{"id":67436,"date":"2023-04-18T16:27:53","date_gmt":"2023-04-18T20:27:53","guid":{"rendered":"https:\/\/wfh.org\/article\/le-programme-daide-humanitaire-de-la-fmh-soutient-le-plaidoyer-au-senegal\/"},"modified":"2024-04-09T08:26:30","modified_gmt":"2024-04-09T12:26:30","slug":"le-programme-daide-humanitaire-de-la-fmh-soutient-le-plaidoyer-au-senegal","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/le-programme-daide-humanitaire-de-la-fmh-soutient-le-plaidoyer-au-senegal\/","title":{"rendered":"Le Programme d\u2019aide humanitaire de la FMH soutient le plaidoyer au S\u00e9n\u00e9gal"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"67436\" class=\"elementor elementor-67436 elementor-66816\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-47cc492 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"47cc492\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-c54b9ce\" data-id=\"c54b9ce\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-4f6ffd9 elementor-widget elementor-widget-text-editor\" data-id=\"4f6ffd9\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>En janvier dernier, l\u2019\u00e9quipe du <a href=\"https:\/\/wfh.org\/fr\/aide-humanitaire\/\" target=\"_blank\" rel=\"noopener\">Programme d\u2019aide humanitaire de la FMH<\/a> s\u2019est rendue au S\u00e9n\u00e9gal pour \u00e9valuer les activit\u00e9s que le Programme m\u00e8ne sur place. Elle a constat\u00e9 que les dons p\u00e9rennes de facteur et la formation ont un impact r\u00e9el sur la communaut\u00e9. Elle a aussi pu se rendre compte que le Programme rapproche les patient\u00b7es, les professionnel\u00b7les de sant\u00e9 et les responsables gouvernementaux. Les r\u00e9sultats sont tr\u00e8s encourageants et plaident fortement en faveur d\u2019un acc\u00e8s constant aux soins pour les personnes atteintes d\u2019un trouble de la coagulation.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f822034 elementor-widget elementor-widget-video\" data-id=\"f822034\" data-element_type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/youtu.be\\\/Fuh0mN6Fhvo&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-video .elementor-widget-container{overflow:hidden;transform:translateZ(0)}.elementor-widget-video .elementor-wrapper{aspect-ratio:var(--video-aspect-ratio)}.elementor-widget-video .elementor-wrapper iframe,.elementor-widget-video .elementor-wrapper video{height:100%;width:100%;display:flex;border:none;background-color:#000}@supports not (aspect-ratio:1\/1){.elementor-widget-video .elementor-wrapper{position:relative;overflow:hidden;height:0;padding-bottom:calc(100% \/ var(--video-aspect-ratio))}.elementor-widget-video .elementor-wrapper iframe,.elementor-widget-video .elementor-wrapper video{position:absolute;top:0;right:0;bottom:0;left:0}}.elementor-widget-video .elementor-open-inline .elementor-custom-embed-image-overlay{position:absolute;top:0;right:0;bottom:0;left:0;background-size:cover;background-position:50%}.elementor-widget-video .elementor-custom-embed-image-overlay{cursor:pointer;text-align:center}.elementor-widget-video .elementor-custom-embed-image-overlay:hover .elementor-custom-embed-play i{opacity:1}.elementor-widget-video .elementor-custom-embed-image-overlay img{display:block;width:100%;aspect-ratio:var(--video-aspect-ratio);-o-object-fit:cover;object-fit:cover;-o-object-position:center center;object-position:center center}@supports not (aspect-ratio:1\/1){.elementor-widget-video .elementor-custom-embed-image-overlay{position:relative;overflow:hidden;height:0;padding-bottom:calc(100% \/ var(--video-aspect-ratio))}.elementor-widget-video .elementor-custom-embed-image-overlay img{position:absolute;top:0;right:0;bottom:0;left:0}}.elementor-widget-video .e-hosted-video .elementor-video{-o-object-fit:cover;object-fit:cover}.e-con-inner>.elementor-widget-video,.e-con>.elementor-widget-video{width:var(--container-widget-width);--flex-grow:var(--container-widget-flex-grow)}<\/style>\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5e75d29 elementor-widget elementor-widget-text-editor\" data-id=\"5e75d29\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Les dons fiables du Programme d\u2019aide humanitaire de la FMH permettent aux professionnel\u00b7les de sant\u00e9 de planifier leurs interventions et d\u2019utiliser les dons de la mani\u00e8re la plus efficace possible, et pas seulement de traiter les situations d\u2019urgence quand elles se pr\u00e9sentent. Gr\u00e2ce aux dons, il est possible de traiter les patient\u00b7es, de pr\u00e9venir les saignements, de pratiquer des interventions chirurgicales majeures et de prendre en charge les traumatismes graves. Tout cela cr\u00e9e une meilleure qualit\u00e9 de vie pour les personnes atteintes d\u2019un trouble de la coagulation et r\u00e9duit la charge des gouvernements gr\u00e2ce \u00e0 la minimisation des saignements. De plus, comme les troubles de la coagulation sont d\u00e9sormais vus comme une maladie curable par la population g\u00e9n\u00e9rale, des personnes auparavant r\u00e9ticentes \u00e0 se faire diagnostiquer sont maintenant plus enclines \u00e0 consulter un\u00b7e professionnel\u00b7le de sant\u00e9 pour se faire aider. Toutes ces avanc\u00e9es sont autant d\u2019arguments puissants que la communaut\u00e9 peut utiliser dans son plaidoyer aupr\u00e8s du gouvernement s\u00e9n\u00e9galais.