{"id":185977,"date":"2026-10-22T09:00:57","date_gmt":"2026-10-22T13:00:57","guid":{"rendered":"https:\/\/wfh.org\/?p=185977"},"modified":"2026-10-22T11:02:24","modified_gmt":"2026-10-22T15:02:24","slug":"a-trinite-et-tobago-la-collaboration-renforce-les-soins-de-lhemophilie","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/a-trinite-et-tobago-la-collaboration-renforce-les-soins-de-lhemophilie\/","title":{"rendered":"\u00c0 Trinit\u00e9-et-Tobago, la collaboration renforce les soins de l\u2019h\u00e9mophilie"},"content":{"rendered":"\t\t
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Pour Jasiah, un jeune homme atteint d\u2019h\u00e9mophilie, grandir \u00e0 Trinit\u00e9-et-Tobago a \u00e9t\u00e9 synonyme de longues hospitalisations et d\u2019une connaissance limit\u00e9e des traitements disponibles. Au cours de p\u00e9riodes compliqu\u00e9es \u00e0 l\u2019\u00e9cole primaire, il a pass\u00e9 des mois \u00e0 l\u2019h\u00f4pital. Sa m\u00e8re Brigit se souvient des difficult\u00e9s que toute la famille a travers\u00e9es lorsqu\u2019il s\u2019est cass\u00e9 la jambe \u2013 une v\u00e9ritable crise qui a n\u00e9cessit\u00e9 un d\u00e9placement jusqu\u2019\u00e0 une autre ville et plusieurs jours d\u2019hospitalisation. Cette exp\u00e9rience a mis en lumi\u00e8re les obstacles auxquels les familles sont confront\u00e9es lorsqu\u2019il est difficile d\u2019acc\u00e9der rapidement au traitement. Heureusement pour Jasiah et d\u2019autres membres de la communaut\u00e9 des troubles h\u00e9r\u00e9ditaires de la coagulation, dont son jeune fr\u00e8re, la formation et les dons de produits th\u00e9rapeutiques fournis par le Programme d\u2019aide humanitaire de la FMH<\/a> ont tout chang\u00e9. Gr\u00e2ce \u00e0 de nombreux efforts collectifs facilit\u00e9s par le Programme, notamment des partenariats avec la Society for Inherited and Severe Blood Disorders of Trinidad and Tobago et avec les CTH locaux, un mod\u00e8le de soins plus solide et plus durable est en train d\u2019\u00e9merger dans le pays.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Ces parents peuvent aller au travail, ces enfants peuvent aller \u00e0 l\u2019\u00e9cole. B\u00e9n\u00e9ficier de prophylaxie et de traitements disponibles [\u2026] a compl\u00e8tement chang\u00e9 les choses pour nos patient\u00b7es atteint\u00b7es d\u2019h\u00e9mophilie.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014 Nadia Stoute Vigil, infirmi\u00e8re en h\u00e9matologie p\u00e9diatrique au Scarborough General Hospital<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Une belle r\u00e9ussite que l\u2019on doit au Programme d\u2019aide humanitaire de la FMH a \u00e9t\u00e9 l\u2019introduction d\u2019un approvisionnement stable en dons de produits th\u00e9rapeutiques \u00e0 Trinit\u00e9-et-Tobago. Cela a permis \u00e0 la communaut\u00e9 de passer du traitement de saignements aigus \u00e0 un traitement prophylactique. La Dr Camille Greene (MD), consultante en p\u00e9diatrie au Scarborough General Hospital, explique que le mod\u00e8le actuel de traitement prophylactique permet aux patient\u00b7es d\u2019\u00e9viter les saignements r\u00e9p\u00e9t\u00e9s, mais aussi de r\u00e9duire les douleurs et les l\u00e9sions articulaires. Le traitement \u00e0 domicile favoris\u00e9 par le CTH limite aussi les trajets longs et co\u00fbteux pour les familles. Ce changement est arriv\u00e9 petit \u00e0 petit\u00a0: les \u00e9quipes m\u00e9dicales ont d\u2019abord soign\u00e9 les patient\u00b7es au sein des cliniques, puis ont form\u00e9 les familles \u00e0 administrer le traitement \u00e0 domicile en toute s\u00e9curit\u00e9.<\/p>\n

