{"id":28965,"date":"2021-01-11T09:00:00","date_gmt":"2021-01-11T14:00:00","guid":{"rendered":"https:\/\/wfh.org\/la-fmh-accueille-la-ladha-en-tant-quonm-associee\/"},"modified":"2024-07-11T11:39:29","modified_gmt":"2024-07-11T15:39:29","slug":"la-fmh-accueille-la-ladha-en-tant-quonm-associee","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/la-fmh-accueille-la-ladha-en-tant-quonm-associee\/","title":{"rendered":"La FMH accueille la LADHA en tant qu\u2019ONM associ\u00e9e"},"content":{"rendered":"\t\t
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Le 16 octobre 2020, \u00e0 l\u2019occasion de\u00a0l\u2019Assembl\u00e9e g\u00e9n\u00e9rale annuelle de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/a>, l\u2019Associa\u00e7\u00e3o Liga dos Amigos de Doentes Hematol\u00f3gicos de Angola (LADHA) a re\u00e7u le statut d\u2019organisation nationale membre (ONM<\/a>) associ\u00e9e, rejoignant ainsi les 146 autres ONM pr\u00e9sentes dans le monde entier.<\/p>\n

Jos\u00e9 Ant\u00f3nio, pr\u00e9sident de la LADHA, ne connaissait que quatre autres personnes atteintes d\u2019un trouble de la coagulation en Angola avant de rejoindre l\u2019organisation. L\u2019Angola compte 30 millions d\u2019habitants, et il s\u2019est demand\u00e9 combien d\u2019autres personnes comme lui il pouvait y avoir dans le pays, qui seraient non diagnostiqu\u00e9es et peut-\u00eatre en souffrance. Il s\u2019inqui\u00e9tait pour les familles qui ne savaient pas que leurs enfants \u00e9taient malades, de la stigmatisation dont elles pouvaient \u00eatre victimes dans leur communaut\u00e9, et de leur manque de soins et de traitement. Comme beaucoup de b\u00e9n\u00e9voles de la communaut\u00e9 des troubles de la coagulation, M. Ant\u00f3nio a d\u00e9cid\u00e9 de donner de son temps pour rendre la vie plus confortable aux personnes atteintes de la m\u00eame maladie que lui, en rejoignant son association locale d\u00e9di\u00e9e \u00e0 l\u2019h\u00e9mophilie.<\/p>\n

La LADHA a \u00e9t\u00e9 d\u00e9clar\u00e9e en 2014, avec l\u2019objectif de repr\u00e9senter les int\u00e9r\u00eats de la communaut\u00e9 des troubles de la coagulation, de militer pour les droits des patient\u00b7es, et de fournir des soins fiables aux personnes atteintes d\u2019un trouble de la coagulation. L\u2019organisation esp\u00e8re \u00e0 terme pouvoir am\u00e9liorer la sant\u00e9 physique et psychosociale de la communaut\u00e9 angolaise des troubles de la coagulation. On compte actuellement 83 patient\u00b7es atteint\u00b7es d\u2019h\u00e9mophilie en Angola, et un seul h\u00f4pital (l\u2019h\u00f4pital p\u00e9diatrique David Bernardino, situ\u00e9 \u00e0 Luanda, la capitale) proposant des services de base de prise en charge de l\u2019h\u00e9mophilie pour les enfants et les adultes.<\/p>\n

Jos\u00e9 Ant\u00f3nio est ravi des opportunit\u00e9s qu\u2019apporte le rattachement officiel \u00e0 la FMH pour la LADHA et les patient\u00b7es angolais\u00b7es. Il est convaincu que ce qui est fondamental dans le statut d\u2019ONM associ\u00e9e, c\u2019est le signal que cela envoie \u00e0 la communaut\u00e9 angolaise\u00a0: qu\u2019elle n\u2019est pas seule, et que la communaut\u00e9 mondiale des troubles de la coagulation est solidaire de ses efforts.<\/p>\n

Toute l\u2019\u00e9quipe de la FMH et ses nombreuses et nombreux b\u00e9n\u00e9voles d\u00e9vou\u00e9s ont h\u00e2te de collaborer avec les membres de la LADHA pour faire un pas de plus vers la vision de la FMH du Traitement pour Tous.<\/p>\n

Au nom de la communaut\u00e9 mondiale des troubles de la coagulation, bienvenue \u00e0 la LADHA\u00a0!<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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R\u00e9union entre le minist\u00e8re de la Sant\u00e9 d\u2019Angola, des membres de la LADHA et de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le 16 octobre 2020, \u00e0 l\u2019occasion de l\u2019Assembl\u00e9e g\u00e9n\u00e9rale annuelle de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie, l\u2019Associa\u00e7\u00e3o Liga dos Amigos de Doentes Hematol\u00f3gicos de Angola (LADHA) a re\u00e7u le statut d\u2019organisation nationale membre (ONM) associ\u00e9e, rejoignant ainsi les 146 autres ONM pr\u00e9sentes dans le monde entier.<\/p>\n","protected":false},"author":3,"featured_media":19564,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[171],"tags":[],"search-category":[],"class_list":["post-28965","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualites-de-la-fmh"],"yoast_head":"\nLa FMH accueille la LADHA en tant qu\u2019ONM associ\u00e9e | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/la-fmh-accueille-la-ladha-en-tant-quonm-associee\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La FMH accueille la LADHA en tant qu\u2019ONM associ\u00e9e\" \/>\n<meta property=\"og:description\" content=\"Le 16 octobre 2020, \u00e0 l\u2019occasion de l\u2019Assembl\u00e9e g\u00e9n\u00e9rale annuelle de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie, l\u2019Associa\u00e7\u00e3o Liga dos Amigos de Doentes Hematol\u00f3gicos de Angola (LADHA) a re\u00e7u le statut d\u2019organisation nationale membre (ONM) associ\u00e9e, rejoignant ainsi les 146 autres ONM pr\u00e9sentes dans le monde entier.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/la-fmh-accueille-la-ladha-en-tant-quonm-associee\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - 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