{"id":178408,"date":"2026-05-04T09:00:13","date_gmt":"2026-05-04T13:00:13","guid":{"rendered":"https:\/\/wfh.org\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/"},"modified":"2026-05-06T16:49:40","modified_gmt":"2026-05-06T20:49:40","slug":"la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/","title":{"rendered":"La th\u00e9rapie non substitutive change la vie d\u2019un jeune de La Barbade"},"content":{"rendered":"\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Le jour o\u00f9 Rh\u014dnan Boyce a \u00e9t\u00e9 amen\u00e9 \u00e0 l\u2019h\u00f4pital pour traiter son bleu, il a \u00e9t\u00e9 transf\u00e9r\u00e9 \u00e0 l\u2019unit\u00e9 p\u00e9diatrique de l\u2019h\u00f4pital Queen Elizabeth de Bridgetown (La Barbade), apr\u00e8s que des m\u00e9decins urgentistes aient soup\u00e7onn\u00e9 un trouble de la coagulation. Le diagnostic d\u2019h\u00e9mophilie s\u00e9v\u00e8re a \u00e9t\u00e9 un choc pour sa famille. \u00ab\u00a0Rh\u014dnan \u00e9tait atteint d\u2019h\u00e9mophilie A. Comment\u00a0? Comment \u00e9tait-ce possible\u00a0?\u00a0\u00bb se souvient sa m\u00e8re, soulignant que personne dans la famille n\u2019avait jamais re\u00e7u de diagnostic pour cette maladie. Peu apr\u00e8s, toute la famille a appris que Rh\u014dnan aurait besoin d\u2019injections de facteur trois fois par semaine.<\/p>\n

Bien que cela ait \u00e9t\u00e9 un traumatisme pour la famille d\u2019apprendre la maladie de son fils, elle a eu la chance de recevoir un diagnostic. Dans de nombreux pays, les personnes atteintes d\u2019un trouble de la coagulation passent toute leur vie \u00e0 souffrir de leur maladie sans jamais savoir ce qui leur arrive. \u00c0 La Barbade, les niveaux de soins ont beaucoup progress\u00e9, gr\u00e2ce au soutien de la FMH et en particulier du Programme d\u2019aide humanitaire<\/a>.<\/p>\n

Au fur et \u00e0 mesure que Rh\u014dnan a grandi, le traitement est devenu de plus en plus difficile. Les injections intraveineuses r\u00e9guli\u00e8res \u00e9taient compliqu\u00e9es, et il souffrait de saignements aigus dans les muscles et les articulations. Les moments de sociabilit\u00e9 pouvaient aussi \u00eatre douloureux. \u00ab\u00a0Le voir mis \u00e0 l\u2019\u00e9cart\u2026 l\u2019entendre dire que les autres ne le choisissaient pas parce qu\u2019ils avaient peur qu\u2019il se fasse mal m\u2019a fait monter les larmes aux yeux plus d\u2019une fois\u00a0\u00bb, explique sa m\u00e8re. \u00ab\u00a0Mais il a toujours fait preuve de r\u00e9silience.\u00a0\u00bb<\/p>\n

La famille a d\u00fb faire face \u00e0 un autre revers lorsque Rh\u014dnan a d\u00e9velopp\u00e9 un inhibiteur, une complication qui rend les traitements standards moins efficaces. Les pr\u00e9occupations vis-\u00e0-vis de sa sant\u00e9 et de son avenir ont pes\u00e9 lourdement sur ses parents, en particulier lorsque les \u00e9pisodes de saignements ont forc\u00e9 le jeune gar\u00e7on \u00e0 manquer l\u2019\u00e9cole.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t
\n\t\t\t<\/i>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
\n\t\t\t
\n\t\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t

Une fois qu\u2019il a commenc\u00e9 la th\u00e9rapie non substitutive, sa qualit\u00e9 de vie a chang\u00e9 du tout au tout\u2026 Il est [aujourd\u2019hui] capable de jouer avec ses camarades [\u2026] et il continue d\u2019avoir d\u2019excellents r\u00e9sultats \u00e0 l\u2019\u00e9cole. En bref, il a une vie normale.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t

\u2014 Ren\u00e9e Boyce, m\u00e8re de Rh\u014dnan<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

L\u2019espoir est revenu lorsque l\u2019\u00e9quipe d\u2019h\u00e9matologie qui suit Rh\u014dnan a appris qu\u2019il pouvait recevoir une th\u00e9rapie non substitutive fournie par le Programme d\u2019aide humanitaire. Depuis le d\u00e9but de ce traitement, la vie de Rh\u014dnan a compl\u00e8tement chang\u00e9. Il re\u00e7oit d\u00e9sormais des injections toutes les deux semaines au lieu d\u2019injections intraveineuses plusieurs fois par semaine. Les saignements aigus ont pris fin et d\u00e9sormais il ne manque l\u2019\u00e9cole que tr\u00e8s rarement. Aujourd\u2019hui \u00e2g\u00e9 de 13 ans, Rh\u014dnan s\u2019\u00e9panouit. Il aime pratiquer des sports tels que le volleyball et le football et a m\u00eame rejoint un club de foot \u2013 des activit\u00e9s qui semblaient inacessibles auparavant. Lui et sa famille peuvent ainsi profiter d\u2019une vie normale.<\/p>\n

