{"id":38972,"date":"2022-06-16T08:00:20","date_gmt":"2022-06-16T12:00:20","guid":{"rendered":"https:\/\/wfh.org\/?p=38972"},"modified":"2024-04-11T08:20:54","modified_gmt":"2024-04-11T12:20:54","slug":"chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/","title":{"rendered":"Chiffre marquant pour le RMTC : 10 000 personnes enregistr\u00e9es !"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"38972\" class=\"elementor elementor-38972 elementor-38825\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-8f5dc91 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"8f5dc91\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-6f898f0\" data-id=\"6f898f0\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-43d0fb4 elementor-widget elementor-widget-text-editor\" data-id=\"43d0fb4\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\tLes donn\u00e9es patient sont au c\u0153ur des d\u00e9cisions cliniques et des politiques de sant\u00e9. Elles peuvent jouer un r\u00f4le d\u00e9terminant dans la vie des personnes atteintes d\u2019un trouble de la coagulation. Depuis des ann\u00e9es, la communaut\u00e9 des troubles de la coagulation r\u00e9clame des donn\u00e9es plus nombreuses et de meilleure qualit\u00e9 pour am\u00e9liorer les soins, \u00e9clairer les d\u00e9cisions cliniques et d\u00e9fendre un meilleur soutien. Le <a href=\"https:\/\/wfh.org\/fr\/collecte-de-donnees\/#wbdr\" target=\"_blank\" rel=\"noopener\">RMTC<\/a> r\u00e9pond \u00e0 ce besoin et donne l\u2019opportunit\u00e9 \u00e0 la communaut\u00e9 de r\u00e9duire les \u00e9carts de disponibilit\u00e9, de qualit\u00e9 et de possibilit\u00e9 d\u2019utilisation des donn\u00e9es patient aux niveaux national et r\u00e9gional.\r\n\r\nLe chiffre majeur de 10\u00a0000 personnes enregistr\u00e9es a \u00e9t\u00e9 atteint un an plus t\u00f4t que pr\u00e9vu. La FMH est tr\u00e8s reconnaissante aux participant\u00b7es qui ont contribu\u00e9 aux RMTC gr\u00e2ce \u00e0 leurs donn\u00e9es, permettant de mieux comprendre les soins prodigu\u00e9s aux patient\u00b7es dans le monde.\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-d88649a elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"d88649a\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-edcee9c\" data-id=\"edcee9c\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1125235 elementor-widget elementor-widget-text-editor\" data-id=\"1125235\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\tCes quatre derni\u00e8res ann\u00e9es, la FMH a propos\u00e9 \u00e0 la communaut\u00e9 plusieurs programmes et ressources li\u00e9es au RMTC, notamment\u00a0:\r\n<ul>\r\n \t<li><a href=\"https:\/\/wfh.org\/fr\/demander-une-bourse-ou-une-subvention\/programme-de-soutien-a-la-recherche-du-rmtc\/\" target=\"_blank\" rel=\"noopener\">Le Programme de soutien \u00e0 la recherche du RMTC<\/a> qui a financ\u00e9 30 projets de recherche<\/li>\r\n \t<li><a href=\"https:\/\/wfh.org\/fr\/demander-une-bourse-ou-une-subvention\/programme-de-financement-des-cth-du-rmtc\/\" target=\"_blank\" rel=\"noopener\">Le Programme de financement des CTH du RMTC<\/a> qui a soutenu les activit\u00e9s de collecte de donn\u00e9es de 25 CTH<\/li>\r\n \t<li>Plus de 16 ateliers men\u00e9s dans les domaines de l\u2019\u00e9ducation, de la collecte de donn\u00e9es et de l\u2019\u00e9valuation clinique<\/li>\r\n<\/ul>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-a929e33\" data-id=\"a929e33\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6658263 elementor-widget elementor-widget-image\" data-id=\"6658263\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=\".svg\"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block}<\/style>\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-WBDR-Using-Data-to-Improve-Care-EN-F-WEB.pdf\" target=\"_blank\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"612\" height=\"792\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-WBDR-Using-Data-to-Improve-Care-FR-F-WEB-THUMBNAIL.jpg\" class=\"attachment-full size-full wp-image-38831\" alt=\"\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-WBDR-Using-Data-to-Improve-Care-FR-F-WEB-THUMBNAIL.jpg 612w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-WBDR-Using-Data-to-Improve-Care-FR-F-WEB-THUMBNAIL-83x108.jpg 