{"id":67927,"date":"2023-05-02T09:00:18","date_gmt":"2023-05-02T13:00:18","guid":{"rendered":"https:\/\/wfh.org\/article\/des-progres-durables-en-republique-dominicaine-grace-au-programme-daide-humanitaire-de-la-fmh\/"},"modified":"2024-04-09T08:25:23","modified_gmt":"2024-04-09T12:25:23","slug":"des-progres-durables-en-republique-dominicaine-grace-au-programme-daide-humanitaire-de-la-fmh","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/des-progres-durables-en-republique-dominicaine-grace-au-programme-daide-humanitaire-de-la-fmh\/","title":{"rendered":"Des progr\u00e8s durables en R\u00e9publique dominicaine gr\u00e2ce au Programme d\u2019aide humanitaire de la FMH"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"67927\" class=\"elementor elementor-67927 elementor-67538\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-cca2726 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"cca2726\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-db319e1\" data-id=\"db319e1\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-0430de2 elementor-widget elementor-widget-text-editor\" data-id=\"0430de2\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>En janvier 2023, le <a href=\"https:\/\/wfh.org\/fr\/aide-humanitaire\/\" target=\"_blank\" rel=\"noopener\">Programme d\u2019aide humanitaire de la FMH<\/a> s\u2019est rendu en R\u00e9publique dominicaine pour \u00e9valuer les progr\u00e8s r\u00e9alis\u00e9s dans le pays ces derni\u00e8res ann\u00e9es. Les membres de l\u2019\u00e9quipe ont \u00e9t\u00e9 tr\u00e8s impressionn\u00e9\u00b7es par leurs constatations, qui les ont inspir\u00e9\u00b7es. \u00ab\u00a0Lors de cette visite, j\u2019ai observ\u00e9 une nette diff\u00e9rence entre ce que j\u2019avais vu [en 2017] et ce que j\u2019ai vu [en 2023]\u00a0\u00bb, explique le Dr Assad E. Haffar, directeur m\u00e9dical et de l\u2019aide humanitaire de la FMH. \u00ab\u00a0Premi\u00e8rement, en termes de coop\u00e9ration entre la communaut\u00e9 m\u00e9dicale et la communaut\u00e9 profane, j\u2019ai constat\u00e9 un travail commun\u00a0; elles ne forment qu\u2019une seule et m\u00eame entit\u00e9 qui poursuit le m\u00eame objectif\u00a0: le Traitement pour tous pour l\u2019ensemble des patient\u00b7es de la R\u00e9publique dominicaine.\u00a0\u00bb Le Dr Haffar pr\u00e9cise que les dons et le soutien du Programme d\u2019aide humanitaire de la FMH ont permis aux m\u00e9decins d\u2019introduire plus de traitements pour les personnes atteintes d\u2019un trouble de la coagulation, de mettre un plus grand nombre de personnes sous prophylaxie, et de pratiquer plus d\u2019interventions chirurgicales. Tout cela a permis une nette am\u00e9lioration de la qualit\u00e9 de vie des patient\u00b7es.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-fb162b7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"fb162b7\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-1b5f608\" data-id=\"1b5f608\" data-element_type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2c14859 elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"2c14859\" data-element_type=\"widget\" data-widget_type=\"icon.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<i aria-hidden=\"true\" class=\"fas fa-quote-left\"><\/i>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-ac376f3\" data-id=\"ac376f3\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-4d360d9 elementor-widget elementor-widget-heading\" data-id=\"4d360d9\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}<\/style><h2 class=\"elementor-heading-title elementor-size-default\">Sans le Programme d\u2019aide humanitaire de la FMH, nous n\u2019aurions pas pu sauver autant de vies que nous l\u2019avons fait. Il a donn\u00e9 une nouvelle chance aux [personnes atteintes d\u2019un trouble de la coagulation]. Sans l\u2019aide de la FMH, nous n\u2019aurions pas pu accomplir le tiers de ce que nous avons r\u00e9alis\u00e9. <\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-83abaac elementor-widget elementor-widget-heading\" data-id=\"83abaac\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<p class=\"elementor-heading-title elementor-size-default\">\u2014Dr Rosa Mar\u00eda Nieves Paulino, ancienne h\u00e9matologue<\/p>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-a110f48 elementor-widget