Depuis 2015, le Programme d\u2019aide humanitaire de la FMH a fait don \u00e0 La Barbade de 3,7\u00a0millions d\u2019UI de facteur et 8\u00a0000\u00a0mg de th\u00e9rapies non substitutives. Rien qu\u2019en 2025, c\u2019est plus d\u2019un million d\u2019UI de facteur et 4\u00a0000\u00a0mg de th\u00e9rapies non substitutives que le pays a re\u00e7us en dons. Pour en savoir plus sur le Programme d\u2019aide humanitaire de la FMH, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t
\n\t\t\t\t\t

\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda, notre Donateur contributeur. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Rh\u014dnan Boyce, de La Barbade, avait six mois lorsque ses parents ont remarqu\u00e9 pour la premi\u00e8re fois un gros bleu sur son bras. Comme beaucoup de parents, ils s\u2019attendaient \u00e0 ce que les m\u00e9decins prescrivent des m\u00e9dicaments et leur disent que tout irait bien. Malheureusement, ce bleu s\u2019est r\u00e9v\u00e9l\u00e9 \u00eatre caus\u00e9 par une h\u00e9mophilie. La d\u00e9cennie qui a suivi a \u00e9t\u00e9 pour ce gar\u00e7on un encha\u00eenement de saignements aigus, de traitements fr\u00e9quents et d\u2019interruptions de scolarit\u00e9\u2026 jusqu\u2019\u00e0 ce que la th\u00e9rapie non substitutive fournie par la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) change compl\u00e8tement sa vie.<\/p>\n","protected":false},"author":13,"featured_media":19564,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[184],"tags":[],"search-category":[85],"class_list":["post-178408","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nLa th\u00e9rapie non substitutive change la vie d\u2019un jeune de La Barbade | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La th\u00e9rapie non substitutive change la vie d\u2019un jeune de La Barbade\" \/>\n<meta property=\"og:description\" content=\"Rh\u014dnan Boyce, de La Barbade, avait six mois lorsque ses parents ont remarqu\u00e9 pour la premi\u00e8re fois un gros bleu sur son bras. Comme beaucoup de parents, ils s\u2019attendaient \u00e0 ce que les m\u00e9decins prescrivent des m\u00e9dicaments et leur disent que tout irait bien. Malheureusement, ce bleu s\u2019est r\u00e9v\u00e9l\u00e9 \u00eatre caus\u00e9 par une h\u00e9mophilie. La d\u00e9cennie qui a suivi a \u00e9t\u00e9 pour ce gar\u00e7on un encha\u00eenement de saignements aigus, de traitements fr\u00e9quents et d\u2019interruptions de scolarit\u00e9\u2026 jusqu\u2019\u00e0 ce que la th\u00e9rapie non substitutive fournie par la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) change compl\u00e8tement sa vie.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2026-05-04T13:00:13+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-05-06T20:49:40+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Placeholder-Result-V1.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1920\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"La th\u00e9rapie non substitutive change la vie d\u2019un jeune de La Barbade\",\"datePublished\":\"2026-05-04T13:00:13+00:00\",\"dateModified\":\"2026-05-06T20:49:40+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/\"},\"wordCount\":776,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Placeholder-Result-V1.png\",\"articleSection\":[\"Programme d\u2019aide humanitaire de la FMH\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/\",\"name\":\"La th\u00e9rapie non substitutive change la vie d\u2019un jeune de La Barbade | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Placeholder-Result-V1.png\",\"datePublished\":\"2026-05-04T13:00:13+00:00\",\"dateModified\":\"2026-05-06T20:49:40+00:00\",\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/#primaryimage\",\"url\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Placeholder-Result-V1.png\",\"contentUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Placeholder-Result-V1.png\",\"width\":1920,\"height\":1080},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/wfh.org\/fr\/#website\",\"url\":\"https:\/\/wfh.org\/fr\/\",\"name\":\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\",\"description\":\"WFH - World Federation of Hemophilia\",\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/wfh.org\/fr\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/wfh.org\/fr\/#organization\",\"name\":\"World Federation of Hemophilia\",\"url\":\"https:\/\/wfh.org\/fr\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/10\/WFH-LOGO-ENGLISH.svg\",\"contentUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/10\/WFH-LOGO-ENGLISH.svg\",\"width\":210,\"height\":63,\"caption\":\"World Federation of Hemophilia\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/wfhemophilia\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\",\"name\":\"Mitch Semienchuk\",\"sameAs\":[\"analytics\"]}]}<\/script>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"La th\u00e9rapie non substitutive change la vie d\u2019un jeune de La Barbade | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/","og_locale":"fr_FR","og_type":"article","og_title":"La th\u00e9rapie non substitutive change la vie d\u2019un jeune de La Barbade","og_description":"Rh\u014dnan Boyce, de La Barbade, avait six mois lorsque ses parents ont remarqu\u00e9 pour la premi\u00e8re fois un