{"id":188235,"date":"2026-10-06T09:00:52","date_gmt":"2026-10-06T13:00:52","guid":{"rendered":"https:\/\/wfh.org\/article\/19e-atelier-sur-les-nouvelles-technologies-et-la-therapie-genique-ntgt-30-ans-dinnovation-scientifique\/"},"modified":"2026-10-08T10:16:22","modified_gmt":"2026-10-08T14:16:22","slug":"19e-atelier-sur-les-nouvelles-technologies-et-la-therapie-genique-ntgt-30-ans-dinnovation-scientifique","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/19e-atelier-sur-les-nouvelles-technologies-et-la-therapie-genique-ntgt-30-ans-dinnovation-scientifique\/","title":{"rendered":"19e atelier sur les Nouvelles technologies et la th\u00e9rapie g\u00e9nique (NTGT) : 30 ans d\u2019innovation scientifique"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"188235\" class=\"elementor elementor-188235 elementor-187848\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-685a7e7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"685a7e7\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-ab54e48\" data-id=\"ab54e48\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1e29544 elementor-widget elementor-widget-text-editor\" data-id=\"1e29544\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Ces 30\u00a0derni\u00e8res ann\u00e9es, l\u2019atelier sur les Nouvelles technologies et la th\u00e9rapie g\u00e9nique a \u00e9t\u00e9 une incroyable occasion pour d\u2019\u00e9minent\u00b7es chercheurs, chercheuses et clinicien\u00b7nes\u00a0 d\u2019\u00e9changer des connaissances, de d\u00e9battre de l\u2019\u00e9mergence de nouvelles solutions et d\u2019envisager l\u2019avenir des soins pour les personnes atteintes d\u2019h\u00e9mophilie et d\u2019autres troubles h\u00e9r\u00e9ditaires de la coagulation.<\/p>\n<p>Organis\u00e9 au d\u00e9part par la National Bleeding Disorders Foundation (NBDF), cet atelier a \u00e9t\u00e9 partenaire de certaines des plus grandes avanc\u00e9es de notre domaine. Forte de cet h\u00e9ritage, la FMH a pris la direction de l\u2019atelier pour sa 18<sup>e\u00a0<\/sup>\u00e9dition en 2024. La r\u00e9union\u00a02026 sera donc la deuxi\u00e8me \u00e9dition cons\u00e9cutive organis\u00e9e par la FMH, et cela refl\u00e8te l\u2019engagement actuel de la F\u00e9d\u00e9ration en faveur de la collaboration et de l\u2019innovation au sein de la communaut\u00e9 mondiale des troubles de la coagulation.<\/p>\n<p>Le paysage des traitements est aujourd\u2019hui radicalement diff\u00e9rent de ce qu\u2019il \u00e9tait lors du tout premier atelier en 1996. \u00c0 l\u2019\u00e9poque, les possibilit\u00e9s de traitement pour l\u2019h\u00e9mophilie \u00e9taient beaucoup plus limit\u00e9es. Une d\u00e9cennie plus tard, le premier essai clinique sur la th\u00e9rapie g\u00e9nique h\u00e9patique pour l\u2019h\u00e9mophilie B avait commenc\u00e9, et en 2027, des th\u00e9rapies non substitutives changeaient compl\u00e8tement les soins prophylactiques. Aujourd\u2019hui, la th\u00e9rapie g\u00e9nique est disponible sur le march\u00e9 dans certains pays, et ce n\u2019est qu\u2019une \u00e9tape d\u2019un parcours scientifique toujours suivi par notre atelier.<\/p>\n<p>Le programme\u00a02026 rassemblera des expert\u00b7es en h\u00e9matologie, immunologie, recherche clinique, biotechnologie et plaidoyer en faveur des patient\u00b7es, afin d\u2019examiner les derni\u00e8res avanc\u00e9es en mati\u00e8re de technologies li\u00e9es aux prot\u00e9ines, de th\u00e9rapies g\u00e9niques par virus ad\u00e9noassoci\u00e9 (AAV) et autres syst\u00e8mes d\u2019administration, d\u2019\u00e9dition g\u00e9nomique et de th\u00e9rapies nouvelles pour les autres troubles de la coagulation.\u00a0 L\u2019atelier proposera aussi une discussion d\u00e9di\u00e9e \u00e0 la participation aux essais cliniques et \u00e0 l\u2019implication des patient\u00b7es, en analysant les facteurs qui peuvent influencer la d\u00e9cision d\u2019y participer ou non, \u00e0 la fois du point de vue du ou de la patiente et du ou de la chercheuse.<\/p>\n<p>Tandis que la communaut\u00e9 mondiale de la recherche continue \u00e0 repousser les limites du d\u00e9veloppement des traitements, la 19<sup>e<\/sup>\u00a0\u00e9dition du NTGT sera un v\u00e9ritable forum de discussion scientifique, d\u2019\u00e9change de connaissances et d\u2019examen critique des opportunit\u00e9s et des difficult\u00e9s qui nous attendent \u00e0 l\u2019avenir dans les soins aux troubles de la coagulation.