83w\" sizes=\"(max-width: 612px) 100vw, 612px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-b9cc50a elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b9cc50a\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-4de95be\" data-id=\"4de95be\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-63cbfb2 elementor-widget elementor-widget-spacer\" data-id=\"63cbfb2\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-column .elementor-spacer-inner{height:var(--spacer-size)}.e-con{--container-widget-width:100%}.e-con-inner>.elementor-widget-spacer,.e-con>.elementor-widget-spacer{width:var(--container-widget-width,var(--spacer-size));--align-self:var(--container-widget-align-self,initial);--flex-shrink:0}.e-con-inner>.elementor-widget-spacer>.elementor-widget-container,.e-con>.elementor-widget-spacer>.elementor-widget-container{height:100%;width:100%}.e-con-inner>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer,.e-con>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer{height:100%}.e-con-inner>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer>.elementor-spacer-inner,.e-con>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer>.elementor-spacer-inner{height:var(--container-widget-height,var(--spacer-size))}.e-con-inner>.elementor-widget-spacer.elementor-widget-empty,.e-con>.elementor-widget-spacer.elementor-widget-empty{position:relative;min-height:22px;min-width:22px}.e-con-inner>.elementor-widget-spacer.elementor-widget-empty .elementor-widget-empty-icon,.e-con>.elementor-widget-spacer.elementor-widget-empty .elementor-widget-empty-icon{position:absolute;top:0;bottom:0;left:0;right:0;margin:auto;padding:0;width:22px;height:22px}<\/style>\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-aae9454 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"aae9454\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-9f99a25\" data-id=\"9f99a25\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2026b62 elementor-widget elementor-widget-text-editor\" data-id=\"2026b62\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\tAu fur et \u00e0 mesure de l\u2019\u00e9volution du RMTC, de plus en plus de fonctions et d\u2019am\u00e9liorations viennent enrichir la plateforme. Elle a d\u00e9j\u00e0 \u00e9t\u00e9 traduite en anglais, fran\u00e7ais, espagnol et russe pour \u00e9largir son accessibilit\u00e9 et am\u00e9liorer l\u2019exp\u00e9rience utilisateur. Lors du Congr\u00e8s mondial 2022, la FMH a lanc\u00e9 <a href=\"https:\/\/wfh.org\/fr\/introducing-the-mywbdr-mobile-app-a-new-wbdr-data-collection-tool\/\" target=\"_blank\" rel=\"noopener\">myWBDR<\/a>, une nouvelle application mobile pour les patient\u00b7es qui propose un outil de suivi de sant\u00e9 ainsi qu\u2019un journal aux personnes atteintes d\u2019h\u00e9mophilie, et des donn\u00e9es finales rapport\u00e9es par les patient\u00b7es aux \u00e9quipes de recherche et aux clinicien\u00b7nes. L\u2019application est disponible en sept langues.\r\n\r\nPour en savoir plus sur l\u2019utilisation des donn\u00e9es du RMTC par les \u00e9quipes de recherche, les prestataires de soin et les d\u00e9fenseur\u00b7es des patient\u00b7es pour am\u00e9liorer les soins aux personnes atteintes d\u2019un trouble de la coagulation, <a href=\"https:\/\/wfh.org\/fr\/collecte-de-donnees\/#wbdr\" target=\"_blank\" rel=\"noopener\">cliquez ici<\/a>.\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-ebf3f0a\" data-id=\"ebf3f0a\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-763e797 elementor-widget elementor-widget-image\" data-id=\"763e797\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-MyWBDR-Onesheet2022-EN-F.pdf\" target=\"_blank\">\n\t\t\t\t\t\t\t<img decoding=\"async\" width=\"612\" height=\"792\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-MyWBDR-Onesheet2022-FR-F-THUMBNAIL.jpg\" class=\"attachment-full size-full wp-image-38827\" alt=\"\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-MyWBDR-Onesheet2022-FR-F-THUMBNAIL.jpg 612w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-MyWBDR-Onesheet2022-FR-F-THUMBNAIL-83x108.jpg 83w\" sizes=\"(max-width: 612px) 100vw, 612px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-a35186f elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"a35186f\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-9a655b6\" data-id=\"9a655b6\" data-element_type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b556777 elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"b556777\" data-element_type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<link rel=\"stylesheet\" href=\"https:\/\/wfh.org\/wp-content\/plugins\/elementor\/assets\/css\/widget-icon-list.min.css\">\t\t<ul class=\"elementor-icon-list-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-chevron-right\"><\/i>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Nombre de personnes atteintes d\u2019h\u00e9mophilie enregistr\u00e9es : 10 187<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-chevron-right\"><\/i>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Nombre de CTH : 108<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-chevron-right\"><\/i>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Nombre de pays : 39<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-163f541 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"163f541\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-c9b77c3\" data-id=\"c9b77c3\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c5a6283 elementor-widget elementor-widget-text-editor\" data-id=\"c5a6283\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\tLa FMH tient \u00e0 remercier toutes les personnes atteintes d\u2019h\u00e9mophilie et leurs aidant\u00b7es, les \u00e9quipes des CTH, les organisations nationales membres (ONM) et les b\u00e9n\u00e9voles expert\u00b7es de rester notre moteur, de contribuer au RMTC et de le soutenir pour qu\u2019il soit une ressource mondiale pour le plaidoyer, la recherche et l\u2019autonomisation des personnes atteintes d\u2019h\u00e9mophilie.\r\n\r\nSi votre CTH souhaite rejoindre le RMTC, veuillez nous contacter \u00e0 l\u2019adresse <a href=\"mailto:WBDR@wfh.org\" target=\"_blank\" rel=\"noopener\">WBDR@wfh.org<\/a>\r\n\r\nLisez le dernier rapport sur les donn\u00e9es du RMTC <a href=\"https:\/\/www1.wfh.org\/publications\/files\/pdf-2245.pdf\" target=\"_blank\" rel=\"noopener\">ici<\/a> (en anglais).\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-4c18428\" data-id=\"4c18428\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3b87076 elementor-widget elementor-widget-image\" data-id=\"3b87076\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www1.wfh.org\/publications\/files\/pdf-2245.pdf\" target=\"_blank\">\n\t\t\t\t\t\t\t<img decoding=\"async\" width=\"400\" height=\"518\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-thumbnail.jpg\" class=\"attachment-full size-full wp-image-38657\" alt=\"\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-thumbnail.jpg 400w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-thumbnail-83x108.jpg 83w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>En 2018, la FMH a lanc\u00e9 le Registre mondial des troubles de la coagulation, offrant une solution simple aux centres de traitement de l\u2019h\u00e9mophilie (CTH) pour collecter des donn\u00e9es. Le RMTC est con\u00e7u pour collecter des donn\u00e9es cliniques standardis\u00e9es sur les personnes atteintes d\u2019h\u00e9mophilie, provenant d\u2019un large r\u00e9seau de CTH du monde entier. La FMH est ravie d\u2019annoncer que 10 000 personnes atteintes d\u2019h\u00e9mophilie (pour l\u2019instant !) ont particip\u00e9 au RMTC, et ont ainsi jou\u00e9 un r\u00f4le majeur dans l\u2019am\u00e9lioration des soins aux patient\u00b7es dans le monde.<\/p>\n","protected":false},"author":13,"featured_media":38814,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[177,114,69],"tags":[],"search-category":[319],"class_list":["post-38972","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualite-medicale","category-education-fr","category-plaidoyer","search-category-article-fr"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Chiffre marquant pour le RMTC : 10 000 personnes enregistr\u00e9es ! | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Chiffre marquant pour le RMTC : 10 000 personnes enregistr\u00e9es !