gros bleu sur son bras. Comme beaucoup de parents, ils s\u2019attendaient \u00e0 ce que les m\u00e9decins prescrivent des m\u00e9dicaments et leur disent que tout irait bien. Malheureusement, ce bleu s\u2019est r\u00e9v\u00e9l\u00e9 \u00eatre caus\u00e9 par une h\u00e9mophilie. La d\u00e9cennie qui a suivi a \u00e9t\u00e9 pour ce gar\u00e7on un encha\u00eenement de saignements aigus, de traitements fr\u00e9quents et d\u2019interruptions de scolarit\u00e9\u2026 jusqu\u2019\u00e0 ce que la th\u00e9rapie non substitutive fournie par la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) change compl\u00e8tement sa vie.","og_url":"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/","og_site_name":"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie","article_publisher":"https:\/\/www.facebook.com\/wfhemophilia\/","article_published_time":"2026-05-04T13:00:13+00:00","article_modified_time":"2026-05-06T20:49:40+00:00","og_image":[{"width":1920,"height":1080,"url":"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Placeholder-Result-V1.png","type":"image\/png"}],"author":"Mitch Semienchuk","twitter_card":"summary_large_image","twitter_misc":{"\u00c9crit par":"Mitch Semienchuk","Dur\u00e9e de lecture estim\u00e9e":"4 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/#article","isPartOf":{"@id":"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/"},"author":{"name":"Mitch Semienchuk","@id":"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b"},"headline":"La th\u00e9rapie non substitutive change la vie d\u2019un jeune de La Barbade","datePublished":"2026-05-04T13:00:13+00:00","dateModified":"2026-05-06T20:49:40+00:00","mainEntityOfPage":{"@id":"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/"},"wordCount":776,"publisher":{"@id":"https:\/\/wfh.org\/fr\/#organization"},"image":{"@id":"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/#primaryimage"},"thumbnailUrl":"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Placeholder-Result-V1.png","articleSection":["Programme d\u2019aide humanitaire de la FMH"],"inLanguage":"fr-FR"},{"@type":"WebPage","@id":"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/","url":"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/","name":"La th\u00e9rapie non substitutive change la vie d\u2019un jeune de La Barbade | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie","isPartOf":{"@id":"https:\/\/wfh.org\/fr\/#website"},"primaryImageOfPage":{"@id":"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/#primaryimage"},"image":{"@id":"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/#primaryimage"},"thumbnailUrl":"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Placeholder-Result-V1.png","datePublished":"2026-05-04T13:00:13+00:00","dateModified":"2026-05-06T20:49:40+00:00","inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/"]}]},{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/wfh.org\/fr\/article\/la-therapie-non-substitutive-change-la-vie-dun-jeune-de-la-barbade\/#primaryimage","url":"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Placeholder-Result-V1.png","contentUrl":"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Placeholder-Result-V1.png","width":1920,"height":1080},{"@type":"WebSite","@id":"https:\/\/wfh.org\/fr\/#website","url":"https:\/\/wfh.org\/fr\/","name":"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie","description":"WFH - World Federation of Hemophilia","publisher":{"@id":"https:\/\/wfh.org\/fr\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/wfh.org\/fr\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Organization","@id":"https:\/\/wfh.org\/fr\/#organization","name":"World Federation of Hemophilia","url":"https:\/\/wfh.org\/fr\/","logo":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/wfh.org\/fr\/#\/schema\/logo\/image\/","url":"https:\/\/wfh.org\/wp-content\/uploads\/2021\/10\/WFH-LOGO-ENGLISH.svg","contentUrl":"https:\/\/wfh.org\/wp-content\/uploads\/2021\/10\/WFH-LOGO-ENGLISH.svg","width":210,"height":63,"caption":"World Federation of Hemophilia"},"image":{"@id":"https:\/\/wfh.org\/fr\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/wfhemophilia\/"]},{"@type":"Person","@id":"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b","name":"Mitch Semienchuk","sameAs":["analytics"]}]}},"_links":{"self":[{"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/posts\/178408","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/users\/13"}],"replies":[{"embeddable":true,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/comments?post=178408"}],"version-history":[{"count":1,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/posts\/178408\/revisions"}],"predecessor-version":[{"id":178409,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/posts\/178408\/revisions\/178409"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/media\/19564"}],"wp:attachment":[{"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/media?parent=178408"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/categories?post=178408"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/tags?post=178408"},{"taxonomy":"search-category","embeddable":true,"href":"https:\/\/wfh.org\/fr\/wp-json\/wp\/v2\/search-category?post=178408"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}