{"id":64450,"date":"2023-03-28T16:18:05","date_gmt":"2023-03-28T20:18:05","guid":{"rendered":"https:\/\/wfh.org\/article\/programme-daide-humanitaire-de-la-fmh-au-kirghizistan-la-prophylaxie-au-service-dun-reve\/"},"modified":"2024-04-09T09:00:56","modified_gmt":"2024-04-09T13:00:56","slug":"programme-daide-humanitaire-de-la-fmh-au-kirghizistan-la-prophylaxie-au-service-dun-reve","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-au-kirghizistan-la-prophylaxie-au-service-dun-reve\/","title":{"rendered":"Programme d\u2019aide humanitaire de la FMH : au Kirghizistan, la prophylaxie au service d\u2019un r\u00eave"},"content":{"rendered":"\t\t
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Nursultan est atteint d\u2019h\u00e9mophilie A s\u00e9v\u00e8re. Comme il a \u00e9t\u00e9 peu trait\u00e9 \u00e9tant enfant, il a souffert de saignements fr\u00e9quents, et pr\u00e9sente d\u00e9sormais une arthropathie dans les deux genoux. Son fr\u00e8re est \u00e9galement atteint d\u2019h\u00e9mophilie. Vivre avec cette maladie et constater \u00e0 quel point cela les affectait lui et son fr\u00e8re a donn\u00e9 \u00e0 M. Nursultan un vif d\u00e9sir d\u2019essayer de changer les choses, en devenant m\u00e9decin.<\/p>\n

Malgr\u00e9 des saignements persistants au niveau des genoux, il a travaill\u00e9 dur et a \u00e9t\u00e9 admis \u00e0 l\u2019\u00e9cole de m\u00e9decine. Il a continu\u00e9 \u00e0 y \u00eatre tr\u00e8s studieux, et a bien \u00e9volu\u00e9 dans son cursus \u2013 il a cependant d\u00fb manquer des cours \u00e0 cause de ses saignements. Les sp\u00e9cialistes du CTH ont alors sugg\u00e9r\u00e9 qu\u2019il soit plac\u00e9 sous prophylaxie secondaire courte \u00e0 faible dose, avec du concentr\u00e9 de facteur fourni par le Programme d\u2019aide humanitaire de la FMH<\/a>, pour r\u00e9duire ses absences scolaires. Le traitement a port\u00e9 ses fruits\u00a0: les saignements aigus ont presque enti\u00e8rement cess\u00e9, et M. Nursultan a pu se concentrer pleinement sur ses \u00e9tudes de m\u00e9decine. Cette th\u00e9rapie a aussi beaucoup am\u00e9lior\u00e9 sa qualit\u00e9 de vie. Le succ\u00e8s de ce traitement prophylactique au Kirghizistan est une preuve suppl\u00e9mentaire que les dons fiables rendent les soins durables possibles.<\/p>\n

Depuis 2015, le Kirghizistan a re\u00e7u pr\u00e8s de 28 millions d\u2019UI de facteur. Un peu plus de 3,3 millions d\u2019UI ont \u00e9t\u00e9 donn\u00e9es au pays rien qu\u2019en 2022. Pour en savoir plus sur le Programme d\u2019aide humanitaire de la FMH, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda et la Japan Blood Product Organization, nos Donateurs contributeurs. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Le Programme d\u2019aide humanitaire de la FMH travaille avec les organisations nationales membres (ONM) et les centres de traitement de l\u2019h\u00e9mophilie (CTH) du monde entier pour aider les personnes atteintes d\u2019un trouble de la coagulation \u00e0 vivre une vie aussi normale que possible. Le Programme a pour objectif de fournir des soins durables et pas uniquement des dons ponctuels. Le but est de permettre aux personnes atteintes d\u2019un trouble de la coagulation de b\u00e9n\u00e9ficier d\u2019un soutien constant pour am\u00e9liorer leur qualit\u00e9 de vie. Usenov Nursultan, 18 ans, est originaire du Kirghizistan. Gr\u00e2ce aux dons de produits du Programme d\u2019aide humanitaire de la FMH, il esp\u00e8re un jour devenir m\u00e9decin.<\/p>\n","protected":false},"author":13,"featured_media":63878,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[338,184],"tags":[],"search-category":[85],"class_list":["post-64450","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-3-fr","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nProgramme d\u2019aide humanitaire de la FMH : au Kirghizistan, la prophylaxie au service d\u2019un r\u00eave | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-au-kirghizistan-la-prophylaxie-au-service-dun-reve\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Programme d\u2019aide humanitaire de la FMH : au Kirghizistan, la prophylaxie au service d\u2019un r\u00eave\" \/>\n<meta property=\"og:description\" content=\"Le Programme d\u2019aide humanitaire de la FMH travaille avec les organisations nationales membres (ONM) et les centres de traitement de l\u2019h\u00e9mophilie (CTH) du monde entier pour aider les personnes atteintes d\u2019un trouble de la coagulation \u00e0 vivre une vie aussi normale que possible. Le Programme a pour objectif de fournir des soins durables et pas uniquement des dons ponctuels. Le but est de permettre aux personnes atteintes d\u2019un trouble de la coagulation de b\u00e9n\u00e9ficier d\u2019un soutien constant pour am\u00e9liorer leur qualit\u00e9 de vie. Usenov Nursultan, 18 ans, est originaire du Kirghizistan. Gr\u00e2ce aux dons de produits du Programme d\u2019aide humanitaire de la FMH, il esp\u00e8re un jour devenir m\u00e9decin.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-au-kirghizistan-la-prophylaxie-au-service-dun-reve\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2023-03-28T20:18:05+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-09T13:00:56+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/03\/HA-Bayer-Usenov-Nursultan-Header.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-au-kirghizistan-la-prophylaxie-au-service-dun-reve\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-au-kirghizistan-la-prophylaxie-au-service-dun-reve\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"Programme d\u2019aide humanitaire de la FMH : au Kirghizistan, la prophylaxie au service d\u2019un r\u00eave\",\"datePublished\":\"2023-03-28T20:18:05+00:00\",\"dateModified\":\"2024-04-09T13:00:56+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-au-kirghizistan-la-prophylaxie-au-service-dun-reve\/\"},\"wordCount\":444,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-au-kirghizistan-la-prophylaxie-au-service-dun-reve\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/03\/HA-Bayer-Usenov-Nursultan-Header.jpg\",\"articleSection\":[\"Featured 3 - 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