{"id":32729,"date":"2022-03-18T12:15:40","date_gmt":"2022-03-18T16:15:40","guid":{"rendered":"https:\/\/wfh.org\/fonds-commemoratif-susan-skinner-permettre-aux-femmes-du-monde-entier-detre-plus-autonomes\/"},"modified":"2024-04-12T14:28:07","modified_gmt":"2024-04-12T18:28:07","slug":"fonds-commemoratif-susan-skinner-permettre-aux-femmes-du-monde-entier-detre-plus-autonomes","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/fonds-commemoratif-susan-skinner-permettre-aux-femmes-du-monde-entier-detre-plus-autonomes\/","title":{"rendered":"Fonds comm\u00e9moratif Susan Skinner : permettre aux femmes du monde entier d\u2019\u00eatre plus autonomes"},"content":{"rendered":"\t\t
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L\u2019objectif du programme de bourses du Fonds comm\u00e9moratif Susan Skinner<\/a> de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) est de promouvoir l\u2019engagement des femmes et des filles au sein de la communaut\u00e9 des troubles de la coagulation en proposant des opportunit\u00e9s d\u2019\u00e9ducation, de formation et de r\u00e9seautage. Mamolibeli Mohlaoli, l\u2019une des b\u00e9n\u00e9ficiaires de cette ann\u00e9e, vit au Lesotho, un pays montagneux et enclav\u00e9 au milieu de l\u2019Afrique du Sud, o\u00f9 l\u2019acc\u00e8s au traitement, aux soins et au diagnostic est limit\u00e9. Il y a vingt-deux ans, lorsqu\u2019elle a accouch\u00e9 de son fils, elle a esp\u00e9r\u00e9 qu\u2019il ne subirait pas le m\u00eame sort que les nombreux membres de sa famille d\u00e9c\u00e9d\u00e9s d\u2019un trouble de la coagulation.\u00a0\u00ab\u00a0J\u2019\u00e9tais d\u00e9termin\u00e9e \u00e0 candidater [\u00e0 cette bourse], car je veux apprendre d\u2019autres femmes qui ont surmont\u00e9 ces difficult\u00e9s, apprendre \u00e0 r\u00e9fl\u00e9chir diff\u00e9remment, et aider ma communaut\u00e9 pour que d\u2019autres voient leurs enfants vivre.\u00a0\u00bb Mme Mohlaoli est l\u2019une des premi\u00e8res b\u00e9n\u00e9ficiaires \u00e0 \u00eatre \u00e2g\u00e9e de plus de 30 ans.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Je suis ravie d\u2019avoir l\u2019occasion d\u2019apprendre d\u2019autres femmes du monde entier, de cr\u00e9er des liens avec elles et de pouvoir peut-\u00eatre collaborer avec elles \u00e0 l\u2019avenir. <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Shellye Horowitz, 48 ans (\u00c9tats-Unis), b\u00e9n\u00e9ficiaire d\u2019une bourse du Fonds comm\u00e9moratif Susan Skinner<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Dans le cadre de l\u2019attribution de leur bourse, les b\u00e9n\u00e9ficiaires pourront assister au Congr\u00e8s mondial de la FMH \u00e0 Montr\u00e9al en mai prochain. Elles y apprendront l\u2019autonomie gr\u00e2ce \u00e0 des ateliers de renforcement de comp\u00e9tences, \u00e0 des opportunit\u00e9s d\u2019interaction avec des responsables de la communaut\u00e9 mondiale, et en approfondissant leur compr\u00e9hension des bonnes pratiques actuellement en vigueur dans les soins des troubles de la coagulation.<\/p>\n