<\/p>\n<p>Gr\u00e2ce \u00e0 des initiatives comme l\u2019atelier sur les Nouvelles technologies et la th\u00e9rapie g\u00e9nique, la FMH continue \u00e0 favoriser la collaboration et la connaissance, et \u00e0 encourager le progr\u00e8s vers un avenir au sein duquel les personnes atteintes d\u2019un trouble de la coagulation pourront b\u00e9n\u00e9ficier, partout dans le monde, des derniers progr\u00e8s scientifiques.<\/p>\n<p><em>Le 19<sup>e<\/sup>\u00a0atelier sur les Nouvelles technologies et la th\u00e9rapie g\u00e9nique b\u00e9n\u00e9ficie du soutien de\u00a0:<\/em><\/p>\n<ul>\n<li><em>Pfizer, partenaire visionnaire<\/em><\/li>\n<\/ul>\n<p><\/p>\n<ul>\n<li><em>Regeneron, Roche et Sobi, partenaires collaborateurs<\/em><\/li>\n<\/ul>\n<p><\/p>\n<ul>\n<li><em>Metagenomi, \u00e0 qui nous adressons nos remerciements<\/em><\/li>\n<\/ul>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>En novembre prochain, la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) f\u00eatera 30 ans d\u2019innovation scientifique \u00e0 l\u2019occasion de son 19e atelier sur les Nouvelles technologies et la th\u00e9rapie g\u00e9nique (NTTG), \u00e0 Montr\u00e9al (Canada). Des expert\u00b7es du monde entier se rassembleront les 12 et 13 novembre 2026 pour \u00e9voquer les derni\u00e8res avanc\u00e9es en mati\u00e8re de recherche et de traitement pour l\u2019h\u00e9mophilie.<\/p>\n","protected":false},"author":13,"featured_media":187851,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[334,230,203],"tags":[],"search-category":[85],"class_list":["post-188235","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-1-fr","category-gtrt-fr","category-gene-therapy-fr","search-category-article"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v28.5 (Yoast SEO v28.5) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>19e atelier sur les Nouvelles technologies et la th\u00e9rapie g\u00e9nique (NTGT) : 30 ans d\u2019innovation scientifique | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/19e-atelier-sur-les-nouvelles-technologies-et-la-therapie-genique-ntgt-30-ans-dinnovation-scientifique\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"19e atelier sur les Nouvelles technologies et la th\u00e9rapie g\u00e9nique (NTGT) : 30 ans d\u2019innovation scientifique\" \/>\n<meta property=\"og:description\" content=\"En novembre prochain, la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) f\u00eatera 30 ans d\u2019innovation scientifique \u00e0 l\u2019occasion de son 19e atelier sur les Nouvelles technologies et la th\u00e9rapie g\u00e9nique (NTTG), \u00e0 Montr\u00e9al (Canada). Des expert\u00b7es du monde entier se rassembleront les 12 et 13 novembre 2026 pour \u00e9voquer les derni\u00e8res avanc\u00e9es en mati\u00e8re de recherche et de traitement pour l\u2019h\u00e9mophilie.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/19e-atelier-sur-les-nouvelles-technologies-et-la-therapie-genique-ntgt-30-ans-dinnovation-scientifique\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2026-10-06T13:00:52+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-10-08T14:16:22+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2026\/10\/NTGT-Workshop-November-30-years-header.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/wfh.org\\\/fr\\\/article\\\/19e-atelier-sur-les-nouvelles-technologies-et-la-therapie-genique-ntgt-30-ans-dinnovation-scientifique\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/wfh.org\\\/fr\\\/article\\\/19e-atelier-sur-les-nouvelles-technologies-et-la-therapie-genique-ntgt-30-ans-dinnovation-scientifique\\\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\\\/\\\/wfh.org\\\/fr\\\/#\\\/schema\\\/person\\\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"19e atelier sur les Nouvelles technologies et la th\u00e9rapie g\u00e9nique (NTGT) : 30 ans d\u2019innovation scientifique\",\"datePublished\":\"2026-10-06T13:00:52+00:00\",\"dateModified\":\"2026-10-08T14:16:22+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/wfh.org\\\/fr\\\/article\\\/19e-atelier-sur-les-nouvelles-technologies-et-la-therapie-genique-ntgt-30-ans-dinnovation-scientifique\\\/\"},\"wordCount\":556,\"publisher\":{\"@id\":\"https:\\\/\\\/wfh.org\\\/fr\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/wfh.org\\\/fr\\\/article\\\/19e-atelier-sur-les-nouvelles-technologies-et-la-therapie-genique-ntgt-30-ans-dinnovation-scientifique\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/wfh.org\\\/wp-content\\\/uploads\\\/2026\\\/10\\\/NTGT-Workshop-November-30-years-header.jpg\",\"articleSection\":[\"Featured 1 - 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