{"id":43334,"date":"2022-07-27T14:59:07","date_gmt":"2022-07-27T18:59:07","guid":{"rendered":"https:\/\/wfh.org\/derriere-la-camera-les-videos-du-programme-daide-humanitaire-de-la-fmh\/"},"modified":"2024-04-11T08:18:30","modified_gmt":"2024-04-11T12:18:30","slug":"derriere-la-camera-les-videos-du-programme-daide-humanitaire-de-la-fmh","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/derriere-la-camera-les-videos-du-programme-daide-humanitaire-de-la-fmh\/","title":{"rendered":"Derri\u00e8re la cam\u00e9ra : les vid\u00e9os du Programme d\u2019aide humanitaire de la FMH"},"content":{"rendered":"\t\t
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\n\t\t\t\t\t\t\t\t\t\u00c9tant n\u00e9 aux \u00c9tats-Unis, M. Lynch a eu acc\u00e8s \u00e0 un tr\u00e8s bon niveau de soins, plus \u00e9lev\u00e9 en tout cas que celui auquel ont acc\u00e8s la plupart des personnes atteintes d\u2019un trouble de la coagulation vivant dans d\u2019autres pays. Ainsi, il m\u00e8ne une vie normale, tandis que dans le monde entier, la moiti\u00e9 des personnes atteintes d\u2019h\u00e9mophilie s\u00e9v\u00e8re meurt avant l\u2019\u00e2ge de dix ans. Celles qui survivent doivent souvent faire face \u00e0 une existence difficile. Ayant le sentiment que les personnes atteintes d\u2019un trouble de la coagulation \u00ab\u00a0sont comme ses fr\u00e8res et s\u0153urs de sang\u00a0\u00bb, M. Lynch souhaite jouer un r\u00f4le dans la vision de la FMH du Traitement pour tous. C\u2019est d\u2019ailleurs sa d\u00e9termination \u00e0 soutenir les personnes de sa communaut\u00e9 qui l\u2019ont conduit \u00e0 fonder Believe Limited.\r\n\r\nDans la vid\u00e9o ci-dessous, M. Lynch nous raconte quelques-unes des exp\u00e9riences enrichissantes qu\u2019il a v\u00e9cues pendant la r\u00e9alisation des vid\u00e9os pour le Programme d\u2019aide humanitaire de la FMH<\/a>. Il r\u00e9v\u00e8le certaines des r\u00e9flexions que les personnes atteintes d\u2019un trouble de la coagulation issues de pays en d\u00e9veloppement lui ont confi\u00e9es, notamment la n\u00e9cessit\u00e9 du plaidoyer et de se rassembler pour se soutenir les unes les autres. Il se rem\u00e9more \u00e9galement un \u00e9v\u00e9nement touchant\u00a0: un h\u00e9matologue qui a voulu prendre une photo de lui pour montrer \u00e0 ses patient\u00b7es qu\u2019il \u00e9tait possible de grandir normalement et de mener une vie normale, pourvu qu\u2019on ait acc\u00e8s \u00e0 du facteur et \u00e0 des soins.\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tLe Programme d\u2019aide humanitaire de la FMH fournit des traitements fiables et durables aux personnes qui en ont le plus besoin, et se r\u00e9v\u00e8le aussi \u00eatre un outil pr\u00e9cieux pour la promotion du diagnostic, et pour encourager les gouvernements \u00e0 investir dans les soins des troubles de la coagulation. Gr\u00e2ce aux dons de produits th\u00e9rapeutiques et \u00e0 une solide formation, le Programme permet d\u2019am\u00e9liorer les soins dans le monde entier, pour toute la communaut\u00e9 des troubles de la coagulation.\r\n\r\nDans la vid\u00e9o, M. Lynch conclut en expliquant que m\u00eame si la vie des personnes atteintes d\u2019un trouble de la coagulation est difficile dans de nombreux pays, il y a toujours de l\u2019espoir. \u00ab\u00a0La question n\u2019est pas de savoir s\u2019il doit ou non y avoir des soins\u2026 mais \u00e0 quoi ces soins doivent ressembler. Je vous mets au d\u00e9fi de voir les choses en grand. Parce que mes fr\u00e8res et s\u0153urs de sang et moi\u2026 nous en valons la peine.\u00a0\u00bb\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de notre Donateur contributeur Takeda. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.<\/div>\r\n<\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Depuis 2015, le Programme d\u2019aide humanitaire de la FMH collabore avec Believe Limited pour d\u00e9velopper une s\u00e9rie de vid\u00e9os illustrant l\u2019impact du Programme dans le monde entier gr\u00e2ce \u00e0 son soutien aux structures m\u00e9dicales et aux patient\u00b7es, pour rendre les soins durables. Patrick James Lynch, PDG de Believe Limited, est lui-m\u00eame atteint d\u2019h\u00e9mophilie A. Pour lui, ces vid\u00e9os ont constitu\u00e9 un travail tr\u00e8s personnel et une exp\u00e9rience \u00e9mouvante.