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-afecd04 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"afecd04\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-f1ef742\" data-id=\"f1ef742\" data-element_type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-fad9ed4 elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"fad9ed4\" data-element_type=\"widget\" data-widget_type=\"icon.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<i aria-hidden=\"true\" class=\"fas fa-quote-left\"><\/i>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-a8b01d4\" data-id=\"a8b01d4\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-cb60f93 elementor-widget elementor-widget-heading\" data-id=\"cb60f93\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}<\/style><h2 class=\"elementor-heading-title elementor-size-default\">Lorsque les patient\u00b7es d\u00e9clarent que les produits [th\u00e9rapeutiques] les aident, cela nous permet de d\u00e9velopper un argumentaire pour convaincre le gouvernement. Celui-ci peut alors constater que ces produits sont utilisables et efficaces [\u2026] et nous avons ainsi un argument fort pour lui demander de s\u2019impliquer davantage dans l\u2019approvisionnement en facteur. <\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-076b00c elementor-widget elementor-widget-heading\" data-id=\"076b00c\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<p class=\"elementor-heading-title elementor-size-default\">\u2014 Dr Saliou Diop, directeur du Centre National de Transfusion Sanguine (Dakar)<\/p>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-7366b57 elementor-widget elementor-widget-text-editor\" data-id=\"7366b57\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Les dons p\u00e9rennes de facteur permettent \u00e9galement aux personnes atteintes d\u2019un trouble de la coagulation d\u2019\u00eatre plac\u00e9es sous prophylaxie, ce qui r\u00e9duit encore les hospitalisations et am\u00e9liore leur qualit\u00e9 de vie. L\u2019un de leurs autres avantages est la possibilit\u00e9 pour la communaut\u00e9 de mener enfin des campagnes de d\u00e9pistage et d\u2019identification pour diagnostiquer d\u2019autres personnes potentiellement atteintes d\u2019un trouble de la coagulation. Ces campagnes sont organis\u00e9es par diff\u00e9rents acteurs, notamment un centre de traitement de l\u2019h\u00e9mophilie (CTH), le Centre National de Transfusion Sanguine et l\u2019organisation nationale membre (ONM) du S\u00e9n\u00e9gal, l\u2019Association S\u00e9n\u00e9galaise des H\u00e9mophiles.<\/p>\n<p>Cette sensibilisation accrue sauve des vies, celle de Moustapha par exemple, un gar\u00e7on de 11 ans atteint d\u2019h\u00e9mophilie A s\u00e9v\u00e8re. Lorsqu\u2019il avait deux ans, Moustapha s\u2019est cogn\u00e9 la t\u00eate. Comme le saignement ne s\u2019arr\u00eatait pas, ses parents l\u2019ont emmen\u00e9 \u00e0 l\u2019h\u00f4pital, o\u00f9 il a re\u00e7u plusieurs transfusions sanguines sur une p\u00e9riode de trois jours. Le troisi\u00e8me jour, il a \u00e9t\u00e9 transf\u00e9r\u00e9 au Centre National de Transfusion Sanguine gr\u00e2ce \u00e0 un m\u00e9decin qui connaissait bien les sympt\u00f4mes d\u2019un trouble de la coagulation. L\u00e0, des tests ont montr\u00e9 que Moustapha \u00e9tait atteint d\u2019h\u00e9mophilie. Une infirmi\u00e8re lui a administr\u00e9 du facteur, ce qui a presque imm\u00e9diatement fait cesser le saignement. \u00ab\u00a0C\u2019\u00e9tait comme un vrai miracle, une dame s\u2019est approch\u00e9e, lui a fait une injection, et le saignement s\u2019est arr\u00eat\u00e9\u00a0\u00bb, explique son p\u00e8re. \u00ab\u00a0Ce jour-l\u00e0, je me suis mis \u00e0 croire \u00e0 la magie\u00a0!