{"id":40538,"date":"2022-06-15T07:00:46","date_gmt":"2022-06-15T11:00:46","guid":{"rendered":"https:\/\/wfh.org\/programme-daide-humanitaire-de-la-fmh-soutenir-les-soins-en-guyane\/"},"modified":"2024-04-11T08:21:06","modified_gmt":"2024-04-11T12:21:06","slug":"programme-daide-humanitaire-de-la-fmh-soutenir-les-soins-en-guyane","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-soutenir-les-soins-en-guyane\/","title":{"rendered":"Programme d\u2019aide humanitaire de la FMH : soutenir les soins en Guyane"},"content":{"rendered":"\t\t
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\n\t\t\t\t\t\t\t\t\tMohammad est \u00e2g\u00e9 de 42 ans et atteint d\u2019h\u00e9mophilie A. Il a grandi en Guyane \u00e0 une \u00e9poque o\u00f9 la connaissance de l\u2019h\u00e9mophilie \u00e9tait limit\u00e9e, tout comme l\u2019aide m\u00e9dicale, ce qui a \u00e9t\u00e9 \u00e9prouvant. Sa m\u00e8re l\u2019a propos\u00e9 \u00e0 l\u2019adoption, pensant que ses h\u00e9matomes apparaissant de fa\u00e7on spontan\u00e9e \u00e9taient un signe de sorcellerie. Des saignements fr\u00e9quents lorsqu\u2019il \u00e9tait enfant l\u2019ont conduit \u00e0 \u00eatre hospitalis\u00e9 sur de longues p\u00e9riodes, et \u00e0 voir sa souplesse articulaire tr\u00e8s r\u00e9duite. Une fois adulte, il a d\u00fb manquer des journ\u00e9es de travail \u00e0 cause de ses saignements, ce qui a eu des cons\u00e9quences sur sa carri\u00e8re, et les difficult\u00e9s de vivre avec l\u2019h\u00e9mophilie ont pr\u00e9cipit\u00e9 la fin de son mariage.\r\n\r\nO\u00f9 que l\u2019on vive, \u00eatre atteint\u00b7e d\u2019h\u00e9mophilie est tr\u00e8s difficile, mais les obstacles suppl\u00e9mentaires auxquels Mohammad a d\u00fb faire face, qui venaient d\u2019un manque de sensibilisation de la communaut\u00e9 en g\u00e9n\u00e9ral et d\u2019un manque de structures de soins adapt\u00e9es dans le secteur m\u00e9dical, sont des facteurs que le Programme d\u2019aide humanitaire de la FMH<\/a> s\u2019efforce de r\u00e9duire. Le Programme travaille avec la Soci\u00e9t\u00e9 guyanaise de l\u2019h\u00e9mophilie (GHS) ainsi que des professionnel\u00b7les de sant\u00e9 pour am\u00e9liorer l\u2019\u00e9ducation et fournir aux CTH locaux des traitements fiables et durables. Lorsque les m\u00e9decins ont contact\u00e9 la FMH \u00e0 propos de Mohammad, il a pu \u00eatre plac\u00e9 sous th\u00e9rapie prophylactique par remplacement de facteur, et cela a compl\u00e8tement chang\u00e9 sa vie. Il ne craint plus de saignements qui pourraient le forcer \u00e0 \u00eatre hospitalis\u00e9, souvent pendant des jours \u00e0 cause d\u2019un manque de r\u00e9serves de sang. Il re\u00e7oit non seulement des traitements r\u00e9guliers par facteur pour ma\u00eetriser les saignements, mais ceux-ci lui ont aussi permis de subir une intervention chirurgicale. Il a \u00e9t\u00e9 la premi\u00e8re personne en Guyane \u00e0 \u00eatre op\u00e9r\u00e9e pour le traitement d\u2019une h\u00e9maturie chronique caus\u00e9e par une hernie bilat\u00e9rale et une hydroc\u00e8le. L\u2019op\u00e9ration s\u2019est tr\u00e8s bien pass\u00e9e, avec tr\u00e8s peu de saignements, et aucune transfusion sanguine n\u2019a \u00e9t\u00e9 n\u00e9cessaire pendant ni apr\u00e8s l\u2019intervention. Mohammad profite d\u00e9sormais d\u2019une vie plus normale, et son histoire montre bien comment le Programme d\u2019aide humanitaire de la FMH permet de fournir des traitements fiables et durables aux personnes qui en ont le plus besoin.\r\n\r\nPlus de 2,8 millions d\u2019UI de facteur ont \u00e9t\u00e9 donn\u00e9es \u00e0 la Guyane via le Programme d\u2019aide humanitaire depuis 2015. Pour en savoir plus sur le Programme, cliquez ici<\/a>.\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tLe Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de notre Donateur contributeur Takeda. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH collabore avec les organisations nationales membres (ONM) et les centres de traitement de l\u2019h\u00e9mophilie (CTH) pour comprendre les besoins sp\u00e9cifiques \u00e0 chaque pays et les aider \u00e0 proposer des soins fiables et durables aux personnes de leurs communaut\u00e9s respectives. En Guyane, l\u2019ONM locale d\u00e9veloppe depuis plusieurs ann\u00e9es des liens \u00e9troits avec les structures m\u00e9dicales, ce qui a eu un impact positif sur les personnes atteintes d\u2019un trouble de la coagulation dans ce pays d\u2019Am\u00e9rique du Sud.<\/p>\n","protected":false},"author":13,"featured_media":28187,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[184],"tags":[],"search-category":[85],"class_list":["post-40538","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nProgramme d\u2019aide humanitaire de la FMH : soutenir les soins en Guyane | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-soutenir-les-soins-en-guyane\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Programme d\u2019aide humanitaire de la FMH : soutenir les soins en Guyane\" \/>\n<meta property=\"og:description\" content=\"Le Programme d\u2019aide humanitaire de la FMH collabore avec les organisations nationales membres (ONM) et les centres de traitement de l\u2019h\u00e9mophilie (CTH) pour comprendre les besoins sp\u00e9cifiques \u00e0 chaque pays et les aider \u00e0 proposer des soins fiables et durables aux personnes de leurs communaut\u00e9s respectives. En Guyane, l\u2019ONM locale d\u00e9veloppe depuis plusieurs ann\u00e9es des liens \u00e9troits avec les structures m\u00e9dicales, ce qui a eu un impact positif sur les personnes atteintes d\u2019un trouble de la coagulation dans ce pays d\u2019Am\u00e9rique du Sud.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-soutenir-les-soins-en-guyane\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2022-06-15T11:00:46+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-11T12:21:06+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/02\/2022-HA-Article-Banner-1-01.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1334\" \/>\n\t<meta property=\"og:image:height\" content=\"834\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-soutenir-les-soins-en-guyane\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-soutenir-les-soins-en-guyane\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"Programme d\u2019aide humanitaire de la FMH : soutenir les soins en Guyane\",\"datePublished\":\"2022-06-15T11:00:46+00:00\",\"dateModified\":\"2024-04-11T12:21:06+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-soutenir-les-soins-en-guyane\/\"},\"wordCount\":616,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-soutenir-les-soins-en-guyane\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/02\/2022-HA-Article-Banner-1-01.png\",\"articleSection\":[\"Programme d\u2019aide humanitaire de la FMH\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-soutenir-les-soins-en-guyane\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/programme-daide-humanitaire-de-la-fmh-soutenir-les-soins-en-guyane\/\",\"name\":\"Programme d\u2019aide humanitaire de la FMH : soutenir les soins en Guyane | FMH - 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