{"id":80356,"date":"2023-08-02T09:00:01","date_gmt":"2023-08-02T13:00:01","guid":{"rendered":"https:\/\/wfh.org\/?p=80356"},"modified":"2024-04-08T08:36:20","modified_gmt":"2024-04-08T12:36:20","slug":"loutil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie-est-desormais-disponible","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie-est-desormais-disponible\/","title":{"rendered":"L\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH pour la prise en charge de l\u2019h\u00e9mophilie est d\u00e9sormais disponible !"},"content":{"rendered":"\t\t
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L\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH<\/a> fournit un cadre pour guider les personnes atteintes d\u2019h\u00e9mophilie dans le processus de r\u00e9flexion vis-\u00e0-vis des objectifs et des pr\u00e9f\u00e9rences en mati\u00e8re de traitement, fournit un \u00e9clairage \u00e9quilibr\u00e9 et fond\u00e9 sur des \u00e9l\u00e9ments probants concernant les r\u00e9sultats attendus par cat\u00e9gorie de traitement, et aide les personnes atteintes d\u2019h\u00e9mophilie \u00e0 naviguer dans un paysage th\u00e9rapeutique encore complexe aujourd\u2019hui. Cet outil est actuellement disponible en anglais, et des versions espagnole et fran\u00e7aise suivront prochainement\u00a0; d\u2019autres langues seront ajout\u00e9es au fur et \u00e0 mesure. L\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH est un outil \u00ab\u00a0vivant\u00a0\u00bb\u00a0: les donn\u00e9es et les informations qu\u2019il contient seront mises \u00e0 jour r\u00e9guli\u00e8rement.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tCliquez ici pour acc\u00e9der \u00e0 l\u2019Outil de prise de d\u00e9cision partag\u00e9e de la FMH<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Pendant une p\u00e9riode de trois mois, du 1er<\/sup> ao\u00fbt au 1er<\/sup> novembre 2023, le public pourra proposer ses commentaires. Nous vous encourageons \u00e0 participer \u00e0 ce processus essentiel en r\u00e9pondant \u00e0 un sondage au sujet de cet outil de la FMH. Prenez quelques instants pour y r\u00e9fl\u00e9chir et dites-nous ce que vous en pensez\u00a0!<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t Donnez-nous votre avis<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Pour en savoir plus sur l\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH, veuillez nous contacter \u00e0 l\u2019adresse suivante : sdm@wfh.org<\/a>.<\/em><\/p>\n

L\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH b\u00e9n\u00e9ficie d\u2019une subvention p\u00e9dagogique financ\u00e9e par BioMarin Pharmaceutical Inc., CSL Behring, Novo Nordisk, Pfizer et Spark Therapeutics.<\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) a le grand plaisir d\u2019annoncer le lancement de l\u2019Outil de prise de d\u00e9cision partag\u00e9e de la FMH pour la prise en charge de l\u2019h\u00e9mophilie ! La prise de d\u00e9cision partag\u00e9e est un processus par lequel clinicien\u00b7nes et patient\u00b7es travaillent ensemble pour prendre des d\u00e9cisions th\u00e9rapeutiques bas\u00e9es sur des \u00e9l\u00e9ments probants cliniques, qui mettent en balance les risques et les r\u00e9sultats attendus en tenant compte des pr\u00e9f\u00e9rences et des valeurs du ou de la patiente. La prise de d\u00e9cision partag\u00e9e aide les patient\u00b7es \u00e0 \u00eatre pr\u00eat\u00b7es au moment de prendre une d\u00e9cision. L\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH est un syst\u00e8me interactif d\u2019aide \u00e0 la d\u00e9cision con\u00e7u pour faciliter les discussions sur les options th\u00e9rapeutiques, entre les personnes atteintes d\u2019h\u00e9mophilie A ou B et\/ou les aidant\u00b7es et leur \u00e9quipe soignante, et ce afin d\u2019aboutir \u00e0 une prise de d\u00e9cision \u00e9clair\u00e9e.