{"id":26469,"date":"2022-01-20T09:00:00","date_gmt":"2022-01-20T14:00:00","guid":{"rendered":"https:\/\/wfh.org\/programme-pact-de-la-fmh-un-nouveau-protocole-daccord-signe-au-bangladesh\/"},"modified":"2024-04-15T08:39:25","modified_gmt":"2024-04-15T12:39:25","slug":"programme-pact-de-la-fmh-un-nouveau-protocole-daccord-signe-au-bangladesh","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/programme-pact-de-la-fmh-un-nouveau-protocole-daccord-signe-au-bangladesh\/","title":{"rendered":"Programme PACT de la FMH : un nouveau protocole d\u2019accord sign\u00e9 au Bangladesh"},"content":{"rendered":"\t\t
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La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) a le plaisir d\u2019annoncer qu\u2019un protocole d\u2019accord a \u00e9t\u00e9 sign\u00e9 entre le Directorate General of Health Services (DGHS) du minist\u00e8re de la Sant\u00e9 et de la Protection de la famille d\u2019une part et la FMH d\u2019autre part, pour la mise en \u0153uvre du programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT)<\/a> qui vise \u00e0 am\u00e9liorer le diagnostic, le traitement et les soins pour les personnes atteintes d\u2019un trouble de la coagulation au Bangladesh. La Hemophilia Society of Bangladesh (HSB) est le principal partenaire de mise en \u0153uvre, et travaillera en collaboration avec la DGHS et la FMH pour \u00e9laborer le programme. Le protocole d\u2019accord est le r\u00e9sultat de plus de vingt ans de travail de sensibilisation effectu\u00e9 par la HSB, sous la direction de son pr\u00e9sident Mohammad Nurul Islam, et en collaboration avec la DGHS.<\/p>\n

Le programme PACT est une initiative sur 5 ans qui vise \u00e0 am\u00e9liorer le d\u00e9pistage et le diagnostic et \u00e0 renforcer l\u2019acc\u00e8s \u00e0 une offre de soins durable pour les personnes atteintes d\u2019un trouble h\u00e9r\u00e9ditaire de la coagulation. Cet objectif sera atteint par le biais de la formation, de l\u2019\u00e9ducation, de partenariats, d\u2019initiatives locales et d\u2019un plaidoyer fond\u00e9 sur des donn\u00e9es probantes. Au Bangladesh, on a identifi\u00e9 pr\u00e8s de 2 400 personnes atteintes d\u2019un trouble de la coagulation, ce qui ne constitue que 14 % de la pr\u00e9valence attendue, qui se situerait plut\u00f4t autour de 17 000. Ainsi, l\u2019un des axes principaux du programme sera l\u2019identification d\u2019un plus grand nombre de patient\u00b7es touch\u00e9\u00b7es et l\u2019am\u00e9lioration de leur acc\u00e8s aux soins.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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2021 a \u00e9t\u00e9 la premi\u00e8re ann\u00e9e du programme PACT au Bangladesh, et beaucoup de choses ont d\u00e9j\u00e0 \u00e9t\u00e9 mises en place. La HSB a men\u00e9 avec succ\u00e8s des actions de sensibilisation et de plaidoyer tout au long de l\u2019ann\u00e9e, et plus de 250 personnes atteintes d\u2019un trouble de la coagulation ont ainsi \u00e9t\u00e9 identifi\u00e9es. Elle a aussi cr\u00e9\u00e9 deux nouvelles sections et soutenu l\u2019ouverture de deux centres de traitement de l\u2019h\u00e9mophilie (CTH) au sein d\u2019universit\u00e9s publiques de m\u00e9decine. De plus, l\u2019association a \u00e9tabli un centre d\u2019appels joignable 24h\/24 et 7j\/7 par la communaut\u00e9 locale des troubles de la coagulation.<\/p>\n

\u00ab Une page d\u2019histoire a \u00e9t\u00e9 \u00e9crite aujourd\u2019hui pour la communaut\u00e9 de l\u2019h\u00e9mophilie et des troubles de la coagulation du Bangladesh \u00bb, a d\u00e9clar\u00e9 M. Nurul Islam, pr\u00e9sident de la HSB. \u00ab La HSB remercie chaleureusement la DGHS et particuli\u00e8rement le Dr Mohammad Robed Amin, directeur du d\u00e9partement de contr\u00f4le des maladies non contagieuses, ainsi que la FMH, pour leur soutien \u00e0 la communaut\u00e9 des troubles de la coagulation du Bangladesh. \u00bb<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Le programme PACT est financ\u00e9 par CSL Behring, Pfizer, Roche et Sanofi Genzyme, nos partenaires encadrants, et par Biotest, Grifols et Sobi, nos partenaires associ\u00e9s.<\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) a le plaisir d\u2019annoncer qu\u2019un protocole d\u2019accord a \u00e9t\u00e9 sign\u00e9 entre le Directorate General of Health Services (DGHS) du minist\u00e8re de la Sant\u00e9 et de la Protection de la famille d\u2019une part et la FMH d\u2019autre part, pour la mise en \u0153uvre du programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT) qui vise \u00e0 am\u00e9liorer le diagnostic, le traitement et les soins pour les personnes atteintes d\u2019un trouble de la coagulation au Bangladesh.<\/p>\n","protected":false},"author":3,"featured_media":19509,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[171,182],"tags":[],"search-category":[],"class_list":["post-26469","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualites-de-la-fmh","category-pact-fr"],"yoast_head":"\nProgramme PACT de la FMH : un nouveau protocole d\u2019accord sign\u00e9 au Bangladesh | FMH - 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