Pour les familles, cette transformation a permis de limiter les perturbations dans la vie scolaire, professionnelle et quotidienne. Le changement dans la qualit\u00e9 de vie des personnes atteintes d\u2019un trouble de la coagulation a lui aussi \u00e9t\u00e9 spectaculaire. La Dr Greene (MD) se souvient en particulier d\u2019un petit gar\u00e7on atteint d\u2019h\u00e9mophilie, qui a quitt\u00e9 son fauteuil roulant, capable de marcher \u00e0 nouveau\u00a0: \u00ab\u00a0[sa pr\u00e9c\u00e9dente \u00e9quipe soignante] \u00e9tait convaincue qu\u2019il ne pourrait plus marcher. Et nous avons dit que c\u2019\u00e9tait parce qu\u2019il ne recevait pas de [facteur] assez fr\u00e9quemment. Nous avons propos\u00e9 d\u2019essayer une prophylaxie secondaire. [Il s\u2019est rapidement mis] \u00e0 marcher et je lui ai demand\u00e9 \u201ctu es bien la m\u00eame personne\u00a0?\u201d C\u2019\u00e9tait tout simplement incroyable.\u00a0\u00bb<\/p>\n

L\u2019exp\u00e9rience de Trinit\u00e9-et-Tobago montre que l\u2019acc\u00e8s au traitement ne d\u00e9pend pas que des m\u00e9dicaments eux-m\u00eames. Gr\u00e2ce \u00e0 une coop\u00e9ration durable entre professionnel\u00b7les de sant\u00e9, associations de patient\u00b7es, familles, gouvernements et partenaires mondiaux, les personnes atteintes d\u2019un trouble de la coagulation peuvent recevoir des soins en temps utile, \u00eatre plus autonomes dans leur propre prise en charge et mener une vie plus \u00e9panouie et ind\u00e9pendante.<\/p>\n

Depuis 2015, le Programme d\u2019aide humanitaire de la FMH a fait don de plus de 8,3 millions d\u2019UI de facteur \u00e0 Trinit\u00e9-et-Tobago. Rien qu\u2019en 2025, c\u2019est pr\u00e8s de 1,4 million d\u2019UI de facteur que le pays a re\u00e7u en dons. Pour en savoir plus sur le Programme, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda, notre Donateur contributeur. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 Trinit\u00e9-et-Tobago, la collaboration entre la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH), les personnes vivant sur place et atteintes d\u2019un trouble de la coagulation, les familles, les \u00e9quipes m\u00e9dicales, les associations nationales et les partenaires internationaux contribue \u00e0 faire \u00e9voluer l\u2019acc\u00e8s au traitement et aux soins pour les personnes atteintes d\u2019un trouble de la coagulation. Ces changements sont rendus possibles par les efforts cibl\u00e9s de la FMH, notamment gr\u00e2ce \u00e0 des initiatives telles que le Programme d\u2019aide humanitaire, un jumelage des associations de l\u2019h\u00e9mophilie entre la Society for Inherited and Severe Blood Disorders of Trinidad and Tobago et la Soci\u00e9t\u00e9 canadienne de l\u2019h\u00e9mophilie, un jumelage des centres de traitement de l\u2019h\u00e9mophilie (CTH) entre l\u2019Eric Williams Medical Sciences Complex et SickKids (Toronto), et bien d\u2019autres.<\/p>\n","protected":false},"author":13,"featured_media":185545,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[331,45],"tags":[],"search-category":[85],"class_list":["post-185977","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-1","category-wfh-humanitarian-aid-program","search-category-article"],"yoast_head":"\n\u00c0 Trinit\u00e9-et-Tobago, la collaboration renforce les soins de l\u2019h\u00e9mophilie | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/a-trinite-et-tobago-la-collaboration-renforce-les-soins-de-lhemophilie\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00c0 Trinit\u00e9-et-Tobago, la collaboration renforce les soins de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"og:description\" content=\"\u00c0 Trinit\u00e9-et-Tobago, la collaboration entre la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH), les personnes vivant sur place et atteintes d\u2019un trouble de la coagulation, les familles, les \u00e9quipes m\u00e9dicales, les associations nationales et les partenaires internationaux contribue \u00e0 faire \u00e9voluer l\u2019acc\u00e8s au traitement et aux soins pour les personnes atteintes d\u2019un trouble de la coagulation. 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