\u00a0\u00bb<\/p>\n<p>Les personnes atteintes d\u2019un trouble de la coagulation ne peuvent recevoir des soins optimaux que si les gouvernements sont en mesure de leur fournir du facteur de coagulation et des th\u00e9rapies sans remplacement de facteur en quantit\u00e9 suffisante pour leur permettre d\u2019\u00e9viter tout saignement. Les professionnel\u00b7les de sant\u00e9 doivent de leur c\u00f4t\u00e9 \u00eatre form\u00e9\u00b7es pour utiliser les produits aussi efficacement que possible. Le Programme d\u2019aide humanitaire de la FMH travaille avec le minist\u00e8re de la Sant\u00e9 et de l\u2019Action sociale, l\u2019ONM, les CTH et d\u2019autres organisations pour rendre cela possible, afin que le pays puisse \u00eatre autonome. Il reste encore du chemin \u00e0 parcourir mais des progr\u00e8s sont en cours.<\/p>\n<p>Depuis 2015, le S\u00e9n\u00e9gal a re\u00e7u pr\u00e8s de 11 millions d\u2019UI de dons de facteur\u00a0; rien qu\u2019en 2022, il a re\u00e7u plus de 1,2 million d\u2019UI de facteur ainsi que pr\u00e8s de 73\u00a0000 mg de th\u00e9rapies sans remplacement de facteur. Pour en savoir plus sur le Programme d\u2019aide humanitaire de la FMH, <a href=\"https:\/\/wfh.org\/fr\/aide-humanitaire\/\" target=\"_blank\" rel=\"noopener\">cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b0f10d8 elementor-widget elementor-widget-heading\" data-id=\"b0f10d8\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-dff2d43 elementor-widget elementor-widget-text-editor\" data-id=\"dff2d43\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda et la Japan Blood Product Organization, nos Donateurs contributeurs. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0<a href=\"http:\/\/www.treatmentforall.org\/\" target=\"_blank\" rel=\"noopener\">www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4e3fba4 elementor-widget elementor-widget-image\" data-id=\"4e3fba4\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=\".svg\"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block}<\/style>\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/wfh.org\/fr\/aide-humanitaire\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"786\" height=\"343\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/HA-logo.png\" class=\"attachment-full size-full wp-image-28201\" alt=\"\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/HA-logo.png 786w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/HA-logo-192x84.png 192w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/HA-logo-768x335.png 768w\" sizes=\"(max-width: 786px) 100vw, 786px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Avant 2015, le facteur de coagulation \u00e9tait tr\u00e8s difficile \u00e0 se procurer au S\u00e9n\u00e9gal et les p\u00e9nuries \u00e9taient fr\u00e9quentes. Par cons\u00e9quent, la communaut\u00e9 locale des troubles de la coagulation \u00e9tait en souffrance. Les personnes atteintes d\u2019un trouble de la coagulation devaient subir des saignements aigus et les complications qui les accompagnent : hospitalisations longues, l\u00e9sions articulaires permanentes, d\u00e9c\u00e8s parfois. Lorsque le Programme d\u2019aide humanitaire de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) s\u2019est \u00e9largi en 2015, tout a chang\u00e9. Aujourd\u2019hui, le S\u00e9n\u00e9gal re\u00e7oit des dons de produits th\u00e9rapeutiques fiables et r\u00e9guliers et b\u00e9n\u00e9ficie de formations. Le r\u00e9sultat de ces efforts : la communaut\u00e9 est d\u00e9sormais sur la voie des soins durables.<\/p>\n","protected":false},"author":13,"featured_media":66863,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[184],"tags":[],"search-category":[85],"class_list":["post-67436","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Le Programme d\u2019aide humanitaire de la FMH soutient le plaidoyer au S\u00e9n\u00e9gal | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/le-programme-daide-humanitaire-de-la-fmh-soutient-le-plaidoyer-au-senegal\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le Programme d\u2019aide humanitaire de la FMH soutient le plaidoyer au S\u00e9n\u00e9gal\" \/>\n<meta property=\"og:description\" content=\"Avant 2015, le facteur de coagulation \u00e9tait tr\u00e8s difficile \u00e0 se procurer au S\u00e9n\u00e9gal et les p\u00e9nuries \u00e9taient fr\u00e9quentes. Par cons\u00e9quent, la communaut\u00e9 locale des troubles de la coagulation \u00e9tait en souffrance. Les personnes atteintes d\u2019un trouble de la coagulation devaient subir des saignements aigus et les complications qui les accompagnent : hospitalisations longues, l\u00e9sions articulaires permanentes, d\u00e9c\u00e8s parfois. Lorsque le Programme d\u2019aide humanitaire de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) s\u2019est \u00e9largi en 2015, tout a chang\u00e9. Aujourd\u2019hui, le S\u00e9n\u00e9gal re\u00e7oit des dons de produits th\u00e9rapeutiques fiables et r\u00e9guliers et b\u00e9n\u00e9ficie de formations. 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