{"id":28975,"date":"2020-12-11T09:00:00","date_gmt":"2020-12-11T14:00:00","guid":{"rendered":"https:\/\/wfh.org\/journee-mondiale-de-lhemophilie-2021-sadapter-au-changement-perdurer-les-soins-dans-un-nouveau-monde\/"},"modified":"2026-03-09T11:44:23","modified_gmt":"2026-03-09T15:44:23","slug":"journee-mondiale-de-lhemophilie-2021-sadapter-au-changement-perdurer-les-soins-dans-un-nouveau-monde","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2021-sadapter-au-changement-perdurer-les-soins-dans-un-nouveau-monde\/","title":{"rendered":"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2021 \u2013 S\u2019adapter au changement : perdurer les soins dans un nouveau monde"},"content":{"rendered":"\t\t
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Le 17 avril 2021 sera la\u00a0Journ\u00e9e mondiale de l\u2019h\u00e9mophilie<\/a>. Le but de cette journ\u00e9e mondiale est de rassembler la communaut\u00e9 des troubles de la coagulation. Avec l\u2019impact terrible de la pand\u00e9mie de COVID-19 sur les personnes atteintes d\u2019un trouble de la coagulation, cet objectif n\u2019a jamais \u00e9t\u00e9 aussi crucial. Notre communaut\u00e9 est compos\u00e9e d\u2019une grande diversit\u00e9 d\u2019individus \u2013 patients, familles, aidants, m\u00e9decins et chercheurs \u2013 et chacun et chacune a \u00e9t\u00e9 affect\u00e9e diff\u00e9remment par la pand\u00e9mie. Nous devons continuer \u00e0 les soutenir aujourd\u2019hui, mais aussi \u00e0 l\u2019avenir, une fois la pand\u00e9mie termin\u00e9e. Le monde a subi de grands changements au cours de l\u2019ann\u00e9e \u00e9coul\u00e9e, mais une chose demeure inchang\u00e9e : nous sommes toujours unis, et le fait de former une communaut\u00e9 nous apportera toujours de la force dans la r\u00e9alisation de notre vision du \u00ab\u00a0Traitement pour Tous\u00a0<\/a>\u00bb.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00ab La pand\u00e9mie de COVID-19 a rendu la vie des personnes atteintes d\u2019un trouble de la coagulation tr\u00e8s difficile, mais nous ne pouvons pas renoncer \u00e0 r\u00e9aliser le Traitement pour Tous. La Journ\u00e9e mondiale de l\u2019h\u00e9mophilie est l\u2019occasion de montrer au monde entier notre r\u00e9silience et notre capacit\u00e9 \u00e0 surmonter cette difficult\u00e9, comme nous en avons surmont\u00e9 d\u2019autres par le pass\u00e9. \u00bb<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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- Cesar Garrido, Pr\u00e9sident de la FMH<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Participez et montrez-nous comment vous avez \u0153uvr\u00e9 pour faire perdurer la prise en charge des patients dans ce nouveau monde\u00a0!<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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  1. \u00c9crivez-nous<\/strong>\u00a0sur\u00a0worldhemophiliaday.org<\/u><\/a> et racontez comment vous ou quelqu\u2019un que vous connaissez s\u2019est adapt\u00e9\u00b7e au changement au cours de l\u2019ann\u00e9e<\/li>\n
  2. Participez<\/strong> \u00e0 la campagne \u00ab \u00c9clairez tout en rouge ! \u00bb de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie. L\u2019an dernier, des milliers de personnes<\/a> ont montr\u00e9 leur soutien (tout en respectant la distanciation sociale) en \u00e9clairant en rouge pr\u00e8s de 100 monuments dans des villes du monde entier.<\/li>\n
  3. Partagez <\/strong>vos photos sur\u00a0Facebook<\/a>,\u00a0Twitter<\/a>\u00a0et\u00a0LinkedIn<\/a><\/li>\n
  4. Montrez votre participation<\/strong> le 17 avril 2021 sur les r\u00e9seaux sociaux en utilisant les hashtags : #Journ\u00e9eMondialeH\u00e9mophilie, #WHD2021 et #LightItUpRed<\/li>\n
  5. T\u00e9l\u00e9chargez\u00a0<\/strong>nos ressources pour composer votre propre campagne pour la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie et en savoir plus sur cette journ\u00e9e gr\u00e2ce\u00a0\u00e0 la page de la FMH d\u00e9di\u00e9e<\/a><\/li>\n
  6. Contactez<\/strong>\u00a0votre organisation nationale membre (ONM)<\/a> pour savoir comment la soutenir \u00e0 l\u2019occasion de cette journ\u00e9e<\/li>\n
  7. Parlez\u00a0<\/strong>aux m\u00e9dias locaux pour leur pr\u00e9senter les actions de votre communaut\u00e9 pour cette journ\u00e9e<\/li>\n
  8. Faites un don<\/strong>\u00a0\u00e0 la FMH<\/a> pour nous permettre de continuer \u00e0 soutenir la communaut\u00e9 pendant cette pand\u00e9mie et \u00e0 plus long terme, de fa\u00e7on durable<\/li>\n
  9. Organisez<\/strong> une collecte de dons virtuelle pour montrer votre solidarit\u00e9 envers les membres de la communaut\u00e9 qui doivent s\u2019adapter \u00e0 une nouvelle r\u00e9alit\u00e9 mondiale<\/li>\n
  10. Envoyez\u00a0<\/strong>vos photos, commentaires, ou questions \u00e0 la FMH \u00e0 l\u2019adresse communications@wfh.org<\/u><\/a><\/li>\n<\/ol>\n<\/div>\n<\/div>\n<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

    Le 17 avril 2021 sera la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie. Le but de cette journ\u00e9e mondiale est de rassembler la communaut\u00e9 des troubles de la coagulation. <\/p>\n","protected":false},"author":3,"featured_media":17778,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[189,193],"tags":[],"search-category":[],"class_list":["post-28975","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements","category-journee-mondiale-de-lhemophilie"],"yoast_head":"\nJourn\u00e9e mondiale de l\u2019h\u00e9mophilie 2021 \u2013 S\u2019adapter au changement : perdurer les soins dans un nouveau monde | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2021-sadapter-au-changement-perdurer-les-soins-dans-un-nouveau-monde\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2021 \u2013 S\u2019adapter au changement : perdurer les soins dans un nouveau monde\" \/>\n<meta property=\"og:description\" content=\"Le 17 avril 2021 sera la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie. 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