{"id":60494,"date":"2023-02-27T09:29:26","date_gmt":"2023-02-27T14:29:26","guid":{"rendered":"https:\/\/wfh.org\/article\/au-pakistan-le-programme-daide-humanitaire-de-la-fmh-change-durablement-les-choses\/"},"modified":"2024-04-09T09:02:55","modified_gmt":"2024-04-09T13:02:55","slug":"au-pakistan-le-programme-daide-humanitaire-de-la-fmh-change-durablement-les-choses","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/au-pakistan-le-programme-daide-humanitaire-de-la-fmh-change-durablement-les-choses\/","title":{"rendered":"Au Pakistan, le Programme d\u2019aide humanitaire de la FMH change durablement les choses"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"60494\" class=\"elementor elementor-60494 elementor-59079\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-2708dfc elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"2708dfc\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-dca871a\" data-id=\"dca871a\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3d74018 elementor-widget elementor-widget-text-editor\" data-id=\"3d74018\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>Avant l\u2019\u00e9largissement du <a href=\"https:\/\/wfh.org\/fr\/aide-humanitaire\/\" target=\"_blank\" rel=\"noopener\">Programme d\u2019aide humanitaire de la FMH<\/a>, les soins aux personnes atteintes d\u2019un trouble de la coagulation au Pakistan \u00e9taient \u00e0 un niveau minimum. Les patient\u00b7es vivaient au jour le jour, et en l\u2019absence de dons de facteur r\u00e9guliers, il \u00e9tait impossible de pr\u00e9voir le moindre r\u00e9gime de traitement. Depuis l\u2019\u00e9largissement, la situation a compl\u00e8tement chang\u00e9. Les dons de produit sont d\u00e9sormais accessibles \u00e0 des milliers de personnes concern\u00e9es, et nombre d\u2019entre elles peuvent emporter les produits chez elles pour des auto-injections. Cela fait baisser le nombre de visites dans les CTH (qui pouvaient prendre des heures voire des jours pour certain\u00b7es), et permet d\u2019avoir des saignements moins aigus, et donc de moins s\u2019absenter de l\u2019\u00e9cole ou du travail.<\/p>\n<p>L\u2019\u00e9ducation et la formation qui ont accompagn\u00e9 l\u2019expansion du Programme ont aussi permis de beaucoup am\u00e9liorer les conditions. Ainsi, l\u2019augmentation des dons a \u00e9t\u00e9 coupl\u00e9e \u00e0 une formation sur la meilleure fa\u00e7on de stocker et distribuer le facteur, pour assurer que le syst\u00e8me tout entier soit optimis\u00e9 le plus possible. La formation au diagnostic a aussi aid\u00e9 les CTH et l\u2019organisation nationale membre (ONM) \u00e0 identifier un plus grand nombre de personnes atteintes d\u2019un trouble de la coagulation, permettant de soutenir et soigner des personnes qui jusque-l\u00e0 souffraient, parfois sans savoir ce qui leur arrivait. Depuis quelques ann\u00e9es, les dons de produit comprennent aussi des th\u00e9rapies sans remplacement de facteur, qui ont permis de placer encore plus de patient\u00b7es sous prophylaxie. Le traitement prophylactique est devenu prioritaire pour les enfants, afin que leur vie soit la plus normale possible et qu\u2019ils puissent aller \u00e0 l\u2019\u00e9cole avec les autres. Enfin, un approvisionnement pr\u00e9visible en facteur signifie la possibilit\u00e9 de proc\u00e9der \u00e0 des interventions chirurgicales plus nombreuses, donnant de l\u2019espoir aux personnes pr\u00e9sentant des probl\u00e8mes physiques permanents provoqu\u00e9s par leur trouble de la coagulation.<\/p>\n<p>Le suivi des soins s\u2019est \u00e9galement am\u00e9lior\u00e9. Aujourd\u2019hui, les patient\u00b7es sont suivi\u00b7es gr\u00e2ce au <a href=\"https:\/\/wfh.org\/fr\/recherche-et-collecte-de-donnees\/#wbdr\" target=\"_blank\" rel=\"noopener\">Registre mondial des troubles de la coagulation (RMTC)<\/a>. Ce registre est aussi utilis\u00e9 pour surveiller les r\u00e9sultats de sant\u00e9 et d\u00e9montrer l\u2019impact des dons du Programme d\u2019aide humanitaire de la FMH. Cela permet au syst\u00e8me de mesurer l\u2019impact de traitements adapt\u00e9s sur la qualit\u00e9 de vie et la situation socio\u00e9conomique des personnes atteintes d\u2019un trouble de la coagulation au Pakistan. Ainsi, les CTH, l\u2019ONM et les autres acteurs sont en mesure de mener des actions efficaces de plaidoyer aupr\u00e8s du gouvernement pour obtenir un meilleur niveau de soins.<\/p>\n<p>Depuis 2015, le Pakistan a re\u00e7u plus de 62 millions d\u2019UI de dons de facteur. Le Programme d\u2019aide humanitaire de la FMH a donn\u00e9 au pays pr\u00e8s de 12 millions d\u2019UI de facteur et pr\u00e8s de 500\u00a0000 mg de th\u00e9rapies sans remplacement de facteur en 2022. Pour en savoir plus sur le Programme d\u2019aide humanitaire de la FMH, <a href=\"https:\/\/wfh.org\/fr\/aide-humanitaire\/\" target=\"_blank\" rel=\"noopener\">cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0448cdd elementor-widget elementor-widget-heading\" data-id=\"0448cdd\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}<\/style><h3 class=\"elementor-heading-title elementor-size-default\">\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fbf9a83 elementor-widget elementor-widget-text-editor\" data-id=\"fbf9a83\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda et la Japan Blood Product Organization, nos Donateurs contributeurs. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0<a href=\"http:\/\/www.treatmentforall.org\/\" target=\"_blank\" rel=\"noopener\">www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-11c12fd elementor-widget elementor-widget-image\" data-id=\"11c12fd\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=\".svg\"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block}<\/style>\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/wfh.org\/fr\/aide-humanitaire\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"786\" height=\"343\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/HA-logo.png\" class=\"attachment-full size-full wp-image-28201\" alt=\"\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/HA-logo.png 786w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/HA-logo-192x84.png 192w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/HA-logo-768x335.png 768w\" sizes=\"(max-width: 786px) 100vw, 786px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Le Programme d\u2019aide humanitaire de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) propose un soutien aux pays sur plusieurs ann\u00e9es, voire plusieurs d\u00e9cennies. Cette aide constante, qui prend la forme de dons de produits th\u00e9rapeutiques, de formations et d\u2019aide logistique, permet aux centres de traitement de l\u2019h\u00e9mophilie (CTH) de planifier efficacement leurs r\u00e9gimes de traitement. Dans le cas du Pakistan, le travail du Programme s\u2019est r\u00e9v\u00e9l\u00e9 profond\u00e9ment transformateur : le pays est pass\u00e9 de soins tr\u00e8s insuffisants \u00e0 une situation o\u00f9 les personnes atteintes d\u2019un trouble de la coagulation peuvent faire elles-m\u00eames leurs injections et recevoir un traitement prophylactique.<\/p>\n","protected":false},"author":13,"featured_media":49124,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[184],"tags":[],"search-category":[85],"class_list":["post-60494","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Au Pakistan, le Programme d\u2019aide humanitaire de la FMH change durablement les choses | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/au-pakistan-le-programme-daide-humanitaire-de-la-fmh-change-durablement-les-choses\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Au Pakistan, le Programme d\u2019aide humanitaire de la FMH change durablement les choses\" \/>\n<meta property=\"og:description\" content=\"Le Programme d\u2019aide humanitaire de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) propose un soutien aux pays sur plusieurs ann\u00e9es, voire plusieurs d\u00e9cennies. Cette aide constante, qui prend la forme de dons de produits th\u00e9rapeutiques, de formations et d\u2019aide logistique, permet aux centres de traitement de l\u2019h\u00e9mophilie (CTH) de planifier efficacement leurs r\u00e9gimes de traitement. Dans le cas du Pakistan, le travail du Programme s\u2019est r\u00e9v\u00e9l\u00e9 profond\u00e9ment transformateur : le pays est pass\u00e9 de soins tr\u00e8s insuffisants \u00e0 une situation o\u00f9 les personnes atteintes d\u2019un trouble de la coagulation peuvent faire elles-m\u00eames leurs injections et recevoir un traitement prophylactique.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/au-pakistan-le-programme-daide-humanitaire-de-la-fmh-change-durablement-les-choses\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2023-02-27T14:29:26+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-09T13:02:55+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/10\/HA-stock-image-3-header.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/au-pakistan-le-programme-daide-humanitaire-de-la-fmh-change-durablement-les-choses\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/au-pakistan-le-programme-daide-humanitaire-de-la-fmh-change-durablement-les-choses\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/f57928f0dd0ca8906b81082895256d8f\"},\"headline\":\"Au Pakistan, le Programme d\u2019aide humanitaire de la FMH change durablement les choses\",\"datePublished\":\"2023-02-27T14:29:26+00:00\",\"dateModified\":\"2024-04-09T13:02:55+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/au-pakistan-le-programme-daide-humanitaire-de-la-fmh-change-durablement-les-choses\/\"},\"wordCount\":683,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/au-pakistan-le-programme-daide-humanitaire-de-la-fmh-change-durablement-les-choses\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/10\/HA-stock-image-3-header.jpg\",\"articleSection\":[\"Programme d\u2019aide humanitaire de la FMH\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/au-pakistan-le-programme-daide-humanitaire-de-la-fmh-change-durablement-les-choses\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/au-pakistan-le-programme-daide-humanitaire-de-la-fmh-change-durablement-les-choses\/\",\"name\":\"Au Pakistan, le Programme d\u2019aide humanitaire de la FMH change durablement les choses | FMH - 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F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/wfh.org\/fr\/article\/au-pakistan-le-programme-daide-humanitaire-de-la-fmh-change-durablement-les-choses\/","og_locale":"fr_FR","og_type":"article","og_title":"Au Pakistan, le Programme d\u2019aide humanitaire de la FMH change durablement les choses","og_description":"Le Programme d\u2019aide humanitaire de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) propose un soutien aux pays sur plusieurs ann\u00e9es, voire plusieurs d\u00e9cennies. Cette aide constante, qui prend la forme de dons de produits th\u00e9rapeutiques, de formations et d\u2019aide logistique, permet aux centres de traitement de l\u2019h\u00e9mophilie (CTH) de planifier efficacement leurs r\u00e9gimes de traitement. 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