<\/p>\n","protected":false},"author":13,"featured_media":43049,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[184],"tags":[],"search-category":[85],"class_list":["post-43334","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nDerri\u00e8re la cam\u00e9ra : les vid\u00e9os du Programme d\u2019aide humanitaire de la FMH | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/derriere-la-camera-les-videos-du-programme-daide-humanitaire-de-la-fmh\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Derri\u00e8re la cam\u00e9ra : les vid\u00e9os du Programme d\u2019aide humanitaire de la FMH\" \/>\n<meta property=\"og:description\" content=\"Depuis 2015, le Programme d\u2019aide humanitaire de la FMH collabore avec Believe Limited pour d\u00e9velopper une s\u00e9rie de vid\u00e9os illustrant l\u2019impact du Programme dans le monde entier gr\u00e2ce \u00e0 son soutien aux structures m\u00e9dicales et aux patient\u00b7es, pour rendre les soins durables. Patrick James Lynch, PDG de Believe Limited, est lui-m\u00eame atteint d\u2019h\u00e9mophilie A. Pour lui, ces vid\u00e9os ont constitu\u00e9 un travail tr\u00e8s personnel et une exp\u00e9rience \u00e9mouvante.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/derriere-la-camera-les-videos-du-programme-daide-humanitaire-de-la-fmh\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2022-07-27T18:59:07+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-11T12:18:30+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/07\/479AAE80-8D50-4D91-BE1E-5A64CF55C4F9.jpeg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"700\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/derriere-la-camera-les-videos-du-programme-daide-humanitaire-de-la-fmh\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/derriere-la-camera-les-videos-du-programme-daide-humanitaire-de-la-fmh\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"Derri\u00e8re la cam\u00e9ra : les vid\u00e9os du Programme d\u2019aide humanitaire de la FMH\",\"datePublished\":\"2022-07-27T18:59:07+00:00\",\"dateModified\":\"2024-04-11T12:18:30+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/derriere-la-camera-les-videos-du-programme-daide-humanitaire-de-la-fmh\/\"},\"wordCount\":650,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/derriere-la-camera-les-videos-du-programme-daide-humanitaire-de-la-fmh\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/07\/479AAE80-8D50-4D91-BE1E-5A64CF55C4F9.jpeg\",\"articleSection\":[\"Programme d\u2019aide humanitaire de la FMH\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/derriere-la-camera-les-videos-du-programme-daide-humanitaire-de-la-fmh\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/derriere-la-camera-les-videos-du-programme-daide-humanitaire-de-la-fmh\/\",\"name\":\"Derri\u00e8re la cam\u00e9ra : les vid\u00e9os du Programme d\u2019aide humanitaire de la FMH | FMH - 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F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/wfh.org\/fr\/article\/derriere-la-camera-les-videos-du-programme-daide-humanitaire-de-la-fmh\/","og_locale":"fr_FR","og_type":"article","og_title":"Derri\u00e8re la cam\u00e9ra : les vid\u00e9os du Programme d\u2019aide humanitaire de la FMH","og_description":"Depuis 2015, le Programme d\u2019aide humanitaire de la FMH collabore avec Believe Limited pour d\u00e9velopper une s\u00e9rie de vid\u00e9os illustrant l\u2019impact du Programme dans le monde entier gr\u00e2ce \u00e0 son soutien aux structures m\u00e9dicales et aux patient\u00b7es, pour rendre les soins durables. Patrick James Lynch, PDG de Believe Limited, est lui-m\u00eame atteint d\u2019h\u00e9mophilie A. 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