\" \/>\n<meta property=\"og:description\" content=\"En 2018, la FMH a lanc\u00e9 le Registre mondial des troubles de la coagulation, offrant une solution simple aux centres de traitement de l\u2019h\u00e9mophilie (CTH) pour collecter des donn\u00e9es. Le RMTC est con\u00e7u pour collecter des donn\u00e9es cliniques standardis\u00e9es sur les personnes atteintes d\u2019h\u00e9mophilie, provenant d\u2019un large r\u00e9seau de CTH du monde entier. La FMH est ravie d\u2019annoncer que 10 000 personnes atteintes d\u2019h\u00e9mophilie (pour l\u2019instant !) ont particip\u00e9 au RMTC, et ont ainsi jou\u00e9 un r\u00f4le majeur dans l\u2019am\u00e9lioration des soins aux patient\u00b7es dans le monde.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2022-06-16T12:00:20+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-11T12:20:54+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-10K-header-FR.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/f57928f0dd0ca8906b81082895256d8f\"},\"headline\":\"Chiffre marquant pour le RMTC : 10 000 personnes enregistr\u00e9es !\",\"datePublished\":\"2022-06-16T12:00:20+00:00\",\"dateModified\":\"2024-04-11T12:20:54+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/\"},\"wordCount\":509,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-10K-header-FR.png\",\"articleSection\":[\"Actualit\u00e9 m\u00e9dicale\",\"\u00c9ducation\",\"Plaidoyer\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/\",\"name\":\"Chiffre marquant pour le RMTC : 10 000 personnes enregistr\u00e9es ! | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-10K-header-FR.png\",\"datePublished\":\"2022-06-16T12:00:20+00:00\",\"dateModified\":\"2024-04-11T12:20:54+00:00\",\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/#primaryimage\",\"url\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-10K-header-FR.png\",\"contentUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-10K-header-FR.png\",\"width\":1200,\"height\":627},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/wfh.org\/fr\/#website\",\"url\":\"https:\/\/wfh.org\/fr\/\",\"name\":\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\",\"description\":\"WFH - World Federation of Hemophilia\",\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/wfh.org\/fr\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/wfh.org\/fr\/#organization\",\"name\":\"World Federation of Hemophilia\",\"url\":\"https:\/\/wfh.org\/fr\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/10\/WFH-LOGO-ENGLISH.svg\",\"contentUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/10\/WFH-LOGO-ENGLISH.svg\",\"width\":210,\"height\":63,\"caption\":\"World Federation of Hemophilia\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/wfhemophilia\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/f57928f0dd0ca8906b81082895256d8f\",\"name\":\"Mitch Semienchuk\",\"sameAs\":[\"analytics\"]}]}<\/script>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"Chiffre marquant pour le RMTC : 10 000 personnes enregistr\u00e9es ! | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/","og_locale":"fr_FR","og_type":"article","og_title":"Chiffre marquant pour le RMTC : 10 000 personnes enregistr\u00e9es !","og_description":"En 2018, la FMH a lanc\u00e9 le Registre mondial des troubles de la coagulation, offrant une solution simple aux centres de traitement de l\u2019h\u00e9mophilie (CTH) pour collecter des donn\u00e9es. Le RMTC est con\u00e7u pour collecter des donn\u00e9es cliniques standardis\u00e9es sur les personnes atteintes d\u2019h\u00e9mophilie, provenant d\u2019un large r\u00e9seau de CTH du monde entier. La FMH est ravie d\u2019annoncer que 10 000 personnes atteintes d\u2019h\u00e9mophilie (pour l\u2019instant !) ont particip\u00e9 au RMTC, et ont ainsi jou\u00e9 un r\u00f4le majeur dans l\u2019am\u00e9lioration des soins aux patient\u00b7es dans le monde.","og_url":"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/","og_site_name":"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie","article_publisher":"https:\/\/www.facebook.com\/wfhemophilia\/","article_published_time":"2022-06-16T12:00:20+00:00","article_modified_time":"2024-04-11T12:20:54+00:00","og_image":[{"width":1200,"height":627,"url":"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-10K-header-FR.png","type":"image\/png"}],"author":"Mitch