{"id":27089,"date":"2021-01-21T09:00:00","date_gmt":"2021-01-21T14:00:00","guid":{"rendered":"https:\/\/wfh.org\/le-rmtc-ameliore-les-soins-et-la-collecte-de-donnees-a-lagos-nigeria\/"},"modified":"2024-04-22T09:41:56","modified_gmt":"2024-04-22T13:41:56","slug":"le-rmtc-ameliore-les-soins-et-la-collecte-de-donnees-a-lagos-nigeria","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/le-rmtc-ameliore-les-soins-et-la-collecte-de-donnees-a-lagos-nigeria\/","title":{"rendered":"Le RMTC am\u00e9liore les soins et la collecte de donn\u00e9es \u00e0 Lagos (Nigeria)"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"27089\" class=\"elementor elementor-27089 elementor-15686\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-054c599 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"054c599\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-ffd2420\" data-id=\"ffd2420\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-fc92f23 elementor-widget elementor-widget-text-editor\" data-id=\"fc92f23\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.21.0 - 18-04-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>Au centre de traitement de l\u2019h\u00e9mophilie (CTH) de l\u2019University Teaching Hospital de Lagos (Nigeria), la prise en charge clinique est rest\u00e9e pendant de nombreuses ann\u00e9es bas\u00e9e sur des pr\u00e9somptions. S\u2019il existe des laboratoires, les personnes atteintes d\u2019h\u00e9mophilie dans la r\u00e9gion ne pouvaient pas assumer les co\u00fbts des tests, et les diagnostics pr\u00e9liminaires \u00e9taient ainsi fond\u00e9s sur les ant\u00e9c\u00e9dents m\u00e9dicaux et les essais th\u00e9rapeutiques avec les concentr\u00e9s de facteur VIII ou IX. Ainsi, le niveau de s\u00e9v\u00e9rit\u00e9 et le statut inhibiteur chez les patient\u00b7es du CTH restait inconnu. Cette situation a persist\u00e9 jusqu\u2019en 2018, lorsque le CTH de l\u2019University Teaching Hospital de Lagos a re\u00e7u une subvention pour mener une \u00e9tude via le\u00a0<a href=\"https:\/\/www.wfh.org\/en\/our-work-research-data\/wbdr-research-support-program\" target=\"_blank\" rel=\"noopener noreferrer\">Programme de soutien \u00e0 la recherche<\/a>\u00a0du Registre mondial des troubles de la coagulation (<a href=\"https:\/\/www.wfh.org\/fr\/que-faisons-nous-recherche-donnees\/registre-mondial-des-troubles-de-la-coagulation\" target=\"_blank\" rel=\"noopener noreferrer\">RMTC<\/a>) de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH). Aujourd\u2019hui, le CTH a la possibilit\u00e9 de diagnostiquer correctement les personnes atteintes d\u2019un trouble de la coagulation, de d\u00e9terminer la s\u00e9v\u00e9rit\u00e9 de leur h\u00e9mophilie, leur statut inhibiteur, ainsi que d\u2019enregistrer pr\u00e9cis\u00e9ment leurs donn\u00e9es.<\/p>\n<p>Le Programme de soutien \u00e0 la recherche du Registre mondial des troubles de la coagulation (RMTC) est destin\u00e9 \u00e0 motiver et soutenir les CTH dans leur collecte, leur analyse et leur utilisation de leurs donn\u00e9es du RMTC. Dans le cas du CTH de Lagos, ce soutien a permis \u00e0 l\u2019organisme de diagnostiquer correctement les personnes atteintes d\u2019h\u00e9mophilie \u00e0 l\u2019aide de tests en laboratoire, de compiler des donn\u00e9es cliniques et biod\u00e9mographiques compl\u00e8tes, et d\u2019utiliser le RMTC pour conserver ensuite ces donn\u00e9es. Disposer d\u2019un syst\u00e8me tel que le RMTC est essentiel au Nigeria, car le pays ne poss\u00e8de pas de registre de donn\u00e9es national.<\/p>\n<p>Ce projet a commenc\u00e9 par l\u2019identification et le diagnostic de nouvelles personnes atteintes d\u2019h\u00e9mophilie, de la d\u00e9termination du type d\u2019h\u00e9mophilie, de la s\u00e9v\u00e9rit\u00e9 et du statut inhibiteur. Gr\u00e2ce au Programme de soutien \u00e0 la recherche, le CTH a pu acheter des kits de laboratoire et installer une clinique hebdomadaire d\u00e9di\u00e9e aux troubles de la coagulation au sein du CTH. Ces efforts ont imm\u00e9diatement port\u00e9 leurs fruits\u00a0: en 2018, seules 12 personnes atteintes d\u2019h\u00e9mophilie \u00e9taient inscrites au RMTC \u00e0 Lagos, et l\u2019on en comptait 77 en 2020.