{"id":29558,"date":"2020-04-30T09:00:00","date_gmt":"2020-04-30T13:00:00","guid":{"rendered":"https:\/\/wfh.org\/journee-mondiale-de-lhemophilie-une-participation-mondiale\/"},"modified":"2026-03-19T09:00:39","modified_gmt":"2026-03-19T13:00:39","slug":"journee-mondiale-de-lhemophilie-une-participation-mondiale","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-une-participation-mondiale\/","title":{"rendered":"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie : une participation mondiale"},"content":{"rendered":"\t\t
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Le 17 avril 2020 \u00e9tait la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie, et le th\u00e8me \u00ab\u00a0Participez +\u00a0\u00bb a touch\u00e9 le monde entier malgr\u00e9 les difficult\u00e9s pos\u00e9es par la crise actuelle du COVID-19. Aux quatre coins du globe, les membres de la communaut\u00e9 des troubles de la coagulation ont pris (virtuellement) tr\u00e8s \u00e0 c\u0153ur la vision de la FMH du \u00ab\u00a0Traitement pour tous\u00a0\u00bb. Sur les r\u00e9seaux sociaux, ainsi que sur\u00a0worldhemophiliaday.org<\/a>, notre microsite d\u00e9di\u00e9 \u00e0 cette journ\u00e9e, des personnes d\u2019horizons tr\u00e8s divers ont partag\u00e9 leurs histoires avec une sinc\u00e9rit\u00e9 touchante.<\/p>\n

Les\u00a0pages Facebook<\/a>\u00a0et\u00a0LinkedIn<\/a>\u00a0de la FMH ainsi que\u00a0son fil Twitter<\/a>\u00a0ont vu d\u00e9filer des centaines de messages lors de cette journ\u00e9e. Le\u00a0microsite<\/a>\u00a0d\u00e9di\u00e9 \u00e0 la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie, con\u00e7u pour donner aux visiteurs des informations sur les troubles h\u00e9r\u00e9ditaires de la coagulation, mais aussi des outils de communication pour les aider \u00e0 cr\u00e9er leurs propres activit\u00e9s, a aussi connu une forte popularit\u00e9. Pr\u00e8s de 4\u00a0700 personnes ont visit\u00e9 la plateforme, et les pages du site ont \u00e9t\u00e9 vues plus de 11\u00a0000 fois. Plus de 300 histoires ont \u00e9t\u00e9 post\u00e9es sur la plateforme\u00a0: ce sont les exp\u00e9riences personnelles de personnes atteintes d\u2019un trouble de la coagulation, mais aussi parfois des r\u00e9cits de personnes de l\u2019entourage d\u2019un patient ou d\u2019une patiente.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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La Journ\u00e9e mondiale de l\u2019h\u00e9mophilie est une journ\u00e9e visant \u00e0 c\u00e9l\u00e9brer notre engagement. C\u2019est aussi le moment pour nous de rendre hommage aux professionnels de sant\u00e9 qui sont si d\u00e9vou\u00e9s \u00e0 notre cause. Ils sont l\u00e0 pour soutenir et souder notre communaut\u00e9, particuli\u00e8rement avec les difficult\u00e9s actuelles li\u00e9es \u00e0 la pand\u00e9mie de COVID-19.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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- Alain Baumann, Directeur g\u00e9n\u00e9ral de la FMH<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Nous avons \u00e9galement \u00e9tabli un \u00ab\u00a0record mondial\u00a0\u00bb cette ann\u00e9e. 98 monuments du monde entier ont particip\u00e9 \u00e0 la campagne \u00ab\u00a0\u00c9clairez tout en rouge\u00a0\u00bb.\u00a0Les photos de ces monuments ont \u00e9t\u00e9 partag\u00e9es sur les r\u00e9seaux sociaux dans le monde entier.<\/p>\n

Notre microsite\u00a0worldhemophiliaday.org<\/a>\u00a0est toujours en ligne\u00a0: si vous souhaitez en savoir plus sur la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie ou lire des histoires inspirantes,\u00a0cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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La FMH tient \u00e0 remercier les sponsors de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2020 pour leur fid\u00e8le soutien\u00a0: Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche Ltd., GC Pharma, Grifols, Kedrion, Novo Nordisk, Octapharma, Pfizer, Precision BioLogic, Sanofi Genzyme, Sobi, Spark Therapeutics, Takeda et uniQure.<\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Le 17 avril 2020 \u00e9tait la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie, et le th\u00e8me \u00ab Participez + \u00bb a touch\u00e9 le monde entier malgr\u00e9 les difficult\u00e9s pos\u00e9es par la crise actuelle du COVID-19.<\/p>\n","protected":false},"author":3,"featured_media":29547,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[169,150],"tags":[],"search-category":[85,84],"class_list":["post-29558","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events-2","category-world-hemophilia-day","search-category-article","search-category-events"],"yoast_head":"\nJourn\u00e9e mondiale de l\u2019h\u00e9mophilie : une participation mondiale | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-une-participation-mondiale\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie : une participation mondiale\" \/>\n<meta property=\"og:description\" content=\"Le 17 avril 2020 \u00e9tait la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie, et le th\u00e8me \u00ab Participez + \u00bb a touch\u00e9 le monde entier malgr\u00e9 les difficult\u00e9s pos\u00e9es par la crise actuelle du COVID-19.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-une-participation-mondiale\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - 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