Semienchuk","twitter_card":"summary_large_image","twitter_misc":{"\u00c9crit par":"Mitch Semienchuk","Dur\u00e9e de lecture estim\u00e9e":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/#article","isPartOf":{"@id":"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/"},"author":{"name":"Mitch Semienchuk","@id":"https:\/\/wfh.org\/fr\/#\/schema\/person\/f57928f0dd0ca8906b81082895256d8f"},"headline":"Chiffre marquant pour le RMTC : 10 000 personnes enregistr\u00e9es !","datePublished":"2022-06-16T12:00:20+00:00","dateModified":"2024-04-11T12:20:54+00:00","mainEntityOfPage":{"@id":"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/"},"wordCount":509,"publisher":{"@id":"https:\/\/wfh.org\/fr\/#organization"},"image":{"@id":"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/#primaryimage"},"thumbnailUrl":"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-10K-header-FR.png","articleSection":["Actualit\u00e9 m\u00e9dicale","\u00c9ducation","Plaidoyer"],"inLanguage":"fr-FR"},{"@type":"WebPage","@id":"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/","url":"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/","name":"Chiffre marquant pour le RMTC : 10 000 personnes enregistr\u00e9es ! | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie","isPartOf":{"@id":"https:\/\/wfh.org\/fr\/#website"},"primaryImageOfPage":{"@id":"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/#primaryimage"},"image":{"@id":"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/#primaryimage"},"thumbnailUrl":"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-10K-header-FR.png","datePublished":"2022-06-16T12:00:20+00:00","dateModified":"2024-04-11T12:20:54+00:00","inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/"]}]},{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/wfh.org\/fr\/article\/chiffre-marquant-pour-le-rmtc-10-000-personnes-enregistrees\/#primaryimage","url":"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-10K-header-FR.png","contentUrl":"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-10K-header-FR.png","width":1200,"height":627},{"@type":"WebSite","@id":"https:\/\/wfh.org\/fr\/#website","url":"https:\/\/wfh.org\/fr\/","name":"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie","description":"WFH - World Federation of Hemophilia","publisher":{"@id":"https:\/\/wfh.org\/fr\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/wfh.org\/fr\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Organization","@id":"https:\/\/wfh.org\/fr\/#organization","name":"World Federation of Hemophilia","url":"https:\/\/wfh.org\/fr\/","logo":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/wfh.org\/fr\/#\/schema\/logo\/image\/","url":"https:\/\/wfh.org\/wp-content\/uploads\/2021\/10\/WFH-LOGO-ENGLISH.svg","contentUrl":"https:\/\/wfh.org\/wp-content\/uploads\/2021\/10\/WFH-LOGO-ENGLISH.svg","width":210,"height":63,"caption":"World Federation of Hemophilia"},"image":{"@id":"https:\/\/wfh.org\/fr\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/wfhemophilia\/"]},{"@type":"Person","@id":"https:\/\/wfh.org\/fr\/#\/schema\/person\/f57928f0dd0ca8906b81082895256d8f","name":"Mitch Semienchuk","sameAs":["analytics"]}]}},"_links":{"self":[{"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/posts\/38972"}],"collection":[{"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/comments?post=38972"}],"version-history":[{"count":6,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/posts\/38972\/revisions"}],"predecessor-version":[{"id":43119,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/posts\/38972\/revisions\/43119"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/media\/38814"}],"wp:attachment":[{"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/media?parent=38972"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/categories?post=38972"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/tags?post=38972"},{"taxonomy":"search-category","embeddable":true,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/search-category?post=38972"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}