{"id":28967,"date":"2021-01-04T09:00:00","date_gmt":"2021-01-04T14:00:00","guid":{"rendered":"https:\/\/wfh.org\/la-new-england-hemophilia-association-en-voyage-autour-du-monde\/"},"modified":"2024-04-21T12:48:21","modified_gmt":"2024-04-21T16:48:21","slug":"la-new-england-hemophilia-association-en-voyage-autour-du-monde","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/la-new-england-hemophilia-association-en-voyage-autour-du-monde\/","title":{"rendered":"La New England Hemophilia Association en voyage autour du monde"},"content":{"rendered":"\t\t
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La Journ\u00e9e du don a eu lieu pour la premi\u00e8re fois en 2012, sur un principe simple mais puissant\u00a0: encourager \u00e0 faire le bien autour de soi. Elle est depuis devenue un mouvement international qui a inspir\u00e9 des millions de personnes \u00e0 donner, collaborer et c\u00e9l\u00e9brer la g\u00e9n\u00e9rosit\u00e9. Cette ann\u00e9e, aux Etats-Unis, la\u00a0New England Hemophilia Association (NEHA)<\/a>\u00a0a d\u00e9cid\u00e9 de collaborer avec la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) pour une Journ\u00e9e du don d\u00e9di\u00e9e \u00e0 la collecte de fonds pour nos programmes et services essentiels.<\/p>\n

Cette campagne a d\u00e9but\u00e9 par l\u2019accueil par la NEHA du pr\u00e9sident et de la directrice nationale de la FMH \u00c9tats-Unis, Eric Stolte et Jennifer Lalibert\u00e9, pour un\u00a0webinaire sp\u00e9cial sur la Journ\u00e9e du don<\/a>. Les patient\u00b7es et familles de toute la r\u00e9gion y ont assist\u00e9 et ont pu en apprendre plus sur l\u2019impact de nos initiatives, qui apportent des changements durables dans la vie de celles et ceux qui n\u2019ont qu\u2019un acc\u00e8s limit\u00e9 (voire inexistant) aux soins. Leur enthousiasme et leur empathie pour les patient\u00b7es des pays en d\u00e9veloppement ont \u00e9t\u00e9 visibles pendant tout l\u2019\u00e9v\u00e9nement. L\u2019un des moments forts du webinaire a \u00e9t\u00e9 l\u2019arriv\u00e9e de Barun Khakurel de la Nepal Hemophilia Society (alors qu\u2019il n\u2019\u00e9tait que 5 heures du matin chez lui\u00a0!), qui nous a fait part de son exp\u00e9rience en tant que patient et leader communautaire. Une session de questions-r\u00e9ponses tr\u00e8s anim\u00e9e a ensuite eu lieu, et les participant\u00b7es ont pu, selon les mots du directeur de la NEHA Rich Pezzillo, \u00ab\u00a0partir en voyage pour d\u00e9couvrir un peu ce qui se passe dans le reste du monde\u00a0\u00bb.<\/p>\n

Nous avons constat\u00e9 avec beaucoup de reconnaissance qu\u2019un grand nombre de participant\u00b7es ont imm\u00e9diatement fait un don pour soutenir le travail de la FMH.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Nous avons d\u00e9cid\u00e9 de soutenir une autre cause ces trois derni\u00e8res ann\u00e9es. La Journ\u00e9e du don est mondiale, tout comme la FMH, et nous sommes fiers de collaborer avec cette organisation et de soutenir ses efforts.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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- Rich Pezzillo, Directeur de la NEHA<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Le 1er<\/sup>\u00a0d\u00e9cembre, la communaut\u00e9 de Nouvelle-Angleterre (\u00c9tats-Unis) a r\u00e9pondu \u00e0 notre appel par un don total de 4\u00a0325 $. La FMH est tr\u00e8s fi\u00e8re d\u2019\u00eatre soutenue par des organisations telles que la NEHA, qui partagent notre vision du Traitement pour Tous. Nous tenons \u00e0 remercier tout particuli\u00e8rement Rich Pezzillo et Brandon Greene pour leur aide lors de cette formidable initiative.<\/p>\n

La mission de la New England Hemophilia Association est d\u2019am\u00e9liorer la qualit\u00e9 de vie des personnes atteintes d\u2019un trouble de la coagulation ainsi que celle de leur famille, \u00e0 travers\u00a0l\u2019\u00e9ducation, le soutien et le plaidoyer<\/strong>. Vous pouvez en savoir plus sur les actions qu\u2019elle m\u00e8ne\u00a0ici.<\/a><\/p>\n

Vous souhaitez imiter la communaut\u00e9 de Nouvelle-Angleterre et soutenir notre travail\u00a0? Merci beaucoup\u00a0! Vous pouvez le faire en cliquant\u00a0ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

La Journ\u00e9e du don a eu lieu pour la premi\u00e8re fois en 2012, sur un principe simple mais puissant : encourager \u00e0 faire le bien autour de soi. Elle est depuis devenue un mouvement international qui a inspir\u00e9 des millions de personnes \u00e0 donner, collaborer et c\u00e9l\u00e9brer la g\u00e9n\u00e9rosit\u00e9. <\/p>\n","protected":false},"author":3,"featured_media":19564,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[180],"tags":[],"search-category":[],"class_list":["post-28967","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-philanthropie"],"yoast_head":"\nLa New England Hemophilia Association en voyage autour du monde | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/la-new-england-hemophilia-association-en-voyage-autour-du-monde\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La New England Hemophilia Association en voyage autour du monde\" \/>\n<meta property=\"og:description\" content=\"La Journ\u00e9e du don a eu lieu pour la premi\u00e8re fois en 2012, sur un principe simple mais puissant : encourager \u00e0 faire le bien autour de soi. 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