{"id":37481,"date":"2022-05-10T19:01:56","date_gmt":"2022-05-10T23:01:56","guid":{"rendered":"https:\/\/wfh.org\/hemophilia-gene-therapy-update-on-new-country-initiatives\/"},"modified":"2024-04-11T08:34:41","modified_gmt":"2024-04-11T12:34:41","slug":"hemophilia-gene-therapy-update-on-new-country-initiatives","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/hemophilia-gene-therapy-update-on-new-country-initiatives\/","title":{"rendered":"Hemophilia gene therapy: update on new country initiatives"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"37481\" class=\"elementor elementor-37481 elementor-37467\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-ec22ba8 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"ec22ba8\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-f815a93\" data-id=\"f815a93\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-56d2ee8 elementor-widget elementor-widget-text-editor\" data-id=\"56d2ee8\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>\u201cSt-Jude initiative in low and middle income countries\u201d was given by Ulrike Reiss, Director at the Hemophilia Treatment Center, St. Jude Children&#8217;s Research Hospital, U.S.A. He found that a successful trial, implementation outcomes, and health outcomes, and cost-effectiveness findings will accelerate equitable access to hemophilia gene therapy.<\/p>\n<p>Lei Zhang, Professor and Vice director of Thrombosis &amp;Hemostasis Center at the Institute of Hematology and Blood Diseases Hospital, Tianjin, China, gave his talk, \u201cGene therapy in China\u201d. He found that the first AAV-based liver-tropic gene therapy trail in for Chinese hemophilia B patients are effective and safe.<\/p>\n<p>\u201cGene therapy in Japan\u201d was given by Tsukasa Ohmori, Doctor at the Jichi Medical University, Tochigi, Japan. Ohmori said that in Japan, 32% of people with hemophilia want gene therapy while 49% are unsure. The expectations of gene therapy were on its effectiveness, on its pervasiveness (how many patients have been treated), on the duration of the effectiveness of the treatment, and on the cost of the treatment. Progress has been positive, with support from the Japan Agency for Medical Research and Development (AMED).<\/p>\n<p>\u201cGene therapy in India\u201d was delivered by Alok Srivastava, Professor at the Department of Haematology, Christian Medical College, Vellore, India. He said his study found that lentiviral vector-based gene therapy for hemophilia offered new paradigm evolving for gene therapy of hemophilia A\u2014different in many ways from AAV based approach. He also found that the ex-vivo lentiviral stem cell-based approach is much more invasive but offers the possibility of treating all patients and at early age. He noted that careful assessment needed of the feasibility, safety and efficacy of this approach.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a27a401 elementor-widget elementor-widget-spacer\" data-id=\"a27a401\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-column .elementor-spacer-inner{height:var(--spacer-size)}.e-con{--container-widget-width:100%}.e-con-inner>.elementor-widget-spacer,.e-con>.elementor-widget-spacer{width:var(--container-widget-width,var(--spacer-size));--align-self:var(--container-widget-align-self,initial);--flex-shrink:0}.e-con-inner>.elementor-widget-spacer>.elementor-widget-container,.e-con>.elementor-widget-spacer>.elementor-widget-container{height:100%;width:100%}.e-con-inner>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer,.e-con>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer{height:100%}.e-con-inner>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer>.elementor-spacer-inner,.e-con>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer>.elementor-spacer-inner{height:var(--container-widget-height,var(--spacer-size))}.e-con-inner>.elementor-widget-spacer.elementor-widget-empty,.e-con>.elementor-widget-spacer.elementor-widget-empty{position:relative;min-height:22px;min-width:22px}.e-con-inner>.elementor-widget-spacer.elementor-widget-empty .elementor-widget-empty-icon,.e-con>.elementor-widget-spacer.elementor-widget-empty .elementor-widget-empty-icon{position:absolute;top:0;bottom:0;left:0;right:0;margin:auto;padding:0;width:22px;height:22px}<\/style>\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-7d60096 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"7d60096\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;gradient&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-5430468\" data-id=\"5430468\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-54ca6ef elementor-widget elementor-widget-heading\" data-id=\"54ca6ef\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}<\/style><h3 class=\"elementor-heading-title elementor-size-default\">WFH 2022 World Congress<\/h3>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-39d0927 elementor-widget elementor-widget-heading\" data-id=\"39d0927\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<span class=\"elementor-heading-title elementor-size-default\">May 8 to 11, 2022<\/span>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e7bc151 elementor-widget elementor-widget-spacer\" data-id=\"e7bc151\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1764959 elementor-widget elementor-widget-text-editor\" data-id=\"1764959\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p><a href=\"https:\/\/congress.wfh.org\/registration\/register-now\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Register now!<\/strong><\/a><\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Today, \u201cHemophilia gene therapy: update on new country initiatives\u201d was held at the WFH 2022 World Congress in Montreal, Canada. The talk was chaired by Alok Srivastava, Professor at the Department of Hematology \u2013 Christian Medical College, Vellore, India, and covered gene therapy developments at the country level. Gene therapy is an exciting new medical avenue that could potentially offer a cure for hemophilia.<\/p>\n","protected":false},"author":13,"featured_media":37469,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[187],"tags":[],"search-category":[85],"class_list":["post-37481","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-congres-mondiale-de-la-fmh","search-category-article"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Hemophilia gene therapy: update on new country initiatives | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/hemophilia-gene-therapy-update-on-new-country-initiatives\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Hemophilia gene therapy: update on new country initiatives\" \/>\n<meta property=\"og:description\" content=\"Today, \u201cHemophilia gene therapy: update on new country initiatives\u201d was held at the WFH 2022 World Congress in Montreal, Canada. The talk was chaired by Alok Srivastava, Professor at the Department of Hematology \u2013 Christian Medical College, Vellore, India, and covered gene therapy developments at the country level. Gene therapy is an exciting new medical avenue that could potentially offer a cure for hemophilia.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/hemophilia-gene-therapy-update-on-new-country-initiatives\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2022-05-10T23:01:56+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-11T12:34:41+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/05\/country-header.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"700\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/hemophilia-gene-therapy-update-on-new-country-initiatives\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/hemophilia-gene-therapy-update-on-new-country-initiatives\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/f57928f0dd0ca8906b81082895256d8f\"},\"headline\":\"Hemophilia gene therapy: update on new country initiatives\",\"datePublished\":\"2022-05-10T23:01:56+00:00\",\"dateModified\":\"2024-04-11T12:34:41+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/hemophilia-gene-therapy-update-on-new-country-initiatives\/\"},\"wordCount\":286,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/hemophilia-gene-therapy-update-on-new-country-initiatives\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/05\/country-header.jpg\",\"articleSection\":[\"Congr\u00e8s mondiale de la FMH\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/hemophilia-gene-therapy-update-on-new-country-initiatives\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/hemophilia-gene-therapy-update-on-new-country-initiatives\/\",\"name\":\"Hemophilia gene therapy: update on new country initiatives | FMH - 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