{"id":27313,"date":"2022-02-10T10:16:09","date_gmt":"2022-02-10T15:16:09","guid":{"rendered":"https:\/\/wfh.org\/des-sessions-de-formation-du-programme-daide-humanitaire-de-la-fmh-sauvent-des-vies\/"},"modified":"2024-04-15T08:34:19","modified_gmt":"2024-04-15T12:34:19","slug":"des-sessions-de-formation-du-programme-daide-humanitaire-de-la-fmh-sauvent-des-vies","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/des-sessions-de-formation-du-programme-daide-humanitaire-de-la-fmh-sauvent-des-vies\/","title":{"rendered":"Des sessions de formation du Programme d\u2019aide humanitaire de la FMH sauvent des vies"},"content":{"rendered":"\t\t
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Les soins durables sont le fruit de nombreux facteurs, dont la formation. Des diagnostics efficaces sont n\u00e9cessaires pour que les personnes atteintes d\u2019un trouble de la coagulation puissent b\u00e9n\u00e9ficier des soins dont elles ont besoin. La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) organise r\u00e9guli\u00e8rement des sessions de formation via diff\u00e9rents programmes \u2014 notamment le Programme d\u2019aide humanitaire<\/a> \u2014 pour aider les professionnel\u00b7les de sant\u00e9 \u00e0 reconna\u00eetre les signes d\u2019un trouble de la coagulation le plus t\u00f4t possible chez les personnes qui en sont atteintes.<\/p>\n

Dans le cas d\u2019Ethan, un gar\u00e7on ougandais de 3 ans, un diagnostic pr\u00e9coce est sans doute ce qui lui a \u00e9pargn\u00e9 une vie de handicap, et qui lui a peut-\u00eatre tout simplement sauv\u00e9 la vie. Il est n\u00e9 lors d\u2019un accouchement par ventouse obst\u00e9tricale et a imm\u00e9diatement d\u00e9velopp\u00e9 des sympt\u00f4mes qui correspondaient \u00e0 une h\u00e9mophilie. L\u2019\u00e9quipe de la maternit\u00e9, qui a suivi un webinaire du Programme intitul\u00e9 \u00ab\u00a0M\u00e9decins en premi\u00e8re ligne et soignant\u00b7es en deuxi\u00e8me ligne<\/a>\u00a0\u00bb, a reconnu les sympt\u00f4mes et contact\u00e9 la Haemophilia Foundation of Uganda (HFU). Un diagnostic formel a rapidement \u00e9t\u00e9 \u00e9tabli, et Ethan a pu commencer \u00e0 recevoir des dons de facteur via le Programme d\u2019aide humanitaire de la FMH. Il est actuellement sous traitement prophylactique et vit une vie normale. Si un traitement rapide est courant dans les cas o\u00f9 un fr\u00e8re ou une s\u0153ur a d\u00e9j\u00e0 re\u00e7u un diagnostic d\u2019h\u00e9mophilie, c\u2019est beaucoup plus rare dans le cas d\u2019un premier enfant. L\u2019exp\u00e9rience positive d\u2019Ethan montre la diff\u00e9rence que peut faire la formation des soignant\u00b7es pour un enfant atteint d\u2019un trouble de la coagulation.<\/p>\n

Gr\u00e2ce au Programme d\u2019aide humanitaire, plus de 10 millions d\u2019UI ont \u00e9t\u00e9 donn\u00e9s \u00e0 l\u2019Ouganda depuis 2015. L\u2019an dernier, pr\u00e8s de 1,5 million d\u2019UI de facteur et plus de 34\u00a0000 mg de traitements sans facteur de remplacement ont \u00e9t\u00e9 donn\u00e9s. Pour en savoir plus sur le Programme d\u2019aide humanitaire de la FMH, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 propos du programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patients un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi Genzyme et Sobi, nos Donateurs visionnaires fondateurs ; de Roche et Bayer, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de nos Donateurs contributeurs CSL Behring et Takeda. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Les soins durables sont le fruit de nombreux facteurs, dont la formation. Des diagnostics efficaces sont n\u00e9cessaires pour que les personnes atteintes d\u2019un trouble de la coagulation puissent b\u00e9n\u00e9ficier des soins dont elles ont besoin. La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) organise r\u00e9guli\u00e8rement des sessions de formation via diff\u00e9rents programmes \u2014 notamment le Programme d\u2019aide humanitaire \u2014 pour aider les professionnel\u00b7les de sant\u00e9 \u00e0 reconna\u00eetre les signes d\u2019un trouble de la coagulation le plus t\u00f4t possible chez les personnes qui en sont atteintes.<\/p>\n","protected":false},"author":13,"featured_media":26867,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[184],"tags":[],"search-category":[85],"class_list":["post-27313","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nDes sessions de formation du Programme d\u2019aide humanitaire de la FMH sauvent des vies | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/des-sessions-de-formation-du-programme-daide-humanitaire-de-la-fmh-sauvent-des-vies\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Des sessions de formation du Programme d\u2019aide humanitaire de la FMH sauvent des vies\" \/>\n<meta property=\"og:description\" content=\"Les soins durables sont le fruit de nombreux facteurs, dont la formation. 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