{"id":72762,"date":"2023-06-02T14:28:01","date_gmt":"2023-06-02T18:28:01","guid":{"rendered":"https:\/\/wfh.org\/article\/annonce-des-jumeaux-2022-de-la-fmh\/"},"modified":"2023-06-13T11:39:31","modified_gmt":"2023-06-13T15:39:31","slug":"annonce-des-jumeaux-2022-de-la-fmh","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/annonce-des-jumeaux-2022-de-la-fmh\/","title":{"rendered":"Annonce des Jumeaux 2022 de la FMH"},"content":{"rendered":"\t\t
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Le Programme de jumelage<\/a> cr\u00e9e des partenariats courts entre les professionnel\u00b7les de la sant\u00e9 et les responsables de groupes de jeunes et de patient\u00b7es, dans tous types de pays, pour des p\u00e9riodes de deux \u00e0 quatre ans. Les centres de traitement de l\u2019h\u00e9mophilie, les organisations de patient\u00b7es et les groupes de jeunes peuvent participer au programme afin d\u2019aider \u00e0 am\u00e9liorer les traitements et les soins pour les personnes atteintes d\u2019un trouble h\u00e9r\u00e9ditaire de la coagulation dans les pays en d\u00e9veloppement.<\/p>\n

Le couple de laur\u00e9ats du Programme, Serbie-Canada (Manitoba), a organis\u00e9 plusieurs \u00e9v\u00e9nements et activit\u00e9s en 2022 qui ont eu un impact quantifiable sur la communaut\u00e9 serbe des troubles de la coagulation. Ainsi, les deux organisations jumel\u00e9es se sont r\u00e9unies pour d\u00e9velopper un nouveau plan strat\u00e9gique recouvrant les priorit\u00e9s, les tactiques et les facteurs de r\u00e9ussite n\u00e9cessaires au d\u00e9veloppement de l\u2019engagement des patient\u00b7es, de la collecte de fonds et de la recherche en Serbie. Lors du congr\u00e8s national de l\u2019h\u00e9mophilie en Serbie, plusieurs ateliers ont eu lieu pour aborder des sujets tels que le vieillissement en cas d\u2019h\u00e9mophilie, les femmes et les filles atteintes d\u2019un trouble de la coagulation, et la motivation des jeunes. Les jumeaux ont \u00e9galement r\u00e9dig\u00e9 un questionnaire pour d\u00e9terminer comment les jeunes souhaitaient \u00eatre inclus\u00b7es dans le travail men\u00e9 par la Soci\u00e9t\u00e9 serbe de l\u2019h\u00e9mophilie, afin de mieux planifier ses futures activit\u00e9s.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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De m\u00eame, les co-laur\u00e9ats du Programme de jumelage des CTH, l\u2019h\u00f4pital Al-Bashir d\u2019Amman (Jordanie) et les deux CTH irlandais (le National Coagulation Centre du St. James\u2019s Hospital et le Children\u2019s Health Ireland de Crumlin) de Dublin, ont organis\u00e9 de nombreuses activit\u00e9s cette ann\u00e9e, qui ont permis d\u2019am\u00e9liorer le niveau de soins en Jordanie pour les personnes atteintes d\u2019un trouble de la coagulation. Des formateurs et formatrices en m\u00e9decine, soins infirmiers et kin\u00e9sith\u00e9rapie originaires d\u2019Irlande se sont rendu\u00b7es au CTH Al-Bashir ainsi que dans celui de Zarqa pour travailler avec les sp\u00e9cialistes sur place et optimiser les proc\u00e9dures. Au cours de ces visites, les formateurs et formatrices ont rencontr\u00e9 l\u2019\u00e9quipe multidisciplinaire et ont organis\u00e9 plusieurs r\u00e9unions cliniques pour examiner les personnes atteintes d\u2019un trouble de la coagulation en compagnie des \u00e9quipes jordaniennes, et discuter des plans de prise en charge clinique actuels et futurs. Les structures jumel\u00e9es ont aussi tenu un atelier de formation dentaire, un atelier de formation laboratoire, et un atelier de formation aux soins infirmiers.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Au nom de la FMH, f\u00e9licitations aux Jumeaux 2022\u00a0!<\/p>\n

Pour en savoir plus sur le Programme de jumelage de la FMH, cliquez ici<\/a>.<\/p>\n

Le Programme de jumelage b\u00e9n\u00e9ficie du soutien financier exclusif de Pfizer.<\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie a le plaisir d\u2019annoncer les Jumeaux de l\u2019ann\u00e9e 2022 ! Les laur\u00e9ats du Programme de jumelage des organisations de l\u2019h\u00e9mophilie sont cette ann\u00e9e la Soci\u00e9t\u00e9 serbe de l\u2019h\u00e9mophilie et la Soci\u00e9t\u00e9 canadienne de l\u2019h\u00e9mophilie (section de Manitoba). Le Programme de jumelage des centres de traitement de l\u2019h\u00e9mophilie distingue quant \u00e0 lui l\u2019h\u00f4pital jordanien Al-Bashir \u00e0 Amman, et les deux CTH irlandais : le National Coagulation Centre du St. James\u2019s Hospital et le Children\u2019s Health Ireland de Crumlin, situ\u00e9 \u00e0 Dublin.<\/p>\n","protected":false},"author":13,"featured_media":72477,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[338,115],"tags":[],"search-category":[85],"class_list":["post-72762","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-3-fr","category-programme-de-jumelage-de-la-fmh","search-category-article"],"yoast_head":"\nAnnonce des Jumeaux 2022 de la FMH | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/annonce-des-jumeaux-2022-de-la-fmh\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Annonce des Jumeaux 2022 de la FMH\" \/>\n<meta property=\"og:description\" content=\"La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie a le plaisir d\u2019annoncer les Jumeaux de l\u2019ann\u00e9e 2022 ! 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Le Programme de jumelage des centres de traitement de l\u2019h\u00e9mophilie distingue quant \u00e0 lui l\u2019h\u00f4pital jordanien Al-Bashir \u00e0 Amman, et les deux CTH irlandais : le National Coagulation Centre du St. James\u2019s Hospital et le Children\u2019s Health Ireland de Crumlin, situ\u00e9 \u00e0 Dublin.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/annonce-des-jumeaux-2022-de-la-fmh\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2023-06-02T18:28:01+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-06-13T15:39:31+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/06\/Twins-of-the-year-header.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"700\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/annonce-des-jumeaux-2022-de-la-fmh\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/annonce-des-jumeaux-2022-de-la-fmh\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"Annonce des Jumeaux 2022 de la FMH\",\"datePublished\":\"2023-06-02T18:28:01+00:00\",\"dateModified\":\"2023-06-13T15:39:31+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/annonce-des-jumeaux-2022-de-la-fmh\/\"},\"wordCount\":493,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/annonce-des-jumeaux-2022-de-la-fmh\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/06\/Twins-of-the-year-header.jpg\",\"articleSection\":[\"Featured 3 - 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