{"id":56362,"date":"2023-02-09T09:46:16","date_gmt":"2023-02-09T14:46:16","guid":{"rendered":"https:\/\/wfh.org\/article\/la-premiere-promotion-de-lacademie-de-plaidoyer-diplomee\/"},"modified":"2024-04-09T09:04:44","modified_gmt":"2024-04-09T13:04:44","slug":"la-premiere-promotion-de-lacademie-de-plaidoyer-diplomee","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/la-premiere-promotion-de-lacademie-de-plaidoyer-diplomee\/","title":{"rendered":"La premi\u00e8re promotion de l\u2019Acad\u00e9mie de plaidoyer dipl\u00f4m\u00e9e"},"content":{"rendered":"\t\t
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Pendant huit mois, les participant\u00b7es de l\u2019Acad\u00e9mie de plaidoyer du PACT<\/a> ont suivi quatre modules cocr\u00e9\u00e9s par la FMH et la Robert F. Wagner Graduate School of Public Service de l\u2019universit\u00e9 de New York. Ceux-ci s\u2019articulaient autour des sujets suivants\u00a0: concepts cl\u00e9s en mati\u00e8re de troubles de la coagulation, principes de soins et plaidoyer\u00a0; comp\u00e9tences en mati\u00e8re de plaidoyer et de conception de campagne\u00a0; introduction \u00e0 l\u2019\u00e9conomie de la sant\u00e9 et \u00e0 l\u2019\u00e9valuation des technologies de la sant\u00e9\u00a0; et enfin, concepts cl\u00e9s en mati\u00e8re de traitements, de mod\u00e8les de passation de march\u00e9 et d\u2019appels d\u2019offre. Les participant\u00b7es ont aussi d\u00e9velopp\u00e9 de vraies campagnes de plaidoyer \u00e0 travers une s\u00e9rie d\u2019exercices pratiques. Les enseignant\u00b7es et mentors, qui sont notamment des expert\u00b7es en mati\u00e8re de plaidoyer et de troubles de la coagulation, ont form\u00e9 et conseill\u00e9 les \u00e9tudiant\u00b7es \u00e0 travers le prisme d\u2019un plaidoyer en faveur de soins et de traitements s\u00fbrs et durables, ce qui est l\u2019un des principaux objectifs strat\u00e9giques de la FMH.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Les participant\u00b7es ont montr\u00e9 une augmentation de leurs connaissances apr\u00e8s avoir suivi des sessions en autonomie.<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Les participant\u00b7es ont fait des retours tr\u00e8s positifs sur cette exp\u00e9rience\u00a0: la plupart d\u00e9clare qu\u2019elle leur a donn\u00e9 les outils n\u00e9cessaires pour mener des actions de plaidoyer plus efficaces sur le terrain. Juan Andr\u00e9s Pereira de Souza, qui vient d\u2019Uruguay, nous explique que ce qu\u2019il a appris aupr\u00e8s de l\u2019Acad\u00e9mie de plaidoyer du PACT a renforc\u00e9 et \u00e9largi ses connaissances des strat\u00e9gies de plaidoyer, et lui a fourni les comp\u00e9tences pour organiser des projets plus efficaces. Agnes Kisakye, originaire d\u2019Ouganda, dit avoir senti que cette exp\u00e9rience l\u2019avait mieux arm\u00e9e pour dialoguer avec les diff\u00e9rents acteurs en mati\u00e8re de politique et de plaidoyer, et lui avait apport\u00e9 une approche des interventions plus compl\u00e8te et plus ax\u00e9e sur les patient\u00b7es.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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J\u2019ai \u00e9t\u00e9 ravie de partager ce que j\u2019ai appris \u00e0 l\u2019Acad\u00e9mie de plaidoyer du PACT avec l\u2019Hemophilia Philippines Foundation [\u2026] mon \u00e9quipe va maintenant mettre en pratique les concepts et les comp\u00e9tences que j\u2019ai acquises pour renforcer nos efforts de lobbying aupr\u00e8s de la Philippine Health Insurance Corporation (PhilHealth), des gouvernements locaux et de l\u2019Institut national de la sant\u00e9. Ce programme nous a beaucoup aid\u00e9es, mon organisation et moi, \u00e0 nous recentrer et \u00e0 r\u00e9organiser nos initiatives en faveur de la communaut\u00e9 philippine de l\u2019h\u00e9mophilie. <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014Flerida Hernandez, originaire des Philippines<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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En 2023, la FMH compte s\u2019appuyer sur le succ\u00e8s de cette premi\u00e8re ann\u00e9e du programme, notamment en proposant ses cours en trois langues\u00a0: anglais, espagnol et fran\u00e7ais. La nouvelle promotion a d\u00e9j\u00e0 commenc\u00e9 sa formation, et les participant\u00b7es font preuve de beaucoup d\u2019enthousiasme. Au cours de la session d\u2019orientation en janvier dernier, Cesar Garrido, pr\u00e9sident de la FMH, leur a rappel\u00e9 de toujours laisser la place \u00e0 la strat\u00e9gie dans leur travail, pour qu\u2019ensemble ils et elles puissent progresser vers notre vision commune du Traitement pour tous.