<\/p>\n<p>Ensuite, les donn\u00e9es biod\u00e9mographiques et cliniques des patient\u00b7es ont \u00e9t\u00e9 entr\u00e9es dans le RMTC. Enfin, le CTH a pu organiser deux r\u00e9unions pour informer les personnes atteintes d\u2019h\u00e9mophilie sur les soins, sur l\u2019importance de rendez-vous de suivi r\u00e9guliers et d\u2019analyses de sang annuelles pour v\u00e9rifier leur statut inhibiteur. Les participant\u00b7es ont \u00e9galement eu un aper\u00e7u des avantages du RMTC en tant que registre syst\u00e9matique.<\/p>\n<p>Le Programme de soutien \u00e0 la recherche du RMTC a eu un impact significatif sur la qualit\u00e9 de vie des personnes atteintes d\u2019h\u00e9mophilie \u00e0 Lagos. Il a permis au CTH de l\u2019University Teaching Hospital d\u2019am\u00e9liorer \u00e0 la fois le diagnostic et les soins, mais aussi la collecte de donn\u00e9es.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Au centre de traitement de l\u2019h\u00e9mophilie (CTH) de l\u2019University Teaching Hospital de Lagos (Nigeria), la prise en charge clinique est rest\u00e9e pendant de nombreuses ann\u00e9es bas\u00e9e sur des pr\u00e9somptions. <\/p>\n","protected":false},"author":3,"featured_media":15688,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[171,195],"tags":[],"search-category":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v22.5 (Yoast SEO v22.5) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Le RMTC am\u00e9liore les soins et la collecte de donn\u00e9es \u00e0 Lagos (Nigeria) &#8211; FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/le-rmtc-ameliore-les-soins-et-la-collecte-de-donnees-a-lagos-nigeria\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le RMTC am\u00e9liore les soins et la collecte de donn\u00e9es \u00e0 Lagos (Nigeria)\" \/>\n<meta property=\"og:description\" content=\"Au centre de traitement de l\u2019h\u00e9mophilie (CTH) de l\u2019University Teaching Hospital de Lagos (Nigeria), la prise en charge clinique est rest\u00e9e pendant de nombreuses ann\u00e9es bas\u00e9e sur des pr\u00e9somptions.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/le-rmtc-ameliore-les-soins-et-la-collecte-de-donnees-a-lagos-nigeria\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2021-01-21T14:00:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-22T13:41:56+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Nigeria-header.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"640\" \/>\n\t<meta property=\"og:image:height\" content=\"400\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Electra Rozakis\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Electra Rozakis\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/le-rmtc-ameliore-les-soins-et-la-collecte-de-donnees-a-lagos-nigeria\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/le-rmtc-ameliore-les-soins-et-la-collecte-de-donnees-a-lagos-nigeria\/\"},\"author\":{\"name\":\"Electra Rozakis\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/590cf0d3a057aaef67b154adeffbf31d\"},\"headline\":\"Le RMTC am\u00e9liore les soins et la collecte de donn\u00e9es \u00e0 Lagos (Nigeria)\",\"datePublished\":\"2021-01-21T14:00:00+00:00\",\"dateModified\":\"2024-04-22T13:41:56+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/le-rmtc-ameliore-les-soins-et-la-collecte-de-donnees-a-lagos-nigeria\/\"},\"wordCount\":555,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/le-rmtc-ameliore-les-soins-et-la-collecte-de-donnees-a-lagos-nigeria\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Nigeria-header.jpg\",\"articleSection\":[\"Actualit\u00e9s de la FMH\",\"Recherche\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/le-rmtc-ameliore-les-soins-et-la-collecte-de-donnees-a-lagos-nigeria\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/le-rmtc-ameliore-les-soins-et-la-collecte-de-donnees-a-lagos-nigeria\/\",\"name\":\"Le RMTC am\u00e9liore les soins et la collecte de donn\u00e9es \u00e0 Lagos (Nigeria) &#8211; 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