{"id":48773,"date":"2022-10-25T16:49:55","date_gmt":"2022-10-25T20:49:55","guid":{"rendered":"https:\/\/wfh.org\/article\/a-venir-loutil-de-prise-de-decision-commune-de-la-fmh-pour-le-traitement-de-lhemophilie\/"},"modified":"2024-04-10T09:47:50","modified_gmt":"2024-04-10T13:47:50","slug":"a-venir-loutil-de-prise-de-decision-commune-de-la-fmh-pour-le-traitement-de-lhemophilie","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/a-venir-loutil-de-prise-de-decision-commune-de-la-fmh-pour-le-traitement-de-lhemophilie\/","title":{"rendered":"\u00c0 venir : l\u2019Outil de prise de d\u00e9cision commune de la FMH pour le traitement de l\u2019h\u00e9mophilie"},"content":{"rendered":"\t\t
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Avec l\u2019introduction de nouvelles options de traitement sans remplacement de facteur pour les personnes atteintes d\u2019h\u00e9mophilie, le paysage des soins de l\u2019h\u00e9mophilie est devenu plus complexe, ce qui complique \u00e9galement le processus de prise de d\u00e9cision pour les patient\u00b7es comme pour les m\u00e9decins. Cette r\u00e9alit\u00e9 rend fondamentale la disponibilit\u00e9 d\u2019un outil de prise de d\u00e9cision commune pour faciliter la discussion entre les personnes atteintes d\u2019h\u00e9mophilie et les professionnel\u00b7les de sant\u00e9 sur les possibilit\u00e9s de traitement. Le but de l\u2019Outil de prise de d\u00e9cision commune de la FMH pour le traitement de l\u2019h\u00e9mophilie est d\u2019encourager la discussion entre le ou la patiente et le ou la professionnelle de sant\u00e9 sur les pr\u00e9f\u00e9rences personnelles et les objectifs du traitement, de proposer une \u00e9ducation sur les caract\u00e9ristiques des th\u00e9rapies, et de permettre finalement \u00e0 la personne atteinte d\u2019h\u00e9mophilie de prendre une d\u00e9cision v\u00e9ritablement \u00e9clair\u00e9e au sujet de son traitement.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Le mod\u00e8le de prise de d\u00e9cision commune est un \u00ab processus graduel qui se base sur un \u00e9change r\u00e9ciproque d\u2019informations entre le praticien et le patient, ce qui a pour r\u00e9sultat des d\u00e9cisions de sant\u00e9 fond\u00e9es sur les pr\u00e9f\u00e9rences \u00e9clair\u00e9es des deux parties \u00bb.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014Valentino LA et al., The Journal of Haemophilia Practice, 2021 <\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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La FMH a cr\u00e9\u00e9 un partenariat avec COR2ED<\/a>, une organisation ind\u00e9pendante de formation m\u00e9dicale, pour d\u00e9velopper cet outil et proposer ainsi une ressource de prise de d\u00e9cision commune de grande qualit\u00e9, fond\u00e9e sur les preuves et accessible en ligne. Le d\u00e9veloppement de l\u2019Outil de prise de d\u00e9cision commune de la FMH pour le traitement de l\u2019h\u00e9mophilie est actuellement en cours, et nous devrions \u00eatre en mesure de le lancer au sein de notre communaut\u00e9 courant 2023.<\/p>\n

Cet outil sera propos\u00e9 gratuitement \u00e0 la communaut\u00e9 mndiale de l\u2019h\u00e9mophilie et sera disponible pour toutes les organisations nationales membres (ONM) et tous les centres de traitement de l\u2019h\u00e9mophilie (CTH). Il sera \u00e9galement accessible sur le site de la FMH, en anglais, puis dans d\u2019autres langues dans un deuxi\u00e8me temps.<\/p>\n

L\u2019Outil de prise de d\u00e9cision commune de la FMH pour le traitement de l\u2019h\u00e9mophilie est soutenu par des financements de BioMarin Pharmaceutical Inc., CSL Behring, Pfizer, et Spark Therapeutics. \u00a0<\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) est tr\u00e8s fi\u00e8re d\u2019annoncer le d\u00e9veloppement d\u2019un nouvel outil pour optimiser le processus de d\u00e9cision pour les personnes atteintes d\u2019h\u00e9mophilie : l\u2019Outil de prise de d\u00e9cision commune de la FMH pour le traitement de l\u2019h\u00e9mophilie.<\/p>\n","protected":false},"author":13,"featured_media":48416,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[201],"tags":[],"search-category":[85],"class_list":["post-48773","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-traitement-et-soins","search-category-article"],"yoast_head":"\n\u00c0 venir : l\u2019Outil de prise de d\u00e9cision commune de la FMH pour le traitement de l\u2019h\u00e9mophilie | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/a-venir-loutil-de-prise-de-decision-commune-de-la-fmh-pour-le-traitement-de-lhemophilie\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00c0 venir : l\u2019Outil de prise de d\u00e9cision commune de la FMH pour le traitement de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"og:description\" content=\"La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) est tr\u00e8s fi\u00e8re d\u2019annoncer le d\u00e9veloppement d\u2019un nouvel outil pour optimiser le processus de d\u00e9cision pour les personnes atteintes d\u2019h\u00e9mophilie : l\u2019Outil de prise de d\u00e9cision commune de la FMH pour le traitement de l\u2019h\u00e9mophilie.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/a-venir-loutil-de-prise-de-decision-commune-de-la-fmh-pour-le-traitement-de-lhemophilie\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - 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