elementor-widget-text-editor\" data-id=\"a110f48\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>En R\u00e9publique dominicaine, les soins sont bien meilleurs et sont devenus plus durables au cours des ann\u00e9es \u00e9coul\u00e9es, ce qui montre bien que le travail effectu\u00e9 par le Programme est viable. Ainsi, le pays ne disposait auparavant d\u2019aucun outil de suivi des patient\u00b7es\u00a0; aujourd\u2019hui, il poss\u00e8de un programme national d\u2019enregistrement qui est pass\u00e9 de 40 enfants enregistr\u00e9s \u00e0 plus de 450 personnes en quelques ann\u00e9es. Les hospitalisations et les visites aux urgences ont \u00e9t\u00e9 r\u00e9duites de 90\u00a0% depuis 2015. La prophylaxie tertiaire a commenc\u00e9 pour les enfants souffrant d\u00e9j\u00e0 de l\u00e9sions articulaires mais ne pr\u00e9sentant pas d\u2019arthropathie, ce qui a permis une baisse significative du nombre de patient\u00b7es pr\u00e9sentant des saignements articulaires.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e04cca7 elementor-widget elementor-widget-video\" data-id=\"e04cca7\" data-element_type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/youtu.be\\\/UL4soDeZ3y0&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-video .elementor-widget-container{overflow:hidden;transform:translateZ(0)}.elementor-widget-video .elementor-wrapper{aspect-ratio:var(--video-aspect-ratio)}.elementor-widget-video .elementor-wrapper iframe,.elementor-widget-video .elementor-wrapper video{height:100%;width:100%;display:flex;border:none;background-color:#000}@supports not (aspect-ratio:1\/1){.elementor-widget-video .elementor-wrapper{position:relative;overflow:hidden;height:0;padding-bottom:calc(100% \/ var(--video-aspect-ratio))}.elementor-widget-video .elementor-wrapper iframe,.elementor-widget-video .elementor-wrapper video{position:absolute;top:0;right:0;bottom:0;left:0}}.elementor-widget-video .elementor-open-inline .elementor-custom-embed-image-overlay{position:absolute;top:0;right:0;bottom:0;left:0;background-size:cover;background-position:50%}.elementor-widget-video .elementor-custom-embed-image-overlay{cursor:pointer;text-align:center}.elementor-widget-video .elementor-custom-embed-image-overlay:hover .elementor-custom-embed-play i{opacity:1}.elementor-widget-video .elementor-custom-embed-image-overlay img{display:block;width:100%;aspect-ratio:var(--video-aspect-ratio);-o-object-fit:cover;object-fit:cover;-o-object-position:center center;object-position:center center}@supports not (aspect-ratio:1\/1){.elementor-widget-video .elementor-custom-embed-image-overlay{position:relative;overflow:hidden;height:0;padding-bottom:calc(100% \/ var(--video-aspect-ratio))}.elementor-widget-video .elementor-custom-embed-image-overlay img{position:absolute;top:0;right:0;bottom:0;left:0}}.elementor-widget-video .e-hosted-video .elementor-video{-o-object-fit:cover;object-fit:cover}.e-con-inner>.elementor-widget-video,.e-con>.elementor-widget-video{width:var(--container-widget-width);--flex-grow:var(--container-widget-flex-grow)}<\/style>\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ae9266c elementor-widget elementor-widget-text-editor\" data-id=\"ae9266c\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Ces changements ont permis aux enfants qui grandissent en R\u00e9publique dominicaine de profiter d\u2019une qualit\u00e9 de vie que leurs parents n\u2019auraient pas crue possible. Prenons le cas de Luis Angni Arias. C\u2019est un jeune gar\u00e7on atteint d\u2019h\u00e9mophilie, qui peut aller \u00e0 l\u2019\u00e9cole et jouer avec ses ami\u00b7es comme les autres gar\u00e7ons de son \u00e2ge, gr\u00e2ce \u00e0 un acc\u00e8s r\u00e9gulier aux produits de traitement. Ce n\u2019\u00e9tait pas le cas de son oncle. \u00ab\u00a0Ma m\u00e8re est porteuse\u00a0\u00bb, explique la m\u00e8re de Luis, Orqu\u00eddea Mart\u00ednez. \u00ab\u00a0Lorsque mon fr\u00e8re se blessait, c\u2019\u00e9tait imm\u00e9diatement une v\u00e9ritable crise. Ce n&#8217;est pas le cas pour notre enfant. Il est sous prophylaxie [\u2026] S\u2019il se blesse, il gu\u00e9rit plus vite. Nous n\u2019avons plus peur que notre fils se fasse mal et souffre au cas o\u00f9 nous ne pourrions pas nous procurer de facteur.