{"id":35288,"date":"2019-02-06T09:00:28","date_gmt":"2019-02-06T14:00:28","guid":{"rendered":"https:\/\/wfh.org\/roche-rejoint-le-programme-daide-humanitaire-de-la-fmh\/"},"modified":"2024-04-22T14:39:15","modified_gmt":"2024-04-22T18:39:15","slug":"roche-rejoint-le-programme-daide-humanitaire-de-la-fmh","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/roche-rejoint-le-programme-daide-humanitaire-de-la-fmh\/","title":{"rendered":"Roche rejoint le Programme d\u2019aide humanitaire de la FMH"},"content":{"rendered":"\t\t
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Le Programme d\u2019aide d\u2019humanitaire de la FMH vise \u00e0 am\u00e9liorer l\u2019acc\u00e8s aux soins et aux traitements des personnes atteintes d\u2019une maladie h\u00e9morragique rare h\u00e9r\u00e9ditaire dans les pays en voie de d\u00e9veloppement. Il s\u2019agit d\u2019une initiative fondamentale pour la communaut\u00e9 concern\u00e9e par les troubles de la coagulation. La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) et la\u00a0FMH USA<\/a>\u00a0ont aujourd\u2019hui le plaisir d\u2019annoncer la participation de Roche au\u00a0Programme d\u2019aide humanitaire de la FMH<\/a>.<\/p>\n

Le groupe Roche s\u2019engage \u00e0 proc\u00e9der \u00e0 une donation d\u2019emicizumab, traitement prophylactique de l\u2019h\u00e9mophilie\u00a0A, et \u00e0 financer la formation aux soins int\u00e9gr\u00e9s dans le cadre du Programme d\u2019aide humanitaire, afin de veiller \u00e0 ce que les infrastructures locales et l\u2019expertise des \u00e9quipes m\u00e9dicales soient adapt\u00e9es \u00e0 une utilisation la plus efficace possible des facteurs donn\u00e9s.<\/p>\n

La donation permettra de fournir un traitement prophylactique avec l\u2019emicizumab \u00e0 un millier de personnes atteintes d\u2019h\u00e9mophilie\u00a0A dans les pays en voie de d\u00e9veloppement sur une dur\u00e9e de cinq ans. Le traitement cible en priorit\u00e9 les patients qui en ont le plus besoin, notamment ceux ayant d\u00e9velopp\u00e9 des inhibiteurs et des enfants sans inhibiteurs au facteur\u00a0VIII. La donation de Roche donnera acc\u00e8s \u00e0 une prophylaxie, prise en charge optimale en pr\u00e9vention des saignements en cas d\u2019h\u00e9mophilie\u00a0A, dans les pays en voie de d\u00e9veloppement, ce qui aura une incidence majeure au sein de la communaut\u00e9 concern\u00e9e par les troubles de la coagulation dans les pays concern\u00e9s.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Gr\u00e2ce \u00e0 la donation de Roche, un nombre significatif de personnes atteintes d\u2019h\u00e9mophilie A pourra b\u00e9n\u00e9ficier d\u2019une prise en charge prophylactique par l\u2019interm\u00e9diaire du Programme d\u2019aide humanitaire de la FMH. Il est important de souligner que cette donation va \u00e9galement permettre d\u2019offrir une alternative th\u00e9rapeutique aux h\u00e9mophiles A ayant d\u00e9velopp\u00e9 des inhibiteurs qui, jusqu\u2019\u00e0 pr\u00e9sent, n\u2019avait acc\u00e8s \u00e0 aucun traitement ou \u00e0 une offre de soins limit\u00e9e. L\u2019acc\u00e8s renforc\u00e9 \u00e0 une prophylaxie peut faire une grande diff\u00e9rence dans des pays o\u00f9 l\u2019h\u00e9mophilie A reste sous diagnostiqu\u00e9e et non trait\u00e9e.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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- Alain Weill, Pr\u00e9sident de la FMH<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Cette donation offrira \u00e0 nombre de ceux atteints d\u2019h\u00e9mophilie A dans les pays en voie de d\u00e9veloppement un acc\u00e8s sans pr\u00e9c\u00e9dent aux traitements. La FMH souhaite la bienvenue \u00e0 Roche en tant que Partenaire du Programme d\u2019aide humanitaire, \u00e0 l\u2019instar de Bioverativ, filiale de Sanofi, et Sobi, depuis 2015, et de Grifols, CSL Behring et GC Pharma.<\/p>\n

Pour lire l\u2019int\u00e9gralit\u00e9 du communiqu\u00e9 de presse, veuillez cliquer\u00a0ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patients un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi Genzyme et Sobi, nos Donateurs visionnaires fondateurs ; de Roche et Bayer, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de nos Donateurs contributeurs CSL Behring et Takeda. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) et la FMH USA ont aujourd\u2019hui le plaisir d\u2019annoncer la participation de Roche au Programme d\u2019aide humanitaire de la FMH.<\/p>\n","protected":false},"author":3,"featured_media":35250,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[184],"tags":[],"search-category":[85],"class_list":["post-35288","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nRoche rejoint le Programme d\u2019aide humanitaire de la FMH | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/roche-rejoint-le-programme-daide-humanitaire-de-la-fmh\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Roche rejoint le Programme d\u2019aide humanitaire de la FMH\" \/>\n<meta property=\"og:description\" content=\"La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) et la FMH USA ont aujourd\u2019hui le plaisir d\u2019annoncer la participation de Roche au Programme d\u2019aide humanitaire de la FMH.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/roche-rejoint-le-programme-daide-humanitaire-de-la-fmh\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - 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