{"id":26511,"date":"2022-01-04T17:35:00","date_gmt":"2022-01-04T22:35:00","guid":{"rendered":"https:\/\/wfh.org\/glenn-pierce-le-vice-president-de-la-fmh-en-charge-des-affaires-medicales-rend-hommage-a-val-bias\/"},"modified":"2024-04-15T08:40:17","modified_gmt":"2024-04-15T12:40:17","slug":"glenn-pierce-le-vice-president-de-la-fmh-en-charge-des-affaires-medicales-rend-hommage-a-val-bias","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/glenn-pierce-le-vice-president-de-la-fmh-en-charge-des-affaires-medicales-rend-hommage-a-val-bias\/","title":{"rendered":"Glenn Pierce, le vice-pr\u00e9sident de la FMH en charge des affaires m\u00e9dicales, rend hommage \u00e0 Val Bias"},"content":{"rendered":"\t\t
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Glenn Pierce est le vice-pr\u00e9sident de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) en charge des affaires m\u00e9dicales. Le 30 d\u00e9cembre dernier, la communaut\u00e9 mondiale des troubles de la coagulation a perdu l\u2019une de ses grandes figures en la personne de Val Bias, ancien pr\u00e9sident-directeur g\u00e9n\u00e9ral de la National Hemophilia Foundation (NHF), qui nous a quitt\u00e9s. M. Pierce partage avec nous ses souvenirs de son coll\u00e8gue et ami.<\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Val Bias et moi nous sommes connus il y a 30 ans, alors que nous \u00e9tions rivaux pour la pr\u00e9sidence de la National Hemophilia Foundation (NHF). Membre du conseil d\u2019administration de l\u2019organisation, je menais des actions de plaidoyer en rapport avec le VIH\/sida, et Val \u00e9tait membre d\u2019un groupe plus militant, qui estimait que la NHF n\u2019en faisait pas assez. Nous nous sommes r\u00e9unis et avons constat\u00e9 que nous avions les m\u00eames objectifs \u2013 nous en avons conclu que nous serions plus forts si nous travaillions ensemble. Nous avons donc form\u00e9 un bin\u00f4me, et il est devenu pr\u00e9sident du conseil d\u2019administration, et moi celui de l\u2019organisation. Ensemble, avec les nombreuses personnes que nous avons recrut\u00e9es, nous avons rendu la NHF plus responsable, et l\u2019avons pouss\u00e9e \u00e0 devenir fer de lance de la sensibilisation au VIH\/sida. Val est ainsi parti pour Washington DC (\u00c9tats-Unis), o\u00f9 il a men\u00e9 la lutte pour l\u2019adoption de la loi Ricky Ray, et o\u00f9 il s\u2019est investi pour rendre le secteur pharmaceutique responsable de ses actes. Si la responsabilit\u00e9 financi\u00e8re \u00e9tait un \u00e9l\u00e9ment essentiel, la priorit\u00e9 absolue \u00e9tait de comprendre comment l\u2019affaire du sang contamin\u00e9 avait pu arriver, et ce qu\u2019il fallait mettre en place pour qu\u2019une telle calamit\u00e9 ne se reproduise jamais. Val \u00e9tait en premi\u00e8re ligne de ce combat, qui a culmin\u00e9 avec le rapport du National Institute of Medicine faisant \u00e9tat de tous les manquements qui avaient permis la contamination du sang par le VIH (et l\u2019h\u00e9patite C). Ce succ\u00e8s porte encore ses fruits aujourd\u2019hui.<\/p>\n

