{"id":38750,"date":"2022-06-06T07:00:17","date_gmt":"2022-06-06T11:00:17","guid":{"rendered":"https:\/\/wfh.org\/publication-du-rapport-2021-sur-les-donnees-du-rmtc\/"},"modified":"2024-04-11T08:31:19","modified_gmt":"2024-04-11T12:31:19","slug":"publication-du-rapport-2021-sur-les-donnees-du-rmtc","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/publication-du-rapport-2021-sur-les-donnees-du-rmtc\/","title":{"rendered":"Publication du rapport 2021 sur les donn\u00e9es du RMTC"},"content":{"rendered":"\t\t
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\n\t\t\t\t\t\t\t\t\tLe RMTC vise \u00e0 suivre le statut des soins aux personnes atteintes d\u2019h\u00e9mophilie, \u00e0 souligner les disparit\u00e9s de soins, et \u00e0 soutenir de fa\u00e7on empirique les prises de d\u00e9cision et le d\u00e9veloppement de politiques pour l\u2019am\u00e9lioration des soins de l\u2019h\u00e9mophilie. Les donn\u00e9es analys\u00e9es dans ce rapport \u2013 disponible en t\u00e9l\u00e9chargement ici <\/a>\u00a0\u2013 d\u00e9montrent que les personnes atteintes d\u2019h\u00e9mophilie continuent \u00e0 \u00eatre diagnostiqu\u00e9es plus tardivement dans les pays \u00e0 revenu faible et interm\u00e9diaire que dans ceux \u00e0 revenu plus \u00e9lev\u00e9. Un diagnostic plus tardif donne de mauvais r\u00e9sultats de sant\u00e9 et une moins bonne qualit\u00e9 de vie. Comme soulign\u00e9 dans la 3e<\/sup> \u00e9dition des Recommandations de la FMH pour la prise en charge de l\u2019h\u00e9mophilie<\/a>, la prophylaxie est le standard primaire de soins. Pourtant, les donn\u00e9es du RMTC montrent que l\u2019utilisation de la prophylaxie et l\u2019acc\u00e8s \u00e0 celle-ci restent beaucoup plus restreints dans les pays \u00e0 faible revenu et revenu interm\u00e9diaire. Ces donn\u00e9es cliniques concr\u00e8tes peuvent constituer des outils pr\u00e9cieux pour la recherche et des actions de plaidoyer efficaces, visant \u00e0 am\u00e9liorer la qualit\u00e9 des soins propos\u00e9s aux patient\u00b7es.\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tDans les prochains mois, la plateforme de collecte des donn\u00e9es du RMTC sera disponible en fran\u00e7ais, espagnol et russe, la rendant ainsi beaucoup plus accessible dans le monde entier. Cette mise \u00e0 jour facilitera le recueil de donn\u00e9es dans de nombreux centres de traitement de l\u2019h\u00e9mophilie (CTH) et rendra aussi les donn\u00e9es plus repr\u00e9sentatives.\r\n\r\nLa FMH tient \u00e0 remercier les CTH et les personnes atteintes d\u2019h\u00e9mophilie pour leur participation, ainsi que ses soci\u00e9t\u00e9s partenaires pour leur soutien dans cet important projet. Pour en savoir plus sur le Registre mondial des troubles de la coagulation (RMTC) et les programmes connexes (comme le Programme d\u2019int\u00e9gration des donn\u00e9es, le Programme de soutien \u00e0 la recherche et le Programme de financement des CTH), cliquez ici<\/a>. Pour lire le Rapport 2021 sur les donn\u00e9es du RMTC, cliquez ici<\/a>.\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Le Rapport 2021 sur les donn\u00e9es du Registre mondial des troubles de la coagulation (RMTC) de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) a \u00e9t\u00e9 publi\u00e9. Le RMTC, registre mondial d\u00e9di\u00e9 aux personnes atteintes d\u2019h\u00e9mophilie, continue de s\u2019\u00e9largir. Le rapport de cette ann\u00e9e comprend des donn\u00e9es sur 9 414 personnes atteintes d\u2019h\u00e9mophilie provenant de 104 centres de traitement de l\u2019h\u00e9mophilie situ\u00e9s dans 37 pays, repr\u00e9sentant toutes les r\u00e9gions du monde.<\/p>\n","protected":false},"author":13,"featured_media":38653,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[177,114,205],"tags":[],"search-category":[85],"class_list":["post-38750","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualite-medicale","category-education-fr","category-recherche-et-collecte-de-donnees","search-category-article"],"yoast_head":"\nPublication du rapport 2021 sur les donn\u00e9es du RMTC | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/publication-du-rapport-2021-sur-les-donnees-du-rmtc\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Publication du rapport 2021 sur les donn\u00e9es du RMTC\" \/>\n<meta property=\"og:description\" content=\"Le Rapport 2021 sur les donn\u00e9es du Registre mondial des troubles de la coagulation (RMTC) de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) a \u00e9t\u00e9 publi\u00e9. Le RMTC, registre mondial d\u00e9di\u00e9 aux personnes atteintes d\u2019h\u00e9mophilie, continue de s\u2019\u00e9largir. Le rapport de cette ann\u00e9e comprend des donn\u00e9es sur 9 414 personnes atteintes d\u2019h\u00e9mophilie provenant de 104 centres de traitement de l\u2019h\u00e9mophilie situ\u00e9s dans 37 pays, repr\u00e9sentant toutes les r\u00e9gions du monde.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/publication-du-rapport-2021-sur-les-donnees-du-rmtc\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2022-06-06T11:00:17+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-11T12:31:19+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-header2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"700\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/publication-du-rapport-2021-sur-les-donnees-du-rmtc\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/publication-du-rapport-2021-sur-les-donnees-du-rmtc\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"Publication du rapport 2021 sur les donn\u00e9es du RMTC\",\"datePublished\":\"2022-06-06T11:00:17+00:00\",\"dateModified\":\"2024-04-11T12:31:19+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/publication-du-rapport-2021-sur-les-donnees-du-rmtc\/\"},\"wordCount\":353,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/publication-du-rapport-2021-sur-les-donnees-du-rmtc\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-header2.jpg\",\"articleSection\":[\"Actualit\u00e9 m\u00e9dicale\",\"\u00c9ducation\",\"Recherche et collecte de donn\u00e9es\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/publication-du-rapport-2021-sur-les-donnees-du-rmtc\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/publication-du-rapport-2021-sur-les-donnees-du-rmtc\/\",\"name\":\"Publication du rapport 2021 sur les donn\u00e9es du RMTC | FMH - 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