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\tPour en savoir plus sur le Programme Parcours d’acc\u00e8s aux soins et au traitement, cliquez ici<\/a>.\r\n\r\nLe Programme PACT b\u00e9n\u00e9ficie du soutien financier de CSL Behring, Pfizer, Roche et Sanofi Genzyme, nos partenaires leaders, et de Biotest, Grifols et Sobi, nos partenaires collaborateurs.<\/em>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Le Programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT) de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) est une initiative quinquennale qui vise \u00e0 am\u00e9liorer le d\u00e9pistage et le diagnostic, et \u00e0 renforcer l\u2019acc\u00e8s \u00e0 une offre de soins durable pour les personnes atteintes d\u2019un trouble h\u00e9r\u00e9ditaire de la coagulation. En 2022, la FMH a lanc\u00e9 l\u2019Acad\u00e9mie de plaidoyer du PACT qui permet aux repr\u00e9sentant\u00b7es des ONM ainsi qu\u2019aux d\u00e9fenseur\u00b7es des patients d\u2019acqu\u00e9rir les connaissances et les comp\u00e9tences n\u00e9cessaires pour mener \u00e0 bien des campagnes de sensibilisation fond\u00e9es sur des donn\u00e9es probantes. L\u2019an dernier, la premi\u00e8re promotion de l\u2019acad\u00e9mie a re\u00e7u son dipl\u00f4me \u2013 elle rassemblait 23 personnes originaires de 18 pays.<\/p>\n","protected":false},"author":13,"featured_media":55884,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[182],"tags":[],"search-category":[85],"class_list":["post-56362","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-pact-fr","search-category-article"],"yoast_head":"\nLa premi\u00e8re promotion de l\u2019Acad\u00e9mie de plaidoyer dipl\u00f4m\u00e9e | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/la-premiere-promotion-de-lacademie-de-plaidoyer-diplomee\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La premi\u00e8re promotion de l\u2019Acad\u00e9mie de plaidoyer dipl\u00f4m\u00e9e\" \/>\n<meta property=\"og:description\" content=\"Le Programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT) de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) est une initiative quinquennale qui vise \u00e0 am\u00e9liorer le d\u00e9pistage et le diagnostic, et \u00e0 renforcer l\u2019acc\u00e8s \u00e0 une offre de soins durable pour les personnes atteintes d\u2019un trouble h\u00e9r\u00e9ditaire de la coagulation. 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L\u2019an dernier, la premi\u00e8re promotion de l\u2019acad\u00e9mie a re\u00e7u son dipl\u00f4me \u2013 elle rassemblait 23 personnes originaires de 18 pays.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/la-premiere-promotion-de-lacademie-de-plaidoyer-diplomee\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2023-02-09T14:46:16+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-09T13:04:44+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/02\/Advocacy-Academy_FR.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-premiere-promotion-de-lacademie-de-plaidoyer-diplomee\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-premiere-promotion-de-lacademie-de-plaidoyer-diplomee\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"La premi\u00e8re promotion de l\u2019Acad\u00e9mie de plaidoyer dipl\u00f4m\u00e9e\",\"datePublished\":\"2023-02-09T14:46:16+00:00\",\"dateModified\":\"2024-04-09T13:04:44+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-premiere-promotion-de-lacademie-de-plaidoyer-diplomee\/\"},\"wordCount\":603,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-premiere-promotion-de-lacademie-de-plaidoyer-diplomee\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/02\/Advocacy-Academy_FR.jpg\",\"articleSection\":[\"Parcours d\u2019acc\u00e8s aux soins et au traitements (PACT)\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-premiere-promotion-de-lacademie-de-plaidoyer-diplomee\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/la-premiere-promotion-de-lacademie-de-plaidoyer-diplomee\/\",\"name\":\"La premi\u00e8re promotion de l\u2019Acad\u00e9mie de plaidoyer dipl\u00f4m\u00e9e | FMH - 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