Val a continu\u00e9 \u00e0 se consacrer \u00e0 la lutte contre de nombreux probl\u00e8mes sanitaires et financiers auxquels la communaut\u00e9 des troubles de la coagulation \u00e9tait confront\u00e9e. Nos chemins se sont souvent crois\u00e9s, \u00e0 la fois au niveau national et international. En 2008, il a \u00e9t\u00e9 choisi pour pr\u00e9sider la NHF, et pendant dix ans, il a pouss\u00e9 l\u2019organisation \u00e0 offrir des programmes et des services encore meilleurs \u00e0 la communaut\u00e9. \u00c0 la fin de son mandat, la NHF \u00e9tait bien diff\u00e9rente de celle au sein de laquelle nous avions offici\u00e9 tous les deux. Val \u00e9tait passionn\u00e9 par son r\u00f4le de repr\u00e9sentation de la communaut\u00e9 au sein des diff\u00e9rents \u00e9cosyst\u00e8mes politiques, de sant\u00e9 et de plaidoyer.<\/p>\n

Lorsque Val a pris sa retraite de la NHF il y a quelques ann\u00e9es, ses probl\u00e8mes de sant\u00e9 l\u2019ont rattrap\u00e9. Vivre avec une h\u00e9mophilie s\u00e9v\u00e8re n\u2019est pas chose facile. C\u2019est encore plus difficile lorsque votre sant\u00e9 est aggrav\u00e9e par des infections et les s\u00e9quelles des h\u00e9morragies. Val n\u2019a pourtant jamais laiss\u00e9 l\u2019h\u00e9mophilie le ralentir. Au contraire, elle lui donnait l\u2019\u00e9nergie de se battre : il avait toujours \u00e0 l\u2019esprit l\u2019urgence de notre combat, et cela se traduisait dans ses actes.<\/p>\n

Nous adressons tout notre soutien \u00e0 la famille de Val, qui a accept\u00e9 de partager cet homme remarquable avec une communaut\u00e9 au sein de laquelle il a durablement laiss\u00e9 son empreinte. Dans la communaut\u00e9 des troubles de la coagulation, j\u2019ai perdu un fr\u00e8re, comme nous tous. Son activisme, son espoir et son \u00e9nergie survivront dans le c\u0153ur des nombreuses personnes qu\u2019il a aid\u00e9es au cours de sa vie.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Cliquez ici<\/a> pour lire l\u2019article de condol\u00e9ances de la FMH, et ici<\/a> pour lire les t\u00e9moignages des dirigeants de la FMH. Vous trouverez ici<\/a> le communiqu\u00e9 de la NHF.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Glenn Pierce est le vice-pr\u00e9sident de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) en charge des affaires m\u00e9dicales. Le 30 d\u00e9cembre dernier, la communaut\u00e9 mondiale des troubles de la coagulation a perdu l\u2019une de ses grandes figures en la personne de Val Bias, ancien pr\u00e9sident-directeur g\u00e9n\u00e9ral de la National Hemophilia Foundation (NHF), qui nous a quitt\u00e9s. M. Pierce partage avec nous ses souvenirs de son coll\u00e8gue et ami.<\/p>\n","protected":false},"author":3,"featured_media":16621,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[8],"tags":[],"search-category":[],"class_list":["post-26511","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-non-classifiee"],"yoast_head":"\nGlenn Pierce, le vice-pr\u00e9sident de la FMH en charge des affaires m\u00e9dicales, rend hommage \u00e0 Val Bias | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/glenn-pierce-le-vice-president-de-la-fmh-en-charge-des-affaires-medicales-rend-hommage-a-val-bias\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Glenn Pierce, le vice-pr\u00e9sident de la FMH en charge des affaires m\u00e9dicales, rend hommage \u00e0 Val Bias\" \/>\n<meta property=\"og:description\" content=\"Glenn Pierce est le vice-pr\u00e9sident de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) en charge des affaires m\u00e9dicales. Le 30 d\u00e9cembre dernier, la communaut\u00e9 mondiale des troubles de la coagulation a perdu l\u2019une de ses grandes figures en la personne de Val Bias, ancien pr\u00e9sident-directeur g\u00e9n\u00e9ral de la National Hemophilia Foundation (NHF), qui nous a quitt\u00e9s. M. 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