<\/p>\n","protected":false},"author":13,"featured_media":49859,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[114,338],"tags":[],"search-category":[85],"class_list":["post-80356","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-education-fr","category-featured-3-fr","search-category-article"],"yoast_head":"\nL\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH pour la prise en charge de l\u2019h\u00e9mophilie est d\u00e9sormais disponible ! | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie-est-desormais-disponible\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"L\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH pour la prise en charge de l\u2019h\u00e9mophilie est d\u00e9sormais disponible !\" \/>\n<meta property=\"og:description\" content=\"La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) a le grand plaisir d\u2019annoncer le lancement de l\u2019Outil de prise de d\u00e9cision partag\u00e9e de la FMH pour la prise en charge de l\u2019h\u00e9mophilie ! La prise de d\u00e9cision partag\u00e9e est un processus par lequel clinicien\u00b7nes et patient\u00b7es travaillent ensemble pour prendre des d\u00e9cisions th\u00e9rapeutiques bas\u00e9es sur des \u00e9l\u00e9ments probants cliniques, qui mettent en balance les risques et les r\u00e9sultats attendus en tenant compte des pr\u00e9f\u00e9rences et des valeurs du ou de la patiente. La prise de d\u00e9cision partag\u00e9e aide les patient\u00b7es \u00e0 \u00eatre pr\u00eat\u00b7es au moment de prendre une d\u00e9cision. L\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH est un syst\u00e8me interactif d\u2019aide \u00e0 la d\u00e9cision con\u00e7u pour faciliter les discussions sur les options th\u00e9rapeutiques, entre les personnes atteintes d\u2019h\u00e9mophilie A ou B et\/ou les aidant\u00b7es et leur \u00e9quipe soignante, et ce afin d\u2019aboutir \u00e0 une prise de d\u00e9cision \u00e9clair\u00e9e.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie-est-desormais-disponible\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2023-08-02T13:00:01+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-08T12:36:20+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/11\/Stock-header-13.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie-est-desormais-disponible\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie-est-desormais-disponible\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"L\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH pour la prise en charge de l\u2019h\u00e9mophilie est d\u00e9sormais disponible !\",\"datePublished\":\"2023-08-02T13:00:01+00:00\",\"dateModified\":\"2024-04-08T12:36:20+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie-est-desormais-disponible\/\"},\"wordCount\":299,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie-est-desormais-disponible\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/11\/Stock-header-13.jpg\",\"articleSection\":[\"\u00c9ducation\",\"Featured 3 - FR\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie-est-desormais-disponible\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie-est-desormais-disponible\/\",\"name\":\"L\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH pour la prise en charge de l\u2019h\u00e9mophilie est d\u00e9sormais disponible ! 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| FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie-est-desormais-disponible\/","og_locale":"fr_FR","og_type":"article","og_title":"L\u2019outil de prise de d\u00e9cision partag\u00e9e de la FMH pour la prise en charge de l\u2019h\u00e9mophilie est d\u00e9sormais disponible !","og_description":"La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) a le grand plaisir d\u2019annoncer le lancement de l\u2019Outil de prise de d\u00e9cision partag\u00e9e de la FMH pour la prise en charge de l\u2019h\u00e9mophilie ! La prise de d\u00e9cision partag\u00e9e est un processus par lequel clinicien\u00b7nes et patient\u00b7es travaillent ensemble pour prendre des d\u00e9cisions th\u00e9rapeutiques bas\u00e9es sur des \u00e9l\u00e9ments probants cliniques, qui mettent en balance les risques et les r\u00e9sultats attendus en tenant compte des pr\u00e9f\u00e9rences et des valeurs du ou de la patiente. La prise de d\u00e9cision partag\u00e9e aide les patient\u00b7es \u00e0 \u00eatre pr\u00eat\u00b7es au moment de prendre une d\u00e9cision. 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