\u00ab\u00a0Lorsque j\u2019ai appris que mon enfant \u00e9tait atteint d\u2019h\u00e9mophilie, je me suis sentie tr\u00e8s seule et d\u00e9munie\u2026 Savoir que je peux \u00e9changer avec d\u2019autres femmes qui vivent des exp\u00e9riences similaires, [cela me donne confiance]\u00a0\u00bb, souligne Esra\u2019a Hussein, 28 ans, originaire de Jordanie. Mme Hussein est l\u2019une des nombreuses femmes dans le monde ayant du mal \u00e0 trouver des informations sur les troubles de la coagulation.\u00a0\u00ab\u00a0En tant que femme et travailleuse sociale\u00a0\u00bb, d\u00e9clare-t-elle, \u00ab\u00a0je veux pouvoir cr\u00e9er un espace qui permettrait aux gens d\u2019avoir les informations n\u00e9cessaires pour se faire aider.\u00a0\u00bb<\/p>\n

Le programme de bourses du Fonds comm\u00e9moratif Susan Skinner rend hommage \u00e0 Susan Rose Skinner, enseignante, m\u00e8re et militante engag\u00e9e, qui \u00e9tait d\u00e9termin\u00e9e \u00e0 assurer \u00e0 ses deux fils un acc\u00e8s \u00e0 des traitements s\u00fbrs et efficaces. Son h\u00e9ritage perdure \u00e0 travers les 10 b\u00e9n\u00e9ficiaires les plus r\u00e9centes de la bourse qui porte son nom. Le Fonds porte la conviction de la FMH selon laquelle le lieu de naissance ne devrait pas conditionner l\u2019acc\u00e8s au diagnostic, au traitement et aux soins. Les disparit\u00e9s persistent pourtant, surtout pour les femmes et les filles, dont les difficult\u00e9s sont souvent ignor\u00e9es. \u00ab\u00a0Tout le monde m\u00e9rite de vivre pleinement sa vie, sans peur\u00a0\u00bb, explique Mme Mohlaoli. \u00ab\u00a0J\u2019esp\u00e8re rencontrer d\u2019autres femmes pour apprendre comment am\u00e9liorer la sensibilisation des personnes atteintes d\u2019h\u00e9mophilie au Lesotho.\u00a0\u00bb<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Pour nous aider \u00e0 amplifier les voix des femmes et des filles et former la prochaine g\u00e9n\u00e9ration de responsables de notre communaut\u00e9, faites un don d\u00e8s aujourd\u2019hui sur <\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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give.wfh.org\/fr<\/strong><\/a><\/h1>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

\u00ab Lorsque j\u2019ai re\u00e7u ma lettre d\u2019admission, j\u2019ai commenc\u00e9 \u00e0 crier \u201cSusan Skinner ! Susan Skinner !\u201d Mon mari ne comprenait pas ce qui se passait. Je n\u2019arrivais pas \u00e0 croire qu\u2019une femme du Lesotho puisse \u00eatre s\u00e9lectionn\u00e9e pour une opportunit\u00e9 si incroyable. \u00bb
\n\u2014Mamolibeli Mohlaoli, 45 ans (Lesotho), b\u00e9n\u00e9ficiaire d\u2019une bourse du Fonds comm\u00e9moratif Susan Skinner.<\/p>\n","protected":false},"author":13,"featured_media":31491,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[211,206],"tags":[],"search-category":[85],"class_list":["post-32729","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-femmes-et-filles-atteintes-dun-trouble-de-la-coagulation","category-ssmf-fr","search-category-article"],"yoast_head":"\nFonds comm\u00e9moratif Susan Skinner : permettre aux femmes du monde entier d\u2019\u00eatre plus autonomes | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/fonds-commemoratif-susan-skinner-permettre-aux-femmes-du-monde-entier-detre-plus-autonomes\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Fonds comm\u00e9moratif Susan Skinner : permettre aux femmes du monde entier d\u2019\u00eatre plus autonomes\" \/>\n<meta property=\"og:description\" content=\"\u00ab Lorsque j\u2019ai re\u00e7u ma lettre d\u2019admission, j\u2019ai commenc\u00e9 \u00e0 crier \u201cSusan Skinner ! 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