{"id":30406,"date":"2020-11-05T12:17:00","date_gmt":"2020-11-05T17:17:00","guid":{"rendered":"https:\/\/wfh.org\/le-rapport-sur-le-sondage-mondial-annuel-2019-est-disponible\/"},"modified":"2024-04-18T09:01:35","modified_gmt":"2024-04-18T13:01:35","slug":"le-rapport-sur-le-sondage-mondial-annuel-2019-est-disponible","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/le-rapport-sur-le-sondage-mondial-annuel-2019-est-disponible\/","title":{"rendered":"Le rapport sur le Sondage mondial annuel 2019 est disponible"},"content":{"rendered":"\t\t
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\r\n\r\nLe rapport sur le Sondage mondial annuel 2019 de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) est d\u00e9sormais disponible en ligne<\/a>. Il contient des donn\u00e9es mondiales d\u00e9mographiques et th\u00e9rapeutiques sur les personnes atteintes d\u2019h\u00e9mophilie, de la maladie de Willebrand, d\u2019autres d\u00e9ficiences rares en facteur ainsi que de troubles plaquettaires h\u00e9r\u00e9ditaires.\r\n\r\nLes organisations nationales membres (ONM) qui ont contribu\u00e9 au rapport ont d\u00fb faire face \u00e0 de nombreuses difficult\u00e9s dans la collecte des donn\u00e9es \u00e0 cause de la pand\u00e9mie de COVID-19. Le sondage pr\u00e9sente cependant un taux de r\u00e9ponse tr\u00e8s \u00e9lev\u00e9 de 82 %, avec des donn\u00e9es provenant de 115 pays ; Trinit\u00e9-et-Tobago ainsi que le Kowe\u00eft, nos nouveaux r\u00e9pondants, figurent dans cette enqu\u00eate.\r\n\r\n \r\n\r\nNOMBRE DE PAYS inclus dans cette enqu\u00eate<\/strong>\r\n\r\n<\/div>\r\n<\/div>\r\n<\/div>\r\n<\/div>\r\n<\/div>\r\n<\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tLe rapport contient des donn\u00e9es recueillies aupr\u00e8s de plus de 324 000 patient\u00b7es : 195 263 personnes atteintes d\u2019h\u00e9mophilie, 80 302 de la maladie de Willebrand et 49 083 d\u2019autres troubles rares de la coagulation.\r\n\r\n \r\n\r\nNOMBRE DE PATIENT\u00b7ES IDENTIFI\u00c9\u00b7ES Personnes atteintes d\u2019h\u00e9mophilie H\u00e9mophilie A H\u00e9mophilie B H\u00e9mophilie de type inconnu Maladie de Willebrand Autres troubles de la coagulation<\/strong>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tLes quantit\u00e9s m\u00e9dianes de facteur VIII et de facteur IX calcul\u00e9es par t\u00eate sont respectivement de 1,058 UI et 0,155 UI.\r\n\r\n \r\n\r\nQUANTIT\u00c9 DE FACTEUR VIII PAR T\u00caTE 1,058 UI (0,174 \u2013 4,312) M\u00e9diane (EI) (101 pays, 72 % de la population mondiale FACTEUR QUANTIT\u00c9 DE FACTEUR IX PAR T\u00caTE 0,155 UI (0,017 \u2013 0,673) M\u00e9diane (EI) (93 pays, 66 % de la population mondiale)<\/strong>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\tCette ann\u00e9e, le rapport propose \u00e9galement une nouvelle analyse illustrant les in\u00e9galit\u00e9s mondiales dans le diagnostic et l\u2019identification des patient\u00b7es. En utilisant les nouvelles donn\u00e9es sur la pr\u00e9valence de l\u2019h\u00e9mophilie, on a calcul\u00e9 le nombre de personnes atteintes d\u2019h\u00e9mophilie par pays et par r\u00e9gion, donnant ainsi le rapport le plus complet jamais pr\u00e9sent\u00e9. Les donn\u00e9es sont disponibles et la communaut\u00e9 des troubles de la coagulation peut les consulter, pour rappeler l\u2019importance d\u2019un diagnostic pr\u00e9coce.\r\n\r\nLe Sondage mondial annuel continue de s\u2019am\u00e9liorer et reste l\u2019une des principales ressources de la communaut\u00e9 des troubles de la coagulation. L\u2019utilisation de ces donn\u00e9es permet d\u2019am\u00e9liorer la recherche, les actions de plaidoyer et les d\u00e9cisions politiques dans le monde entier. La FMH est reconnaissante \u00e0 tous les pays qui ont particip\u00e9 au sondage et soutenu nos efforts pour recueillir des donn\u00e9es.\r\n\r\nPour consulter le Sondage mondial annuel 2019,\u00a0cliquez ici<\/a>. Des tableaux et graphiques compl\u00e9mentaires sont\u00a0disponibles en ligne<\/a>\u00a0pour vous fournir plus d\u2019informations sur les troubles de la coagulation. Pour en savoir plus sur le Sondage mondial annuel, contactez-nous \u00e0 l\u2019adresse\u00a0globalsurvey@wfh.org<\/a>.\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Le rapport sur le Sondage mondial annuel 2019 de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) est d\u00e9sormais disponible en ligne.<\/p>\n","protected":false},"author":3,"featured_media":30342,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[205,363],"tags":[],"search-category":[],"class_list":["post-30406","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-recherche-et-collecte-de-donnees","category-sondage-mondial-annuel-sma"],"yoast_head":"\nLe rapport sur le Sondage mondial annuel 2019 est disponible | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/le-rapport-sur-le-sondage-mondial-annuel-2019-est-disponible\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le rapport sur le Sondage mondial annuel 2019 est disponible\" \/>\n<meta property=\"og:description\" content=\"Le rapport sur le Sondage mondial annuel 2019 de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) est d\u00e9sormais disponible en ligne.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/le-rapport-sur-le-sondage-mondial-annuel-2019-est-disponible\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - 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