9, ainsi que son aide active \u00e0 la recherche de nouveaux traitements, est tout \u00e0 fait extraordinaire.<\/p>\n

Les fonds collect\u00e9s pour la FMH \u00c9tats-Unis gr\u00e2ce au Chapter Challenge serviront \u00e0 faire progresser la vision de la FMH du Traitement pour tous. Pour faire un don \u00e0 la FMH \u00c9tats-Unis, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

De grandes r\u00e9ussites ont \u00e9t\u00e9 f\u00eat\u00e9es \u00e0 la Bleeding Disorders Conference (BDC, Conf\u00e9rence sur les troubles de la coagulation) annuelle, qui a eu lieu en ao\u00fbt \u00e0 National Harbor, dans le Maryland (\u00c9tats-Unis). La National Hemophilia Foundation (NHF) et la BDC ont f\u00eat\u00e9 leurs 75 ans d\u2019existence, et la NHF a annonc\u00e9 publiquement l\u2019\u00e9largissement de sa mission et l\u2019adoption d\u2019un nouveau nom : la National Bleeding Disorders Foundation (NBDF, Fondation nationale pour les troubles de la coagulation). <\/p>\n","protected":false},"author":13,"featured_media":71296,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[180],"tags":[],"search-category":[85],"class_list":["post-88401","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-philanthropie","search-category-article"],"yoast_head":"\nLa Conf\u00e9rence sur les troubles de la coagulation 2023 c\u00e9l\u00e8bre plusieurs grands \u00e9v\u00e9nements | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/la-conference-sur-les-troubles-de-la-coagulation-2023-celebre-plusieurs-grands-evenements\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La Conf\u00e9rence sur les troubles de la coagulation 2023 c\u00e9l\u00e8bre plusieurs grands \u00e9v\u00e9nements\" \/>\n<meta property=\"og:description\" content=\"De grandes r\u00e9ussites ont \u00e9t\u00e9 f\u00eat\u00e9es \u00e0 la Bleeding Disorders Conference (BDC, Conf\u00e9rence sur les troubles de la coagulation) annuelle, qui a eu lieu en ao\u00fbt \u00e0 National Harbor, dans le Maryland (\u00c9tats-Unis). La National Hemophilia Foundation (NHF) et la BDC ont f\u00eat\u00e9 leurs 75 ans d\u2019existence, et la NHF a annonc\u00e9 publiquement l\u2019\u00e9largissement de sa mission et l\u2019adoption d\u2019un nouveau nom : la National Bleeding Disorders Foundation (NBDF, Fondation nationale pour les troubles de la coagulation).\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/la-conference-sur-les-troubles-de-la-coagulation-2023-celebre-plusieurs-grands-evenements\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2023-09-26T20:36:49+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-08T12:24:38+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/05\/CCS-wrapup-image.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"553\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-conference-sur-les-troubles-de-la-coagulation-2023-celebre-plusieurs-grands-evenements\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-conference-sur-les-troubles-de-la-coagulation-2023-celebre-plusieurs-grands-evenements\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"La Conf\u00e9rence sur les troubles de la coagulation 2023 c\u00e9l\u00e8bre plusieurs grands \u00e9v\u00e9nements\",\"datePublished\":\"2023-09-26T20:36:49+00:00\",\"dateModified\":\"2024-04-08T12:24:38+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-conference-sur-les-troubles-de-la-coagulation-2023-celebre-plusieurs-grands-evenements\/\"},\"wordCount\":735,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-conference-sur-les-troubles-de-la-coagulation-2023-celebre-plusieurs-grands-evenements\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/05\/CCS-wrapup-image.jpg\",\"articleSection\":[\"Philanthropie\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-conference-sur-les-troubles-de-la-coagulation-2023-celebre-plusieurs-grands-evenements\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/la-conference-sur-les-troubles-de-la-coagulation-2023-celebre-plusieurs-grands-evenements\/\",\"name\":\"La Conf\u00e9rence sur les troubles de la coagulation 2023 c\u00e9l\u00e8bre plusieurs grands \u00e9v\u00e9nements | FMH - 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