{"id":27762,"date":"2020-08-04T19:30:40","date_gmt":"2020-08-04T23:30:40","guid":{"rendered":"https:\/\/wfh.org\/publication-les-directives-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie-troisieme-edition\/"},"modified":"2024-04-21T12:47:12","modified_gmt":"2024-04-21T16:47:12","slug":"publication-les-directives-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie-troisieme-edition","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/publication-les-directives-de-la-fmh-pour-la-prise-en-charge-de-lhemophilie-troisieme-edition\/","title":{"rendered":"Publication : Les directives de la FMH pour la prise en charge de l\u2019h\u00e9mophilie, troisi\u00e8me \u00e9dition"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"27762\" class=\"elementor elementor-27762 elementor-16419\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-e53cdd2 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"e53cdd2\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-ec8db1f\" data-id=\"ec8db1f\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5ca8461 elementor-widget elementor-widget-text-editor\" data-id=\"5ca8461\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p class=\"\">Cette troisi\u00e8me \u00e9dition des\u00a0<em>Directives de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) pour la prise en charge de l\u2019h\u00e9mophilie<\/em>\u00a0propose les plus r\u00e9cents conseils et recommandations pratiques pour le diagnostic et la prise en charge de l\u2019h\u00e9mophilie, notamment la prise en charge des complications musculosquelettiques ou li\u00e9es aux inhibiteurs, les derni\u00e8res informations sur le diagnostic en laboratoire et les \u00e9valuations g\u00e9n\u00e9tiques, ainsi que de nouvelles recommandations sur l\u2019\u00e9valuation des r\u00e9sultats.<\/p>\r\n\r\n<p class=\"\">Plus de 300 directives pratiques ont ainsi \u00e9t\u00e9 \u00e9labor\u00e9es \u00e0 partir d\u2019un consensus sur les meilleures donn\u00e9es disponibles, les avis d\u2019expert\u00b7s et les pr\u00e9f\u00e9rences des patient\u00b7es, gr\u00e2ce \u00e0 au processus intitul\u00e9 \u00ab D\u00e9claration fiable sur la base d\u2019un consensus\u00a0\u00bb pour parvenir \u00e0 des recommandations fiables. Le panel d\u2019\u00e9laboration \u00e9tait compos\u00e9 d\u2019expert\u00b7es dans les soins de l\u2019h\u00e9mophilie, aux horizons cliniques et g\u00e9ographiques divers, ainsi que de 25\u00a0% de personnes atteintes d\u2019h\u00e9mophilie et de leurs aidant\u00b7es.<\/p>\r\n\r\n<p class=\"\">Ces directives th\u00e9rapeutiques de grande qualit\u00e9, bas\u00e9es sur des donn\u00e9es scientifiques et des avis d\u2019expert\u00b7es, proposent de combler l\u2019\u00e9cart de soins et de pratiques th\u00e9rapeutiques dans le monde. Elles incluent des recommandations pratiques destin\u00e9es \u00e0 am\u00e9liorer les soins de fa\u00e7on globale, \u00e0 promouvoir des interventions cliniques efficaces et \u00e0 r\u00e9duire les \u00e9carts dans les pratiques cliniques. Pour les recommandations qui manquent de donn\u00e9es adapt\u00e9es, ces directives pourront encourager des \u00e9tudes appropri\u00e9es.<\/p>\r\n\r\n<p class=\"\">La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie tient \u00e0 remercier sinc\u00e8rement la centaine de contributeurs et contributrices qui ont permis de d\u00e9velopper ces directives, dans des d\u00e9lais tr\u00e8s serr\u00e9s. Nous remercions tout particuli\u00e8rement les expert\u00b7es des soins de l\u2019h\u00e9mophilie, les personnes atteintes d\u2019h\u00e9mophilie ainsi que les relecteurs et relectrices qui ont bien voulu donner de leur temps et nous faire profiter de leur expertise, pour assurer que chaque chapitre soit de la meilleure qualit\u00e9 possible. Gr\u00e2ce \u00e0 leur g\u00e9n\u00e9rosit\u00e9, nous sommes en mesure de fournir au personnel soignant et aux patient\u00b7es du monde entier des recommandations pr\u00e9cieuses sur lesquelles baser les soins. Un grand merci \u00e9galement aux relecteurs et relectrices externes et \u00e0 celles et ceux de la revue\u00a0<em>Haemophilia<\/em>, qui ont bien voulu nous donner leur avis en ces circonstances si particuli\u00e8res de la crise du COVID-19.<\/p>\r\n\r\n<p class=\"\">Pour t\u00e9l\u00e9charger la troisi\u00e8me \u00e9dition des\u00a0<em>Directives de la FMH pour la prise en charge de l\u2019h\u00e9mophilie,\u00a0<\/em><a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/hae.14046\" target=\"_blank\" rel=\"noopener noreferrer\">cliquez ici<\/a>.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Cette troisi\u00e8me \u00e9dition des\u00a0Directives de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) pour la prise en charge de l\u2019h\u00e9mophilie\u00a0propose les plus r\u00e9cents conseils et recommandations pratiques pour le diagnostic et la [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":27757,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[8],"tags":[],"search-category":[],"class_list":["post-27762","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-non-classifiee"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - 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