\u00a0\u00bb<\/p>\n<p>Hayd\u00e9e Benoit, fondatrice de la FAHEM, a v\u00e9cu une exp\u00e9rience similaire. Elle nous explique\u00a0: \u00ab\u00a0Quand je vois mon fils et mon petit-fils, il y a une telle diff\u00e9rence entre les deux\u2026 Mon petit-fils grandit sans arthropathie, son \u00e9tat d\u2019esprit est diff\u00e9rent\u00a0\u00bb. Ce type d\u2019am\u00e9lioration est pr\u00e9cis\u00e9ment l\u2019objectif des soins durables\u00a0: la fa\u00e7on de voir la vie des personnes atteintes d\u2019un trouble de la coagulation peut radicalement changer gr\u00e2ce \u00e0 un meilleur acc\u00e8s aux traitements m\u00e9dicaux.<\/p>\n<p>Depuis 2015, la R\u00e9publique dominicaine a re\u00e7u plus de 18 millions d\u2019UI de facteur. Pr\u00e8s de 2,5 millions d\u2019UI de facteur lui ont \u00e9t\u00e9 donn\u00e9s rien qu\u2019en 2022. Pour en savoir plus sur le Programme d\u2019aide humanitaire de la FMH, <a href=\"https:\/\/wfh.org\/fr\/aide-humanitaire\/\" target=\"_blank\" rel=\"noopener\">cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5dd264e elementor-widget elementor-widget-heading\" data-id=\"5dd264e\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f76e4a0 elementor-widget elementor-widget-text-editor\" data-id=\"f76e4a0\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda et la Japan Blood Product Organization, nos Donateurs contributeurs. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0<a href=\"http:\/\/www.treatmentforall.org\/\" target=\"_blank\" rel=\"noopener\">www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6422df9 elementor-widget elementor-widget-image\" data-id=\"6422df9\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=\".svg\"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block}<\/style>\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/wfh.org\/fr\/aide-humanitaire\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"786\" height=\"343\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/HA-logo.png\" class=\"attachment-full size-full wp-image-28201\" alt=\"\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/HA-logo.png 786w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/HA-logo-192x84.png 192w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/HA-logo-768x335.png 768w\" sizes=\"(max-width: 786px) 100vw, 786px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>La Fundaci\u00f3n Apoyo al Hemof\u00edlico (FAHEM) de R\u00e9publique dominicaine a \u00e9t\u00e9 reconnue organisation nationale membre (ONM) de la FMH en 2000, et le Programme d\u2019aide humanitaire y a rapidement commenc\u00e9 son travail. Gr\u00e2ce aux dons de produits th\u00e9rapeutiques, \u00e0 l\u2019\u00e9ducation et \u00e0 la formation, le Programme a pu durablement changer les choses dans ce pays des Cara\u00efbes. La vie s\u2019est am\u00e9lior\u00e9e, des vies ont \u00e9t\u00e9 sauv\u00e9es. En bref, la qualit\u00e9 de vie des personnes atteintes d\u2019un trouble de la coagulation se renforce de fa\u00e7on durable.<\/p>\n","protected":false},"author":13,"featured_media":67545,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[184],"tags":[],"search-category":[],"class_list":["post-67927","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-programme-daide-humanitaire-de-la-fmh"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Des progr\u00e8s durables en R\u00e9publique dominicaine gr\u00e2ce au Programme d\u2019aide humanitaire de la FMH | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/des-progres-durables-en-republique-dominicaine-grace-au-programme-daide-humanitaire-de-la-fmh\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Des progr\u00e8s durables en R\u00e9publique dominicaine gr\u00e2ce au Programme d\u2019aide humanitaire de la FMH\" \/>\n<meta property=\"og:description\" content=\"La Fundaci\u00f3n Apoyo al Hemof\u00edlico (FAHEM) de R\u00e9publique dominicaine a \u00e9t\u00e9 reconnue organisation nationale membre (ONM) de la FMH en 2000, et le Programme d\u2019aide humanitaire y a rapidement commenc\u00e9 son travail. Gr\u00e2ce aux dons de produits th\u00e9rapeutiques, \u00e0 l\u2019\u00e9ducation et \u00e0 la formation, le Programme a pu durablement changer les choses dans ce pays des Cara\u00efbes. La vie s\u2019est am\u00e9lior\u00e9e, des vies ont \u00e9t\u00e9 sauv\u00e9es. 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