{"id":52633,"date":"2022-12-07T17:22:11","date_gmt":"2022-12-07T22:22:11","guid":{"rendered":"https:\/\/wfh.org\/article\/le-rapport-sur-le-sondage-mondial-annuel-2021-desormais-disponible\/"},"modified":"2024-04-18T08:59:36","modified_gmt":"2024-04-18T12:59:36","slug":"le-rapport-sur-le-sondage-mondial-annuel-2021-desormais-disponible","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/le-rapport-sur-le-sondage-mondial-annuel-2021-desormais-disponible\/","title":{"rendered":"Le rapport sur le Sondage Mondial annuel 2021 d\u00e9sormais disponible"},"content":{"rendered":"\t\t
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Gr\u00e2ce au Sondage<\/a>, la FMH peut efficacement suivre l\u2019augmentation de l\u2019identification des patients. Entre 1999 et 2021, 429\u00a0232 personnes atteintes d\u2019un trouble de la coagulation ont \u00e9t\u00e9 identifi\u00e9es et signal\u00e9es (256\u00a0840 atteintes d\u2019h\u00e9mophilie, 98\u00a0293 de la maladie de Willebrand (MW) et 74\u00a0099 d\u2019autres troubles de la coagulation). Cela repr\u00e9sente une augmentation de 286\u00a0% depuis le d\u00e9but de ce sondage, et une augmentation moyenne de 9\u00a0% depuis l\u2019an dernier (6\u00a0% pour l\u2019h\u00e9mophilie, 12\u00a0% pour la MW et 15\u00a0% pour les autres troubles de la coagulation). Ces augmentations peuvent \u00eatre attribu\u00e9es au retour de patient\u00b7es dans les cliniques apr\u00e8s la pand\u00e9mie de COVID-19, \u00e0 des avanc\u00e9es dans la capacit\u00e9 de diagnostic, et \u00e0 des am\u00e9liorations dans les processus de collecte de donn\u00e9es et de signalement.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Comme dans le rapport de l\u2019ann\u00e9e pr\u00e9c\u00e9dente, les donn\u00e9es sont r\u00e9parties en deux sections\u00a0: la premi\u00e8re comporte des donn\u00e9es historiques mondiales pr\u00e9sentant la croissance de l\u2019identification et du signalement des patient\u00b7es, et la deuxi\u00e8me propose des donn\u00e9es sp\u00e9cifiques \u00e0 cette ann\u00e9e. En 2021, un total de 118 organisations nationales membres (ONM) ont contribu\u00e9 au rapport. Celui-ci contient notamment des donn\u00e9es provenant de la R\u00e9publique du Congo, qui signe ainsi sa toute premi\u00e8re participation, ainsi que du Luxembourg, du Bahre\u00efn et de la Croatie, qui ont tous trois soumis des donn\u00e9es pour la premi\u00e8re fois depuis de nombreuses ann\u00e9es. La FMH est reconnaissante \u00e0 toutes les ONM pour leur participation et leur soutien constant \u00e0 nos efforts de collecte de donn\u00e9es.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Pour acc\u00e9der au Rapport sur le Sondage mondial annuel de la FMH, cliquez ici<\/a>. Des tableaux et graphiques suppl\u00e9mentaires sont disponibles en ligne ici<\/a> pour obtenir plus d\u2019informations sur les troubles de la coagulation. Pour en savoir plus sur le Sondage mondial annuel, consultez notre page d\u00e9di\u00e9e ici<\/a> ou contactez globalsurvey@wfh.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Les priorit\u00e9s strat\u00e9giques de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) pour 2021-2025 se concentrent sur le renforcement des capacit\u00e9s dans l\u2019identification et le diagnostic des patients, l\u2019am\u00e9lioration de la collecte, de l\u2019interpr\u00e9tation et de la diffusion de donn\u00e9es, l\u2019assurance de soins et de traitements adapt\u00e9s, et le plaidoyer en faveur de traitements s\u00fbrs et durables. Depuis 20 ans, le Sondage mondial annuel permet de surveiller ces objectifs et de les atteindre. Nous avons aujourd\u2019hui le plaisir d\u2019annoncer que le Rapport sur le Sondage mondial annuel 2021 de la FMH est d\u00e9sormais disponible en ligne.<\/p>\n","protected":false},"author":13,"featured_media":52372,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[205,363],"tags":[],"search-category":[322],"class_list":["post-52633","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-recherche-et-collecte-de-donnees","category-sondage-mondial-annuel-sma","search-category-article-ru"],"yoast_head":"\nLe rapport sur le Sondage Mondial annuel 2021 d\u00e9sormais disponible | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/le-rapport-sur-le-sondage-mondial-annuel-2021-desormais-disponible\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le rapport sur le Sondage Mondial annuel 2021 d\u00e9sormais disponible\" \/>\n<meta property=\"og:description\" content=\"Les priorit\u00e9s strat\u00e9giques de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) pour 2021-2025 se concentrent sur le renforcement des capacit\u00e9s dans l\u2019identification et le diagnostic des patients, l\u2019am\u00e9lioration de la collecte, de l\u2019interpr\u00e9tation et de la diffusion de donn\u00e9es, l\u2019assurance de soins et de traitements adapt\u00e9s, et le plaidoyer en faveur de traitements s\u00fbrs et durables. Depuis 20 ans, le Sondage mondial annuel permet de surveiller ces objectifs et de les atteindre. Nous avons aujourd\u2019hui le plaisir d\u2019annoncer que le Rapport sur le Sondage mondial annuel 2021 de la FMH est d\u00e9sormais disponible en ligne.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/le-rapport-sur-le-sondage-mondial-annuel-2021-desormais-disponible\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2022-12-07T22:22:11+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-18T12:59:36+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/12\/AGS-header-FR.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/le-rapport-sur-le-sondage-mondial-annuel-2021-desormais-disponible\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/le-rapport-sur-le-sondage-mondial-annuel-2021-desormais-disponible\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"Le rapport sur le Sondage Mondial annuel 2021 d\u00e9sormais disponible\",\"datePublished\":\"2022-12-07T22:22:11+00:00\",\"dateModified\":\"2024-04-18T12:59:36+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/le-rapport-sur-le-sondage-mondial-annuel-2021-desormais-disponible\/\"},\"wordCount\":337,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/le-rapport-sur-le-sondage-mondial-annuel-2021-desormais-disponible\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/12\/AGS-header-FR.jpg\",\"articleSection\":[\"Recherche et collecte de donn\u00e9es\",\"Sondage mondial annuel (SMA)\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/le-rapport-sur-le-sondage-mondial-annuel-2021-desormais-disponible\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/le-rapport-sur-le-sondage-mondial-annuel-2021-desormais-disponible\/\",\"name\":\"Le rapport sur le Sondage Mondial annuel 2021 d\u00e9sormais disponible | FMH - 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