{"id":49871,"date":"2022-11-10T10:12:15","date_gmt":"2022-11-10T15:12:15","guid":{"rendered":"https:\/\/wfh.org\/article\/annonce-du-theme-de-la-journee-mondiale-de-lhemophilie-2023\/"},"modified":"2026-03-12T10:01:41","modified_gmt":"2026-03-12T14:01:41","slug":"annonce-du-theme-de-la-journee-mondiale-de-lhemophilie-2023","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/annonce-du-theme-de-la-journee-mondiale-de-lhemophilie-2023\/","title":{"rendered":"Annonce du th\u00e8me de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2023"},"content":{"rendered":"\t\t
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S\u2019appuyant sur le th\u00e8me de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie<\/a> de l\u2019an dernier, cet appel \u00e0 l\u2019action pour la communaut\u00e9 en 2023 vise \u00e0 se rassembler et \u00e0 d\u00e9fendre aupr\u00e8s des responsables politiques locaux et des gouvernements un meilleur acc\u00e8s aux traitements et aux soins, en mettant l\u2019accent sur un meilleur contr\u00f4le et une meilleure pr\u00e9vention des saignements, pour toutes les personnes atteintes d\u2019un trouble de la coagulation. Cela passe par la mise en \u0153uvre de soins \u00e0 domicile ainsi que de traitements prophylactiques pour aider ces personnes \u00e0 b\u00e9n\u00e9ficier d\u2019une meilleure qualit\u00e9 de vie.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Il n\u2019y a rien de plus \u00e9mouvant pour quelqu\u2019un de notre communaut\u00e9 que d\u2019entendre qu\u2019un enfant atteint d\u2019un trouble de la coagulation joue avec ses ami\u00b7es, va \u00e0 l\u2019\u00e9cole et profite tout simplement d\u2019une meilleure qualit\u00e9 de vie parce qu\u2019il ou elle a acc\u00e8s \u00e0 des soins adapt\u00e9s. Contr\u00f4ler et pr\u00e9venir les saignements, c\u2019est essentiel pour am\u00e9liorer la qualit\u00e9 de vie.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Cesar Garrido, pr\u00e9sident de la FMH<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Comment vous engager<\/strong><\/p>\n

Il existe de nombreux moyens de sensibiliser le public \u00e0 la n\u00e9cessit\u00e9 de contr\u00f4ler et pr\u00e9venir les saignements chez les personnes atteintes d\u2019un trouble de la coagulation, que ce soit celles de votre communaut\u00e9 ou du monde entier. Le th\u00e8me 2023 sert simplement de guide, mais vous pouvez l\u2019adapter \u00e0 votre r\u00e9gion et \u00e0 votre organisation. Nous vous proposerons prochainement diff\u00e9rentes fa\u00e7ons de vous impliquer sur notre\u00a0page<\/a>\u00a0consacr\u00e9e \u00e0 la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie, ainsi que sur la\u00a0page<\/a>\u00a0Actualit\u00e9s de la FMH.<\/p>\n

Ressources<\/strong><\/p>\n

Vous trouverez plus d\u2019informations sur le th\u00e8me, ainsi que des banni\u00e8res et d\u2019autres \u00e9l\u00e9ments sur la page d\u00e9di\u00e9e \u00e0 la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie,\u00a0ici<\/a>. Les informations seront mises \u00e0 jour r\u00e9guli\u00e8rement, veillez \u00e0 surveiller la page\u00a0!<\/p>\n

La FMH tient \u00e0 remercier les sponsors de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2023 pour leur soutien : Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche Ltd., Freeline Therapeutics, GC Pharma, Grifols, Kedrion, LFB S.A, Novo Nordisk, Octapharma, Pfizer, Sanofi, Sobi, Spark Therapeutics, et Takeda.<\/i><\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Le 17 avril 2023 est la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie ! Le th\u00e8me est le suivant : \u00ab Acc\u00e8s pour tous : la pr\u00e9vention des saignements comme r\u00e9f\u00e9rence mondiale de soins \u00bb.<\/p>\n","protected":false},"author":13,"featured_media":48585,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[169,150],"tags":[],"search-category":[85],"class_list":["post-49871","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events-2","category-world-hemophilia-day","search-category-article"],"yoast_head":"\nAnnonce du th\u00e8me de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2023 | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/annonce-du-theme-de-la-journee-mondiale-de-lhemophilie-2023\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Annonce du th\u00e8me de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2023\" \/>\n<meta property=\"og:description\" content=\"Le 17 avril 2023 est la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie ! 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